Equivocal Result on MG blood test...Hi everyone. I have not been diagnosed with anything as of yet but I certainly have something I'm going through and wanted to run my symptoms by you. Starting about...Reactions0reactionsComments4 repliesSymptoms
NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo...Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions0reactionsComments3 repliesTreatmentGeneralized MGSymptoms
Recent positive MG blood test ...Hi, i received a letter from the hospital last night confirming that i had tested positive from a blood test for MG. I had been to the doctors after suffering...Reactions0reactionsComments3 repliesOcular MGNewly DiagnosedTips & Advice
Muscle Weakness with MG...I have found that after having a thymectomy to remove a thymoma going to the gym four days a week and using a system of light weights namely 10kgs definitely...Reactions0reactionsComments5 replies
Has anyone had this problem?...Hi, my name is Suzie, I have been diagnosed with MuSk myasthenia gravis 3 months ago. Last Thursday I went to the hospital because I could not breathe properly or...Reactions0reactionsComments8 replies
Heat and MG...I had a thymectomy to remove a thymoma back in April 2021 and have been in remission for nearly three years. I regularly use the steam room and sauna at...Reactions0reactionsComments5 replies
Burning pain/muscle weakness...Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...Reactions0reactionsComments16 repliesAwarenessGeneralized MG
Exhaustion?...Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...Reactions0reactionsComments3 repliesMuscle WeaknessSymptoms
Still not diagnosed but Dr started me on mestinon........I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to help at first but now it is only...Reactions0reactionsComments8 replies
Eyepatch Usage...I'm fairly new to living with MG (it's been about three months since my diagnosis) and I was curious if others with double vision also find eyepatches to be helpful...Reactions0reactionsComments3 repliesDrivingOcular MGVision
Pyridostigmine (Mestinon) Shortage in UK...You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions0reactionsComments1 repliesTriggersTreatmentCrisis
How Do I Make My Outdoor Space Power Chair-Friendly?...I don’t let myasthenia gravis (MG) stop me from being outside and enjoying the things I love. But how do I make that happen when I’m in a power chair?... By Janice Koehn5 min readBookmark for laterReactions0reactionsComments0 comments
Myasthenia Flare?...I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...Reactions0reactionsComments2 repliesDiagnosis
Could I have this disease?...I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should I be concerned and should I try to...Reactions0reactionsComments3 repliesAutoimmune Diseases
What MG Muscle Weakness Feels Like...Myasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, we took the opportunity to ask our Patient... By Myasthenia-Gravis.com Team4 min readBookmark for laterReactions0reactionsComments22 comments
CellCept From My Standpoint...I have been on CellCept® (mycophenolate mofetil) for 2 and a half years since my myasthenia gravis (MG) diagnosis. I am sharing my experience to benefit others interested in learning... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments11 comments
Autoimmune Conditions Common With MG..."Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to develop autoimmune conditions. Doctors also know that people...Reactions0reactionsComments22 repliesDiagnosisAutoimmune DiseasesResearch & Clinical Trials
Heart Issues...I am wondering if anyone else with MG has experienced any heart related issues. Recently my doctor found an abnormality in my EKG relating to electrical conductivity. This wasn't there...Reactions0reactionsComments12 repliesSymptoms
Steps Towards Making the Bedroom MG-Friendly...Many myasthenia gravis (MG) sufferers complain of insomnia or difficulty sleeping. For a while after my diagnosis, I had several MG symptoms, 1 of which was difficulty breathing, especially if... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
ANA (Antinuclear Antibody) Test and Myasthenia Gravis...ANA (Antinuclear Antibody) Test and Myasthenia gravis. ANA, antinuclear antibodies, is a type of autoantibody. "Autoantibodies are antibodies (immune proteins) that mistakenly target and react with a person's own tissues...Reactions0reactionsComments0 repliesAwarenessDiagnosisTypes
