Didn't Know I Really Had MG Until My Crisis!
I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave me the meds and instructions to cope.
In November 0f 2022, I was put on an IVIG monthly regimen and I seemed to be back to normal. But in mid-May of 2022 something happened. I'm not sure what the trigger was, but symptoms started to appear. A little bit of slurred speech, some minor difficulty swallowing, and water coming out of my nose.
I called my neurologist and he upped my prednisone and we watched for changes. On May 27, 2022, my wife asked me if I wanted to go to the hospital... I acquiesced and we drove to the ER.
The next thing I know, I wake up in the ICU looking like a Borg character from Star Trek! 3 days had passed!
After a full 10 days in the hospital, I was released and have been recovering since. It is now July 16, 2022. Now I know what MG is capable of, so don't ignore any signs or symptoms... go directly to the ER. I also wear a medical alert neckless now.
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