Duration of Ocular MG Flare Ups?...I've got ocular MG (confirmed by serology in Jan 2023) and have had several flare ups over the past year and a half during which my symptoms (particularly diplopia) are... By 09telecaster1 min readBookmark for laterReactions0reactionsComments11 comments
Side effects of mestinon ...I’d have a mild case of mestinon for mg symptoms for about 10 years It’s not working as well as I would like.I take 1 or 2 tablets a day...Reactions0reactionsComments2 replies
5 Activities to Try When Recovering from Thymectomy Surgery...After my thymectomy surgery, getting plenty of rest and sleep was a soothing and natural way to manage my discomfort. Pain is common after surgery - I had pain in... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments0 comments
Asking my doctor to support testing me for MG?...My father had myasthenia gravis MG in his late 70's. I am noticing some of the MG symptoms he had in myself. Saliva leaking out the corners of my mouth...Reactions0reactionsComments7 repliesDiagnosisSymptoms
Can PCP Rx Mestinon? Suspected MG...Hello! I am new here and I’m so alone with this so forgive me if this is long. I was wondering if anyone has had the experience of a primary...Reactions0reactionsComments4 replies
MG without Excerbations...I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...Reactions0reactionsComments0 repliesMuscle WeaknessNewly Diagnosed
My Story...Hi, everyone! I’m 70 years young, a Mom of 3 sons and Grandma of 5, ranging in age from 2-year-old twins to my oldest granddaughter, a senior in high school... By CommunityMemberb274624 min readBookmark for laterReactions0reactionsComments2 comments
MG Second Time Around...In the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep my blood sugar levels down as well. I... By CommunityMembere539f51 min readBookmark for laterReactions0reactionsComments2 comments
Life After MG?...It has been about 4 years since I was initially diagnosed with myasthenia gravis (MG). And now, 3 years after my thymectomy surgery. All is well, and my neurologist thinks... By Shelbie Brown2 min readBookmark for laterReactions0reactionsComments6 comments
Strong Probability I have Myasthenia Gravis...Hello, there is a strong possibility that I have myasthenia gravis. Symptoms started a couple of years ago with strange facial looks and a sarcastic tone at times when I... By LuckyLiz6 min readBookmark for laterReactions0reactionsComments33 comments
Donna: My Struggle...I was diagnosed November 2023 but didn’t see a neurologist until April. She put me on prednisone, but it hasn’t helped. My eyes are so painful. My left eyelid drops... By CommunityMemberc32a6c1 min readBookmark for laterReactions0reactionsComments2 comments
Is MG Inherited?...My father died in 1968 at age 72 from MG that was discovered by autopsy. He was unable to swallow any solid food and had great difficulty with liquids. He... By CommunityMember87907091 min readBookmark for laterReactions0reactionsComments8 comments
Myasthenia crisis???...After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my symptoms: off-balance, tired, pain through most of my...Reactions0reactionsComments2 repliesSymptoms
Coping with Excessive Heat and Humidity...I’ve had myasthenia gravis (MG) for several years now and I know people with MG can have issues with hot or cold temperatures. Personally, I've had some issues with humidity... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
First Crisis very Frightening...I was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern. I was anxious about not being able to... By Christina2 min readBookmark for laterReactions0reactionsComments3 comments
Confused...In 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I had fibromyalgia and I was prescribed medication. Then... By CommunityMembere22fd11 min readBookmark for laterReactions0reactionsComments4 comments
17 Years and Counting of Ocular MG Symptoms...Seventeen years ago just after I turned 40, I started experiencing symptoms of ocular MG that has never progressed to general. I'm seronegative, which led to a year between onset... By kjack662 min readBookmark for laterReactions0reactionsComments0 comments
How do you manage MG speech problems?...Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...Reactions0reactionsComments19 repliesSymptomsTips & AdviceCoping
Managing Stress & Anxiety...Fully eliminating life's stressors is nearly impossible, but trying to keep it at bay is helpful when managing MG symptoms. How do you practice self-care, mindfulness, and keeping stress/anxiety at...Reactions0reactionsComments14 repliesTips & AdviceCoping
Potassium...I read where magnesium is not good to take with MG, what about potassium. I do eat bananas....Reactions0reactionsComments0 replies
