Waiting on lab results and not fully diagnosed...Today is my first day on this forum. I need some advice. I have been symptomatic since Janaury. I have seen every specialist known to man. We have ruled out...Reactions0reactionsComments4 replies
Is mestinon not available anymore? ...I have been taking mestinon for ocular MG since about 2012. I’ve been told that it’s been stopped being made and I can’t get anymore. I’m waiting to be reviewed...Reactions0reactionsComments1 replies
Does a Negative ANA mean a negative for MG or are the specific antibody tests different....Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...Reactions0reactionsComments1 repliesAutoimmune DiseasesTips & AdviceNewly Diagnosed
Mestinon not working...Hi everyone! I am having problems with Mestinon which I never had for 10 years. After MG crisis and plasmapheresis, Mestinon is not working like before. I take it to...Reactions0reactionsComments14 replies
Keep Calm and Spoon On...Have you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
The Hardest Thing for Me with Myasthenia Gravis...Let me be clear: There are so many hard things about myasthenia gravis (MG). There is the fatigue, chewing and swallowing issues, breathing difficulty, and vision problems, just to name... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments7 comments
Fatigue/exhaustion in arms and legs...I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...Reactions0reactionsComments2 repliesDrivingExerciseMuscle Weakness
Stomach nausea and pain...My husband was diagnosed with MG about 6 months ago and since then he's had problems with his stomach with nausea and pain could this be a side effect from...Reactions0reactionsComments5 replies
Dramatic changes in MG symptoms for the better ...I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then...Reactions0reactionsComments4 repliesAutoimmune Diseases
Anyone else have MG and idiopathic transverse myelitis...I've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...Reactions0reactionsComments3 repliesDiagnosisAutoimmune DiseasesNewly Diagnosed
5 Things I Wish I Knew When I Was Diagnosed with MG...This year marks 10 years since myasthenia gravis (MG) began for me. My official 10 year anniversary of living with this disease. Looking back, I had so many thoughts running... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments37 comments
Where Did This Come From?...Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double... By CommunityMember9ed8661 min readBookmark for laterReactions0reactionsComments6 comments
40 Years Too Long...I was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to... By CommunityMember14eebf1 min readBookmark for laterReactions0reactionsComments2 comments
Conquering My Fear of Swimming After Diagnosis...The first time I went swimming after my myasthenia gravis (MG) diagnosis, I was very anxious. For those who haven’t experienced the ugly symptoms that come with MG, such as... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments10 comments
Tasha White...With more than 30 years of experience as a Myasthenia Gravis patient with a BS in Healthcare Administration, Tasha continues to educate, uplift, and show empathy to the MG community... By Editorial Team 1 min readBookmark for later
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?...Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions0reactionsComments25 repliesTips & AdviceTreatmentNewly Diagnosed
Myasthenia Gravis and Anticonvulsants (Antiepileptics)...Anticonvulsants (or antiepileptics) are drugs designed to control or treat seizures, nerve pain, and some mood disorders. Some "mood stabilizers come from the anticonvulsant class. Common anticonvulsants include: Depakote® (divalproex...Reactions0reactionsComments0 repliesDepressionTreatmentTriggers
Deep frustration and sadness after finding the love of my life...Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...Reactions0reactionsComments6 replies
Immunotherapy (stem cell)...Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions0reactionsComments4 repliesTreatment
