Question...I was diagnosed with General MG approximately 10 years ago. After working with a prestigious doctor from Johns Hopkins Hospital, with medication...reactions1reply
Ocular MG...I suffered from MG at the age of 7. My eyelids dropping or ptosis. I have consulted many doctors but I was...reactions1reply
Quite early...I was almost 82 when I was diagnosed last fall by a brilliant neurologist who wasn’t accepting that my double vision was...reactions1reply
MG...I was diagnosed 16 months ago. I am 78 now. Is this a progressive disease? My mom had Parkinson's disease. My brother...reactions2replies
Carer allowance?...My husband has MG and has good and bad days, sometimes I have to help him more than other days. When he’s...reactions1reply
IVIG treatment...After 5 IVIG sessions I developed a violent allergic skin reaction to the 6th one and was forced to give them up...reactionsreplies
My Experience with Vyvgart...I am a male 66 years old and I am currently receiving Vyvgart on a 4 weeks on 4 weeks off cycle...reactions2replies
Vyvgart...I have been on Vyvgart infusions since 2024. Prior to that I had too many flare ups and 2 major crisis of...reactionsreplies
HR is Asking for Doctor's Letter?...I was diagnosed in April of this year. It has been a relief to finally have a name to go along with...reactionscomments
MG and Swimming...It can be very dangerous to swim with MG. If you're legs float up you can't get them back down to stand...reactionscomments
Chronic Fatigue and Breathing Trouble...So over the past couple of years I've been diagnosed first with chronic fatigue, then fibromyalgia. Then last September my GP said...reactionscomments
Can Eye Symptoms Be the First Sign of Myasthenia Gravis?...Myasthenia Gravis (MG) is often known as a condition that affects muscles in the body, but for many people, the first noticeable...reactionsrepliesSymptoms
Is there anyone out there that has had a thymectomy after the age of 50 with success? Please tell me you’re good......I am 51, I have been referred to a surgeon for a thymectomy. My MG specialist says nooooo due to my age...reactions1replyThymectomyTreatmentSurgery
Is this normal with OMG...I started having double vision episodes a year and a half ago. Neuro checked me for MG. Bloodwork was normal ace receptors...reactions1reply
Help with prednisone...Neurologist wrote Rx for prednisone if I have an upcoming busy engagement, no dosage, just take as needed. What do you all...reactions1reply
Seeking an "accomodation" from my workplace HR department...When I wake up in the morning, sometimes I feel weak and a little twitchy in the muscles. And if my eye...reactions2repliesDrivingGeneralized MGSymptoms
How old I was when I was diagnosed ...I was 36 years old and it was 12/16/2006, my oldest son’s 16th birthday....reactions1replyDiagnosisAutoimmune Diseases
Reclaiming Life With Myasthenia Gravis: Services That Have Helped Me Cope...Living with Myasthenia Gravis (MG) is a bumpy journey that has tested my physical and emotional resilience. Gradually, I have found valuable...reactionscomments
When meds don't work ...I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...reactions6replies
