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Immunotherapy (stem cell)

Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed after 13+ years of not knowing the cause of flares and declining health. I would appreciate learning from others with experence.

  1. Yes, Kaitlyn I am searching for references of Doctors to build a care team near me (southeast pennsylvania)

    1. Hi , If you have not already tried this resources, the MGFA has a search tool to help find an MG specialist. The link to that tool and a few other tips for finding a specialist can be found here: https://myasthenia-gravis.com/living/finding-doctor-specialists Best, Lauren (Myasthenia-Gravis.com Team)

  2. Hi there, I haven't seen this topic brought up within the community yet. I hope someone will share if they do have personal experience with this type of treatment. Is there any other information I can help source for you? I saw you mentioned you are newly diagnosed. So glad you have found our MG community. Best wishes, Kaitlyn (Team Member)

    1. I have been on 2 series of Privigen IVIG Immune globulin and now I will be on a schedule every 8 weeks. I was unable to eat solids for 7 months and lost 90 pounds. Then my gate was so bad I started falling did they offer this treatment, Within 2 weeks after the first Rx was able to eat solids and had no more falls.

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