Mestinon stop working ...I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...Reactions0reactionsComments1 replies
Muscle pain...I was just diagnosed with MG in February and my initial symptoms were difficulty chewing and some fatigue. I have managed fairly well on a dose of 10mg prednisone a...Reactions0reactionsComments4 replies
Leg weakness...I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have...Reactions0reactionsComments8 replies
Those Commercials!...With a condition like myasthenia gravis (MG), it’s easy to become glued to a recliner and watch way too much television. But it doesn’t even require a condition to develop... By Juliana Texley4 min readBookmark for laterReactions0reactionsComments0 comments
MG & Vision...I am 68 years old and I was diagnosed with MG last March when I woke up one day and I had double vision and I couldn’t open my left...Reactions0reactionsComments3 repliesCoping
Every Season with Myasthenia Gravis...Where I live there are 4 very distinct seasons! I truly do like all 4 seasons. Each has their own uniqueness about them. But for me, each one also creates... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
Lack of medical support...I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...Reactions0reactionsComments5 repliesAutoimmune Diseases
Hypertension ...Hello, has anyone ever experienced hypertension? If so; did your doctor prescribe medication for it? What was the medication and dosage? Did the medication help?...Reactions0reactionsComments1 replies
Are facial exercises good for ocular MG?...Between the start of double vision and being diagnosed with MG, my pcp sent me to physical therapy where I was give a set of facial exercises to do. After...Reactions0reactionsComments6 repliesOcular MGExerciseTips & Advice
Overcoming a Fear of Needles...Having a fear of needles, also known as trypanophobia, is very common. The number of needles you are exposed while trying to receive a diagnosis of myasthenia gravis (MG) or... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments1 comments
What were your immediate changes after your MG diagnosis?...As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions0reactionsComments9 repliesNewly DiagnosedSymptomsCoping
Hypertension Medication ...If any take medication for hypertension what is the most effective with less severe side effects with Myasthenia Gravis....Reactions0reactionsComments0 replies
Hypertension Medication ...Has anyone been diagnosed with hypertension. If so, what medication do you take, due to having Generalized Myasthenia Gravis. How is the medication. What side effects did you experience. I’m...Reactions0reactionsComments6 replies
Ocular MG...Hello everyone! I was diagnosed with Ocular MG about two years ago and I hadn't had an episode until a month ago. This is just my second one and it...Reactions0reactionsComments1 repliesSleepSide EffectsOcular MG
What to Eat and Avoid with MG Dysphagia...While I was in the hospital being tested for myasthenia gravis (MG), I developed a symptom no one wants - the inability to swallow, or dysphagia. It came out of... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments5 comments
The Fun Thing About Life: How I Find Humor in MG...There is nothing fun about having myasthenia gravis (MG). It has a lot of ups and downs and twists and turns. You never know from one second to the next what... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments12 comments
What is the “I choke on everything diet?”...I read about a member being on this diet. My jaw gets tired easily when eating and it isn’t just when I chew steak. I’m interested in eating foods on...Reactions0reactionsComments5 repliesCoping
Is It the Heat or the Humidity?...Don't get me wrong, I know the heat bothers me with myasthenia gravis (MG). But my husband and I have been paying very close attention to the humidity and pressure... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
What painkillers can I take...I suffer with two bad knees. One I had replaced quite some years ago and the other needs replacing but I am reluctant due to the risk of infection. I...Reactions0reactionsComments2 repliesCoping
Preparing for and Managing MG Muscle Weakness...A myasthenia gravis (MG) trigger is anything that makes MG symptoms worse. Everyone's triggers can be different, but understanding what worsens your MG can help you manage your condition. We... By Myasthenia-Gravis.com Team3 min readBookmark for laterReactions0reactionsComments6 comments
