Refractory AChR+ gMG Flares: How Long Can They Last?...Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away as of May 19. Haven't felt this bad...reactionsrepliesGeneralized MGMuscle WeaknessRefractory MG
new medicine...Hi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are taking it what, if anything, happened to your...reactionsrepliesSide EffectsTreatment
Can myasthenia gravis affect the eyes, and is it linked to conditions like glaucoma, cataracts, or dry eye?...Yes, myasthenia gravis often begins with eye-related symptoms such as drooping eyelids (ptosis) and double vision. Because it affects muscle control, it can lead to dry eyes due to reduced...reactionsrepliesAwarenessTips & Advice
Drug pyridostigmine 180MG ...Hard to fine pyridostigmine 180mg at pharmacies. When will it be available?...reactions3replies
Eye Health: 3 Questions...Are vision changes caused by: MG, Steroid Use or Age Related ? or a combination of all three ? Has anyone ever met any Eye Doctor who REALLY knows about...reactions4repliesOcular MG
Acute MG Attacks...I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my arms, and I am dropping everything. Next, there...reactionsreplies
MG with Shingles...Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i was diagnosed with Shingles off the lower left...reactionsreplies
ultimaris - Anyone taking it ? How do you feel after ...Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work the next day or will this hit me...reactionsreplies
Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle changes helped you the most?...Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in speaking, chewing, or swallowing. The symptoms usually worsen...reactionsrepliesAwareness
Neurologist concerns? I have them....I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision perplexed the best of them til my ophthalmologist...reactions8repliesGeneralized MGMuscle WeaknessSymptoms
Actively Recruiting Myasthenia Gravis Clinical Trials...Key Takeaways: Several clinical trials are currently enrolling participants with generalized myasthenia gravis (gMG) and ocular myasthenia gravis (OMG), exploring various mechanisms of action. These include studies evaluating new complement...reactionscomments
Differential Diagnosis of Myasthenia Gravis: Ruling Out Mimickers...Key Takeaways: While the hallmark symptoms of myasthenia gravis (MG) are fatigue and weakness, often affecting ocular, bulbar, facial, and limb muscles, a thorough differential diagnosis is crucial to ensure...reactionscomments
Myasthenia Gravis: The Road to Individualized Treatment...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by muscle weakness and fatigue that worsens after activity and improves with rest. The underlying pathology involves autoantibodies...reactionscomments
Vaccinations and Myasthenia Gravis: Current Recommendations...Key Takeaways: Vaccination is a critical aspect of healthcare for all individuals, and it holds particular importance for patients with myasthenia gravis (MG). Due to potential immunosuppression from its treatments...reactionscomments
I feel horrible - maybe detoxing system ?...Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been on steroids for 6 months, not much progress...reactions1reply
Change in Symptoms...Hello. I have generalized MG for the past 1 1/2 years. For the past 2 months, I get overheated VERY easily from just getting dressed in the morning to walking...reactions6repliesCoping
Unusual symptom?...I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...reactions3repliesGeneralized MG
red blotchy skin color after 5 days of ivig infusion...Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any comments?...reactions5replies
IVIG Infusion for 5 days straight...That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to stay hydrated when MG seems to cause frequent...reactionsreplies
