Dramatic changes in MG symptoms for the better
I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then had pain ams muscle weakness in neck arms and legs ..it was like carrying lead weights around i struggled to get up from a chair or from my bed
. I have ostiparosis in both knees and on 12th May I had a cortisone injection into one knee ..it was like a miracle..all my muscle weakness and pain has totally gone away ..I'm due a jab in thr other knee on 9th June . My tests for MG all came back negative ..so have I really got it , is this a temporary improvement .. I am waiting for an appointment with my nuro surgeon but the hospital is behind with their appointments so still waiting ..but since I last saw him my symptoms have dramatically changed twice..a yway I'm making the most of feeling so well and am hoping it lasts .
Propranolol is known to potentially worsen MG symptoms. Did you experience this when you were taking it? - Jodi, Team Member
Hi
, It sounds like the cortisone injection was a big relief. I hope it goes well on June 9th - please keep us posted! We encourage you to share all these notes and changes in symptoms when you have your appointment. It can be really frustrating when symptoms change and are unpredictable, but we have heard from others here that keeping a log of those symptoms and discussing it during the appointment can be really helpful. I wanted to share an article about seronegative MG: https://myasthenia-gravis.com/seronegative This is when someone has MG but their blood work is negative. Hopefully you find the answers you deserve when you are able to get in for your appointment. We will be thinking of you! Best, Lauren (Myasthenia-Gravis.com Team)
