Trying to Work After Almost Two Years...As we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several...Reactions0reactionsComments2 comments
Breathing problems...I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...Reactions0reactionsComments1 repliesDiagnosisAssistive DevicesGeneralized MG
Speech...Hello, I care for my mother, who has been diagnosed w/ Myasthenia Gravis, and she has issues w/ trying to think of words that she is trying to say. Can...Reactions0reactionsComments3 replies
MG and Homeopathy...Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions0reactionsComments3 repliesTreatment
You Work at a Restaurant?..."You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical...Reactions0reactionsComments0 comments
How I Explain MG to Others...I can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow...Reactions0reactionsComments4 comments
Managing Safety at Home When Diagnosed with MG...A diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I...Reactions0reactionsComments2 comments
blepharoptosis surgery for Ptosis ...Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...Reactions0reactionsComments2 repliesAutoimmune Diseases
Minimalizing Has Given Me Energy to Do More...I have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school...Reactions0reactionsComments2 comments
Switching Doctors...In the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner...Reactions0reactionsComments8 comments
Mary Lou...While driving, I experienced severe double vision. Put a tissue behind one lens of my eyeglasses so I could continue driving that day. Went to my optometrist who referred me...Reactions0reactionsComments3 replies
I Hate It, I Hate It, I Hate It!...I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty...Reactions0reactionsComments9 comments
Highest Steroid Dose You’ve Been Prescribed...What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions0reactionsComments19 repliesTreatmentCrisisSymptoms
gMG and Me...The exhaustion started at age 30. I was waitressing and walking/hiking four days a week. One day bang I could not get up off the couch. It lasted three months...Reactions0reactionsComments3 comments
Independent Living Aids for Cooking and Eating...Many of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook...Reactions0reactionsComments1 comments
Recovering from Crisis and......Hi, I’m a 54-year-old Canadian woman who was scheduled for bariatric surgery at the beginning of September…. I was discharged after being in the neuro unit for a week because...Reactions0reactionsComments13 comments
My Dream of Becoming A Doctor...I was diagnosed 6 years after the onset of my symptoms. Two months before of my medical entrance test, my condition suddenly got so bad that I ran out of...Reactions0reactionsComments1 comments
Planning for the Party...The days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...Reactions0reactionsComments2 comments
Pregnant with MG...Hello everyone, I've been away for quite some time now and that is due to the fact that I found out me and my hubby are expecting our 3rd child...Reactions0reactionsComments4 repliesGeneralized MGTips & Advice
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