A Trip to the Emergency Room with Breathing Difficulty...Several months ago I called my dedicated nurse, Diane, who was assigned to me by my insurance company to help with my myasthenia gravis (MG). I don't know about you... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments1 comments
How long does nerve pain last on chest after thymectomy?...I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision. Any help?...Reactions0reactionsComments3 repliesHealthcare TeamThymectomy
MG and anger ...i do not have MG but my mother was diagnosed with general myasthenia 22 years ago when i was 13. i have joined the forum to seek a few answers...Reactions0reactionsComments5 repliesFriends & FamilyIntimacy & RelationshipsMental Health
Feeling Left in the Dust When MG Prevents Us from Joining Our Partner...Myasthenia gravis (MG), the ultimate buzzkill, may have you feeling left in the dust when symptoms leave you unable to tag along with your partner to everything. It can leave... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Compromised Mobility and Hotel Emergency Evacuation...When we’re traveling, we often stay in a hotel. Since I have myasthenia gravis (MG) with limited mobility, I research everything I question. I have gained a lot of knowledge... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
Obesity Drugs...Hi to all! I’m 5’0” and weigh 185 pounds. A bit rotund here! My weight in impacting my breathing(COPD, sleep apnea), my spine(asking collapsing vertebra to carry this, leading to...Reactions0reactionsComments2 repliesDiet & NutritionTriggers
Right sixth nerve palsy...Hello. I had a right sixth nerve palsy that resolved spontaneously within 2-3 weeks. Modulating ab showed increased activity. Other 2 abs were normal. I saw only two case reports...Reactions0reactionsComments4 replies
Keeping Your Medical Records Organized...Keeping track of your medical records is essential for your health, especially when you, your child, or your loved one has myasthenia gravis. With organized medical records, you can track... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Ocular mg...I was just diagnosed with ocular mg.im talking pyridositigmine.does anyone get dizzy from it?...Reactions0reactionsComments24 replies
Unpredictable Fatigue with Myasthenia Gravis...One of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or not knowing how long that fatigue is going... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments22 comments
MG Exacerbation after Antibiotics? ...Hi everyone! Has anyone had an MG exacerbation after a course of antibiotics? If so, how long has it lasted? And what antibiotics were to blame? I have been in...Reactions0reactionsComments1 repliesTriggersTips & Advice
FeaturedActive yesterdayUnusual MG Symptoms?...Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...Reactions0reactionsComments54 repliesGeneralized MG
Self healed through Food!...I was diagnosed in 2014 due to a positive reaction to Mestonin. I couldn’t talk and walk up stairs. I self healed through lifestyle design and the AIP. Symptom free...Reactions0reactionsComments8 replies
Does anyone know of an opthamalogist who specializes in Ocular MG?...I have tried many Google searches but none come up. I present with MG- closed crossed eyes but my Single Fiber Test was normal so I don't have an MG...Reactions0reactionsComments1 replies
Let Me Explain...One of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments4 comments
Coping with Muscle Spasms and Cramping in MG...Muscle weakness is the hallmark of myasthenia gravis (MG). However, at Myasthenia-Gravis.com, community members often discuss a variety of symptoms they have experienced since diagnosis, including muscle spasms and cramping... By Myasthenia-Gravis.com Team4 min readBookmark for laterReactions0reactionsComments41 comments
Has anyone tried compression sleeves post activities?...My husband has had myasthenia gravis for nearly 3 years now. He is an amazing man and has handled himself with such dignity throughout this journey. He did have a...Reactions0reactionsComments2 repliesAssistive Devices
My First Pregnancy with an MG Diagnosis...I’m 9 months pregnant and about to have our third baby any day. Although my symptoms with myasthenia gravis (MG) started presenting during my second pregnancy (more than 10 years... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments0 comments
Community Views: Shifting Perspectives After an MG Diagnosis...A myasthenia gravis (MG) diagnosis can change many things in your life. Energy, activity level, pain, and stamina can shift daily. Your outlook on life can shift as well. Members... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What I Didn't Know...I submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization... By Connie3 min readBookmark for laterReactions0reactionsComments9 comments
