Home Cleaning Aids...Cleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments1 comments
toll prednisone took on my body...I have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...Reactions0reactionsComments2 repliesGeneralized MG
Making Self-Care a Priority...I’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments11 comments
Just when you think you are safe......It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one day last week MG came out of the... By Juliana Texley2 min readBookmark for laterReactions0reactionsComments0 comments
Advice about antibiotics ...I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...Reactions0reactionsComments2 repliesNewly Diagnosed
Choosing a Wheelchair, Power Chair, or Mobility Scooter...You’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers... By Janice Koehn5 min readBookmark for laterReactions0reactionsComments0 comments
Newly diagnosed ...Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...Reactions0reactionsComments6 replies
Firing My Neurologist...I wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Obtaining a Mobility Aid and What One to Choose...A mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility... By Janice Koehn5 min readBookmark for laterReactions0reactionsComments0 comments
The Process of Getting a Handicap Placard...If you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments8 comments
Deborah Vick...Deborah Vick is driven by her passion to create inclusive communities for people of ALL abilities, with special emphasis on equitable medical care, access to education, and life’s basic necessities... By Editorial Team 2 min readBookmark for later
Role Reversal...After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares... By Juliana Texley4 min readBookmark for laterReactions0reactionsComments2 comments
What Is Congenital Myasthenic Syndrome?...Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
IVIG Side Effects...IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions0reactionsComments24 repliesSide EffectsTreatmentMuscle Weakness
Sfemg ...Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...Reactions0reactionsComments0 replies
MG During My Pregnancy...I get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments2 comments
Awaiting possible diagnosis...Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Toll Prednisone Took on Your Body...What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions0reactionsComments85 repliesSide EffectsTreatmentNewly Diagnosed
MG and going to the dentist...I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...Reactions0reactionsComments5 repliesCoping
Frustration...So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...Reactions0reactionsComments1 replies
