What Percentage of Your Day Is Impacted by MG?
What percentage of your average day is impacted by MG?
This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when brain fog is popping up, and when mental health and thoughts are dedicated or related to/triggered by MG.
I have had 10 back operations and 6 neck operations long before MG. I am in constant pain, have been for 35 years. Sincr MG it is nearly impossible te get any pain relief. I only have 30% lung function and now my lung muscles are constantly inflamed. Mycocept does not control the inflammation. My vision is really really bad. The right side of my face droops and when I speak fir a few minutes my throat starts contracting and my mouth pulls downwards in a horrible grimace. This makes it nearly impossible to speak or swallow. I also get severe tremors in my arms, legs, neck, and abdominal muscles. My husband and I live alone so we manage to hide it from most people, because we are always laughing and genuinely positive people. When I am with family or friends I simply retire to a room until we can leave. To me this disease is truly inhibiting any kind of active lifestyle.
Hi Jodi!
I can't tell if 90% of my day is negatively impacted by MG (2022) or the breast cancer w metastatic bone disease (2023)🤔
Either way, I'm living a new normal🤷♀️I am sending my deepest compassion and good vibes your way!! I think you may resonate with the following articles: https://myasthenia-gravis.com/living/rediscovering-normal, https://myasthenia-gravis.com/living/new-abilities, https://myasthenia-gravis.com/living/managing-multiple-conditions
-Jodi, Team Member
