FeaturedActive 3 days agoUnusual MG Symptoms?...Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...Reactions0reactionsComments56 repliesGeneralized MG
Self healed through Food!...I was diagnosed in 2014 due to a positive reaction to Mestonin. I couldn’t talk and walk up stairs. I self healed through lifestyle design and the AIP. Symptom free...Reactions0reactionsComments8 replies
Does anyone know of an opthamalogist who specializes in Ocular MG?...I have tried many Google searches but none come up. I present with MG- closed crossed eyes but my Single Fiber Test was normal so I don't have an MG...Reactions0reactionsComments1 replies
Let Me Explain...One of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes...Reactions0reactionsComments4 comments
Coping with Muscle Spasms and Cramping in MG...Muscle weakness is the hallmark of myasthenia gravis (MG). However, at Myasthenia-Gravis.com, community members often discuss a variety of symptoms they have experienced since diagnosis, including muscle spasms and cramping...Reactions0reactionsComments49 comments
Has anyone tried compression sleeves post activities?...My husband has had myasthenia gravis for nearly 3 years now. He is an amazing man and has handled himself with such dignity throughout this journey. He did have a...Reactions0reactionsComments2 repliesAssistive Devices
My First Pregnancy with an MG Diagnosis...I’m 9 months pregnant and about to have our third baby any day. Although my symptoms with myasthenia gravis (MG) started presenting during my second pregnancy (more than 10 years...Reactions0reactionsComments0 comments
Community Views: Shifting Perspectives After an MG Diagnosis...A myasthenia gravis (MG) diagnosis can change many things in your life. Energy, activity level, pain, and stamina can shift daily. Your outlook on life can shift as well. Members...Reactions0reactionsComments0 comments
What I Didn't Know...I submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization...Reactions0reactionsComments9 comments
Equivocal Result on MG blood test...Hi everyone. I have not been diagnosed with anything as of yet but I certainly have something I'm going through and wanted to run my symptoms by you. Starting about...Reactions0reactionsComments4 repliesSymptoms
NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo...Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions0reactionsComments3 repliesTreatmentGeneralized MGSymptoms
Recent positive MG blood test ...Hi, i received a letter from the hospital last night confirming that i had tested positive from a blood test for MG. I had been to the doctors after suffering...Reactions0reactionsComments3 repliesOcular MGNewly DiagnosedTips & Advice
Muscle Weakness with MG...I have found that after having a thymectomy to remove a thymoma going to the gym four days a week and using a system of light weights namely 10kgs definitely...Reactions0reactionsComments5 replies
Has anyone had this problem?...Hi, my name is Suzie, I have been diagnosed with MuSk myasthenia gravis 3 months ago. Last Thursday I went to the hospital because I could not breathe properly or...Reactions0reactionsComments8 replies
Heat and MG...I had a thymectomy to remove a thymoma back in April 2021 and have been in remission for nearly three years. I regularly use the steam room and sauna at...Reactions0reactionsComments5 replies
Active 2 days agoBurning pain/muscle weakness...Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...Reactions0reactionsComments18 repliesGeneralized MGAwareness
Exhaustion?...Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...Reactions0reactionsComments3 repliesMuscle WeaknessSymptoms
Still not diagnosed but Dr started me on mestinon........I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to help at first but now it is only...Reactions0reactionsComments8 replies
Eyepatch Usage...I'm fairly new to living with MG (it's been about three months since my diagnosis) and I was curious if others with double vision also find eyepatches to be helpful...Reactions0reactionsComments3 repliesDrivingOcular MGVision
Pyridostigmine (Mestinon) Shortage in UK...You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions0reactionsComments1 repliesTriggersTreatmentCrisis
