Still no remission 10 months after thymectomy.

Thank you very much. Your reply was encouraging.

Hello I'm sorry that you are still experiencing symptoms after your thymectomy. I had my thymectomy in 2021 and right now I'm still on reduced medication. Before I was taking 50mg of prednisone, 120mg of mestinon 3x a day and IVIG every 4 weeks. Now I'm on 10mg of prednisone, 60mg of mestinon 3x a day and I received my first dose of IVIG this year last week. Its been 2 years since I had my surgery and sometimes the waiting game is very hard but I do see the positivity from the surgery. I was constantly going to the hospital due to a flair or MG crisis. Last week was my first flair up in over a year and to me that's a win. Even if you might not be in full remission it's good to celebrate your small victories and be encouraged/hopeful that you are in the process of reaching full remission. Best wishes to you. - Jazmin (MG team member)