Here We Go Again...I was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no...reactions11comments
Do You Have a Caregiver?...Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...reactions23repliesCaregivingNewly DiagnosedHealthcare Team
FeaturedActive 2 days agoHow do you balance exercise and MG?...We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...reactions57repliesExerciseTriggersTips & Advice
Rheumatologist...In my search for a new Neurologist I have read that a Rheumatologist may be a better choice, if available, to help with MG. Any comments, or clarity, as to...reactions8replies
Huperzine-A...I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with MG as well ... Does anyone have any...reactionsreplies
Potassium...My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone removal. Before they would blast my kidney it...reactions8replies
How Long Have / Did You Experience Discomfort After Thymectomy?...It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...reactions2repliesThymectomyTreatmentNewly Diagnosed
Juggling Myasthenia Gravis and Other Health Conditions...Traveling the world, mountain and rock climbing, skydiving, deep sea fishing, going to an arts performance, or simply going to a sporting event or tourist trap ... these are all...reactions1comment
Leg and Foot Cramping and Pain...Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...reactions638repliesSleepSide EffectsSymptoms
What 3 Factors Worsen Your MG?...What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection, and stress. When I get very tired, I...reactions10comments
The Eyes Have It...Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...reactions3comments
Thymectomy Surgery 70 Year Old Woman...I’m a woman who was diagnosed with MG in August 2020 at the age of 70. My symptoms then included double vision, droopy eyelids, impaired speech, difficulty swallowing, weak neck...reactions3replies
Working Full-Time...I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day I get days when I think I've got...reactions8replies
Active yesterdayMuscle Spasms...I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable. I notice I have very bad muscle spasms and stay tired...reactions2replies
Mg and asthma...I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...reactions10repliesGeneralized MGHealthcare Team
Seronegative diagnosis and two rare genetic diseases...I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...reactions1replyAutoimmune DiseasesCostDiagnosis
Treatment with ULTOMIRIS...Has anyone received ULLTOMIRIS infusions and what were your results?...reactions5replies
Don't Let Urinary Incontinence Put Your Life on Hold...There is limited research on urinary incontinence as a symptom of myasthenia gravis (MG). In my experience, not all doctors will associate bladder problems with MG. Still, researchers and healthcare...reactions17comments
mg and eye surgery...I am scheduled for a vitrectomy eye surgery for a macular hole ,I am very nervous and am wondering if anyone else has ever had this done that I can...reactions3repliesVisionSurgery
Finding a Doctor Who Understands MG...There is a need for better disease management for myasthenia gravis (MG). According to a 2022 report, people with MG had the same number of symptoms after treatment as they...reactions26comments
