Symptoms of MG...I was diagnosed after 3 months of seeing Drs any so many tests...I have had MG for 4 months now and i am taking Pyridostigmine and prednisone...I have had all...Reactions0reactionsComments5 repliesSymptoms
Positive Test Results Only Once...I started having MG symptoms in 2021. However, all my test results were negative for an entire year. Then, in 2022, I tested strongly positive for MuSK. Now, in 2023...Reactions0reactionsComments0 replies
Decision Fatigue: What It Is and a Few Ways to Get Past It...Editor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. I almost hesitate to bring up the f-word again. No, not that one...Reactions0reactionsComments0 comments
MG Symptoms: I Shouldn't Need to Explain Myself...I have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just like everyone with MG experiences symptoms differently, everyone...Reactions0reactionsComments3 comments
does anyone have fingers that suddenly curl up and hurts when you put them str8?...About 2 weeks ago a finger on my left had would spontaneously curl straightening it out was painful Now it feels something is wrong with the whole hand especially the...Reactions0reactionsComments11 repliesGeneralized MG
Active 3 days agoDoes anyone else have bowel/bladder issues with MG?...Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...Reactions0reactionsComments22 repliesGeneralized MGMuscle WeaknessSymptoms
Fresnel Prisms - suppliers? (United Kingdom)...In the last week I've had a recurrence of diplopia after over four years of no symptoms. I went to my local eye hospital, where on Friday I was assessed...Reactions0reactionsComments0 repliesAssistive DevicesOcular MG
Medication ...Wondering what form of medication people are on my husband has MG since.he was 23 after thymenocotmy was in remmision till 10 yrs ago hes now 62 back on Pyridostigmine...Reactions0reactionsComments7 repliesTreatment
Beginning to exercise after thymectomy...Beginning to exercise after having a thymectomy can be scary! Exercising with MG already is daunting for many as it means accommodating and figuring out how to adapt, https://myasthenia-gravis.com/living/exercising-again. But...Reactions0reactionsComments0 repliesThymectomyExerciseMuscle Weakness
The Added Stress of Finding a New Neurologist for MG...Since my husband’s recent fractured ankle and my pacemaker implantation and cardioversion, we have been staying at our youngest son’s home. He has been helping both of us with our...Reactions0reactionsComments0 comments
Were you in remission to then have your MG symptoms return?...Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned? How is it impacting your life if you...Reactions0reactionsComments4 repliesRemissionSymptomsTriggers
Myasthenia Gravis Drugs and Low Testosterone...Issues with sexual function are common for men with myasthenia gravis (MG). A common problem is low testosterone levels. MG does not directly cause low testosterone or other related problems...Reactions0reactionsComments0 comments
muscle cramping...with my MG the leg cramps come on early morning and also foot cramps without warning. They seem to be getting more severe lately. my hands have cramps in the...Reactions0reactionsComments8 repliesCoping
Mysthenia with IVIGG...Has anyone receiving ivigg treatments noticed that several weeks later, severe shortness of breath? I have had GMG since 2014. Had malignant thymus gland removed in 2016. Take mestinon and...Reactions0reactionsComments4 replies
I Just Want To Sleep: Insomnia and MG...One of the first symptoms of my myasthenia gravis (MG) was insomnia. The first night it happened, I was not too concerned because anyone can have an occasional night of...Reactions0reactionsComments12 comments
problem with difficulty urinating...good evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...Reactions0reactionsComments5 repliesAutoimmune DiseasesDiagnosisSymptoms
Is MG Causing Fatigue, Pain, and Knots in My Muscles?...After a myasthenia gravis (MG) diagnosis, if not before, many of us experience pain in one way or another. Some experience joint pain, some headaches, and others experience muscle cramps...Reactions0reactionsComments1 comments
Not All MG Support Groups Are Helpful...I want to say how thankful I am for Myasthenia-Gravis.com and the way this community is run. I will admit that at times I have some controversial viewpoints. Sometimes I...Reactions0reactionsComments1 comments
Active yesterdayMuscle cramping...I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...Reactions0reactionsComments82 repliesDiagnosisGeneralized MGSymptoms
Still no remission 10 months after thymectomy. ...I was told that remission wasn't guaranteed after thymectomy. But I'm still disappointed. I'm restarting IVIG and still battling Mestinon side effects. Does anyone have any encouraging words?...Reactions0reactionsComments2 repliesCoping
