Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?...I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar, but exaggerated. I was told “this is usually...Reactions0reactionsComments1 replies
Excess Mucus...Does anyone have any suggestions for removing excess secretions/mucus from your throat? My Father has MG and struggles with this daily. Some days he's unable to eat because the mucus...Reactions0reactionsComments3 repliesDiet & Nutrition
When Another Health Crisis Hits with MG...A few months ago, I had a medical emergency. My heart was failing and I was unable to function. Looking back at this particular event, my symptoms may have started...Reactions0reactionsComments0 comments
Transsternal Thymectomy Recovery: Tips, Advice, and What to Expect...A little over a year ago, I had a transsternal thymectomy. In this article I will share tips and advice I learned while recovering from surgery. If all goes smoothly...Reactions0reactionsComments19 comments
Is anyone else on azathioprine?...I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions0reactionsComments4 repliesMuscle WeaknessSymptomsTreatment
COVID and gMG...I started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms to the COVID shots?...Reactions0reactionsComments1 repliesTriggers
My MG Wishlist...If you have myasthenia gravis (MG), you know how much stuff you miss out on in life. Although I have heard of a few people who have gone on to...Reactions0reactionsComments1 comments
Has anyone had a transternal thymectomy? ...I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...Reactions0reactionsComments4 repliesThymectomy
A Fatigue Scale...When I began having MG symptoms it occurred to me that it would be helpful in order to track the progress of the disease to have a fatigue scale comparable...Reactions0reactionsComments1 repliesTips & AdviceCoping
Mestinon stop working ...I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...Reactions0reactionsComments1 replies
Muscle pain...I was just diagnosed with MG in February and my initial symptoms were difficulty chewing and some fatigue. I have managed fairly well on a dose of 10mg prednisone a...Reactions0reactionsComments4 replies
Leg weakness...I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have...Reactions0reactionsComments8 replies
Those Commercials!...With a condition like myasthenia gravis (MG), it’s easy to become glued to a recliner and watch way too much television. But it doesn’t even require a condition to develop...Reactions0reactionsComments0 comments
MG & Vision...I am 68 years old and I was diagnosed with MG last March when I woke up one day and I had double vision and I couldn’t open my left...Reactions0reactionsComments3 repliesCoping
Every Season with Myasthenia Gravis...Where I live there are 4 very distinct seasons! I truly do like all 4 seasons. Each has their own uniqueness about them. But for me, each one also creates...Reactions0reactionsComments4 comments
Lack of medical support...I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...Reactions0reactionsComments5 repliesAutoimmune Diseases
Hypertension ...Hello, has anyone ever experienced hypertension? If so; did your doctor prescribe medication for it? What was the medication and dosage? Did the medication help?...Reactions0reactionsComments1 replies
Are facial exercises good for ocular MG?...Between the start of double vision and being diagnosed with MG, my pcp sent me to physical therapy where I was give a set of facial exercises to do. After...Reactions0reactionsComments6 repliesOcular MGExerciseTips & Advice
Overcoming a Fear of Needles...Having a fear of needles, also known as trypanophobia, is very common. The number of needles you are exposed while trying to receive a diagnosis of myasthenia gravis (MG) or...Reactions0reactionsComments1 comments
Active 2 days agoWhat were your immediate changes after your MG diagnosis?...As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions0reactionsComments9 repliesNewly DiagnosedSymptomsCoping
