How to Handle Insurance Denials and Limits...Finding out that your health insurance company has denied a claim can be frustrating and complicated. Understanding what an insurance denial is and what you can do about it may... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Sponsored: Thanks for signing up!...By Alexion, AstraZeneca Rare Disease For those who included their address and phone number – your free “More than MG” PopSocket will be in the mail shortly. Based on your...
Life With MG After a Pacemaker and Cardioversion...To say my life is different after having a pacemaker is an understatement! Many symptoms of heart failure can mimic myasthenia gravis (MG) symptoms, hypothyroidism, and asthma - so I’m... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments8 comments
Wasn’t in Remission...I’m submitting this for my spouse, Karen, who was diagnosed with MG three years ago. She had a thymectomy and was later on IVIG infusions and later Cellcept was added...Reactions0reactionsComments2 replies
Sleep or the lack of sleep...I’d been having a serious problem sleeping. The Dr’s wouldn’t give me anything for it because I’m over the age of 65 and they said it may cause me to...Reactions0reactionsComments2 replies
Is There Hope with Myasthenia Gravis?...For the years leading up to this myasthenia gravis (MG) flare, I worked 40 to 60 hours or more a week. I was going full steam every day. I'm not... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments1 comments
The Anxiety That Comes with an MG Diagnosis...Anxiety on its own can be debilitating. It’s a completely separate and individual diagnosis that many people struggle with. What I didn’t expect when I was initially diagnosed with myasthenia... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments0 comments
Sponsored: You Are More Than Your gMG Diagnosis...By Alexion, AstraZeneca Rare Disease Living with generalized myasthenia gravis can be full of challenges and can have a real impact on your day-to-day activities. At times, it can leave...
What Activities Increase Your MG Muscle Weakness?...Myasthenia gravis (MG) is often referred to as the "snowflake disease" because symptoms and severity can vary from person to person. With MG, everyone's condition can look a little different... By Myasthenia-Gravis.com Team2 min readBookmark for laterReactions0reactionsComments0 comments
Birth victim of M.G....Dr. Melvin Greer Shands teaching hospital told parents at age 2 that I like mhave MG first and time Mom saw me play with a baby toy. I am 63...Reactions0reactionsComments1 repliesTypes
Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!...I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...Reactions0reactionsComments3 repliesAutoimmune DiseasesDepressionSeronegative
Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?...I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar, but exaggerated. I was told “this is usually...Reactions0reactionsComments1 replies
Excess Mucus...Does anyone have any suggestions for removing excess secretions/mucus from your throat? My Father has MG and struggles with this daily. Some days he's unable to eat because the mucus...Reactions0reactionsComments3 repliesDiet & Nutrition
When Another Health Crisis Hits with MG...A few months ago, I had a medical emergency. My heart was failing and I was unable to function. Looking back at this particular event, my symptoms may have started... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments0 comments
Transsternal Thymectomy Recovery: Tips, Advice, and What to Expect...A little over a year ago, I had a transsternal thymectomy. In this article I will share tips and advice I learned while recovering from surgery. If all goes smoothly... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments19 comments
Is anyone else on azathioprine?...I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions0reactionsComments4 repliesMuscle WeaknessSymptomsTreatment
COVID and gMG...I started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms to the COVID shots?...Reactions0reactionsComments1 repliesTriggers
My MG Wishlist...If you have myasthenia gravis (MG), you know how much stuff you miss out on in life. Although I have heard of a few people who have gone on to... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments1 comments
Has anyone had a transternal thymectomy? ...I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...Reactions0reactionsComments4 repliesThymectomy
A Fatigue Scale...When I began having MG symptoms it occurred to me that it would be helpful in order to track the progress of the disease to have a fatigue scale comparable...Reactions0reactionsComments1 repliesTips & AdviceCoping
