caret icon Back to all discussions

Is your job/ boss accommodating when your Myasthenia gravis symptoms impact your performance?

Is your job/ boss accommodating when your Myasthenia gravis symptoms start impacting your capability to perform?

Are they aware you have MG or just the symptoms you have? Or do you try to mask having MG ultimately?

What are your other thoughts on this subject?

  1. I was diagnosed in Dec 2012 and started working my first job 4 months later (March 2013). I still didn't know much about MG and how it would affect me. Especially in the workplace. My manager at the time was completely aware of my sickness. When I had my first crisis and had to undergo IVIG treatments I asked to not be hospitalized due to the fear of losing my job. (I was a highly independent 17-year-old. I had my own bills I paid for without the help of my parents and now medical expenses. My parents raised to me this way and I'm very thankful.) I had to do a 5-day IVIG treatment and still work. So, my doctors agreed to let me keep the IV in my arm and covered it while I worked. My manager however was pressing me to show her the IV in my arm to know that that was the truth on why I missed work that day.

    I remember another incident, same manager. I had a bad crisis and had to be hospitalized for a week and when I came back to work my manager pulled me to the side and said, "I'm not sure if I can keep you anymore. It's not fair to other to have to pick up the slack for you. It's not our fault you have an illness." I was in disbelief that she said that to me and also panic arouse in me because I was wondering how I would pay for my medical expenses and have a normal life in the workplace. Needless to say...she ended up getting fired. Turns out the supervisor running the shift overheard her telling me this and wrote HR/ corporate on my behalf. Stating that the manager was showing me discrimination for having a disability and being the only African American at that location. - Jazmin (Mg team member)

    Please read our rules before posting.