Test results...I’ve read that even low-level ACHR test results which labs record as a negative result should equate to an MG diagnosis (I assume especially if there are symptoms), since normal...Reactions0reactionsComments1 replies
Exotropia with ocular MG...I've been diagnosed with ocular MG. Symptoms include double vision but also intermittent exotropia in both eyes. Does anyone else suffer from exotropia? I was previously scheduled to have eye...Reactions0reactionsComments0 replies
The Challenge of Understanding What Triggers MG...Since my myasthenia gravis (MG) first manifested 4 years ago, I’ve tried to wrap my head around how it started, and since then, what repeatedly causes my flare-ups or exacerbations...Reactions0reactionsComments22 comments
necessary medication ...I’m taking 1000 mg of cellcept a day down from 2000 mg. My symptoms are gone. I was on 5 mg of prednisone for several months but went down to...Reactions0reactionsComments1 repliesTreatment
I can’t talk for myself but I will tell you a true fact ...As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...Reactions0reactionsComments0 repliesTips & AdviceCopingAutoimmune Diseases
Country of Origin ...I’m from Australia & an MGer, having suffered from this dreaded disease for 13yrs that I know of because I had different reactions to MG from being told I was...Reactions0reactionsComments1 replies
Have you tried Oxymetazoline hydrochloride eye drops for your ptosis (eyelid droop)?...Has your doctor had you try Oxymetazoline hydrochloride eye drops for your ptosis (eyelid droop)? Did it help?...Reactions0reactionsComments0 repliesDrivingOcular MGTreatment
Plasmapheresis and IVIG...I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...Reactions0reactionsComments10 repliesTreatmentCoping
Switching MG Treatment Brands...Have you had to switch MG treatment brands before, possibly due to insurance or shortages? Did this result in any adverse reactions or problems?...Reactions0reactionsComments0 repliesTreatmentTips & AdviceTriggers
Insurance Companies and MG...Are there specific insurance companies you have had good or bad experiences with regarding getting MG treatments?...Reactions0reactionsComments0 repliesInsurance & DisabilityTreatmentCost
Has anyone been affected by the recent two hurricanes in Florida?...Has anyone been affected by the recent two hurricanes in Florida? Has it resulted in any MG-related concerns?...Reactions0reactionsComments0 repliesTreatmentSymptomsWeather
Active 6 days agoIntravenous immunoglobulin treatment (IVIG) ...Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). Have you ever gotten IVIG before? If so...Reactions0reactionsComments22 repliesTips & AdviceTreatment
What Are the Risks of IVIG?...Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). However, this treatment is associated with certain risks...Reactions0reactionsComments13 comments
Systems after being diagnosed with MG 20 years later. ...I was diagnosed with MG in 2004 and went in remission in 2009. After taking care of both my parents and helping raise four grandchildren and losing my father in...Reactions0reactionsComments1 repliesTips & AdviceAutoimmune Diseases
coping during a flair...There are times when I just don't feel comfortable seeing people. How can I relate my problem without offending?...Reactions0reactionsComments1 repliesCoping
use vitiam d ...i stoped taking the meds for my mg and started taking vitiam d 10,000 iu a day with vitiam k2 -mk7 now for 2 months and i have no more...Reactions0reactionsComments1 replies
MG and weight loss injections...Hi All Has anyone any knowledge of having weight loss injections when you have MG? Dr is asking me to consider as I am very overweight and am diabetic. I’m...Reactions0reactionsComments0 repliesResearch & Clinical TrialsTips & Advice
Active 3 days agoDiaphoresis, anyone?...Two medications I take - Pyridostigmine and Levothyroxine - are known to have excessive sweating as side effects. This has been getting out of hand - sometimes when it's hot...Reactions0reactionsComments1 replies
Vyvgart...Has anyone had any experience with the infusion vyvgart? It has been recommended to me...Reactions0reactionsComments0 replies
Ocular MG and yoga...I was detected ocular MG .auto closing of left eye,could not drive . Started with.Distinon. 7hrs effective . Dr suggested.steroid .Googled... and scared of side effects. Started doing Sarvangasan for...Reactions0reactionsComments3 replies
