MG flare or emergency while out of state or country? ...Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If...reactionsrepliesTravelTips & AdviceTreatment
What Is the Autoimmune Protocol Diet, and Can It Help MG?...Myasthenia gravis (MG) is an autoimmune condition caused by the immune system attacking your own body. For some people, making certain changes...reactions2comments
Do you have flare symptoms that show up well after your exposure to a trigger?...My usual flare symptom is fatigue. But if my trigger exposure is more extreme it includes slight slurring and then my right...reactions3repliesTriggers
Vivgart...I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been...reactions3replies
Methotrexate...Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking...reactions3repliesSide Effects
Blue Light Glasses...Blue light glasses, such as those from Foster Grant, Cyxus, Felix Gray, Gunnar Optiks, TIJN, EyeBuyDirect, and Warby Parker, are designed to...reactionsrepliesVision
Learning to Love Convenience Vegetables: Cooking With MG...Long before myasthenia gravis (MG) and the eat-everything-imperative of prednisone entered my life, I loved food. Not necessarily cooking, but definitely eating...reactions7comments
Side effects of medication...I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I...reactions1replySide EffectsTreatment
Extreme heaviness and throbbing pain in lower legs...I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my...reactions1reply
Difference with ibuprofen ...Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general...reactions1replyTreatmentSymptoms
My symptoms started years before I diagnosed with MG...I was diagnosed with MG this past February. Last November while working in the morning my vision went from clear to double...reactions4repliesDepressionNewly Diagnosed
Diagnosis and beyond...I am not sure if this is where to share this, or even how much to share, so feel free to remove...reactions1replyDiagnosis
I have symptoms but no answers. Only detective is me. Need help....I am searching for answers, and either nobody has any idea or they're not talking. This has dragged on for years. I...reactions8repliesSymptoms
Myasthenia Gravis symptom?...I was diagnosed with myasthenia gravis about four years ago and it’s been only ocular. I have another symptom that is driving...reactions1replyAutoimmune Diseases
Weather ...All of my life I dreamed of having a place on the beach. I was always a Beachgirl. My dream came true...reactions1replyCopingWeather
Leaving My Dream Career after Myasthenia Gravis...I became very passionate about archaeology before applying to colleges. I was utterly excited to pursue it as a career. In addition...reactionscomments
MG taking Azathioprine...I was diagnosed with MG 7 years ago. Went thru the pyridostigmine - prednisone treatment for about 2 years. Celcept for about...reactions8repliesAutoimmune Diseases
How do you prepare for travel?...Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini...reactions2repliesGeneralized MGTravelTips & Advice
How did your MG diagnosis affect you emotionally?...How did your MG diagnosis affect you emotionally? It can be incredibly challenging to cope with a diagnosis of Myasthenia Gravis (MG)...reactionsrepliesDiagnosisCopingDepression
My Myasthenia Gravis Awakening...In this article I describe how I grappled with the emotions of learning that I had an incurable disease and how I...reactions8comments
