Frustrated with awaiting a diagnosis ...I have been struggling with intermittent double vision for over a year. I've had several MRIs. First scan showed a white matter lesion, but Neurologist said this is inconsequential and...reactions7repliesDepression
Help with Cramping ...I have had cramping. For some reason Mango helps it. If I drink pure Mango juice, I don't cramp. If I do cramp, I have Kirkman Epsom salt cream from...reactions1replyMuscle Weakness
Ocular MG ...I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes halfway inside my head. Hard to explain. It...reactions3replies
I have major symptoms, but was told it is not MG. ...I recently had an evaluation with a PT and after reviewing my extensive medical record asked if I had MG. I told her that I’ve been tested several times over...reactions3repliesCoping
runny nose...I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running and sneezing often. Drip drip drip my nose...reactions4replies
What are the early signs of glaucoma, and can a regular optician spot them?...Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...reactionsrepliesSide Effects
VYVGART?...I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x...reactions3replies
The bladder and myasthenia connection ...Can you please repost the talk about myasthenia and the bladder. It was deleted too quickly. Thank you...reactions1reply
"Wrong" Diagnosis for Years?...I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists, who thought I had something called PMR. Bloodwork...reactions1reply
I V ports...I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have had with ports?...reactionsreplies
CAR T Cell therapy or UCAR T cell therapy...My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...reactionsrepliesTreatmentRefractory MGHealthcare Team
Hear+Now: An AI-Powered Audio Digest - The Importance of Vaccinations for MG Patients...Vaccinations play a critical role in safeguarding the health of individuals with Myasthenia Gravis (MG). Due to their compromised immune systems, often exacerbated by immunosuppressive therapies, MG patients face heightened...reactionscomments
Cold water therapy ...I have recently started cold water therapy in our plunge pool.( It's winter here). I actually have a positive response after i get out of the pool. I feel rejuvinated...reactionsreplies
Do positive blood tests later show no sign of gMG?...My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after 3 positive blood tests that kept getting worse...reactions1replyGeneralized MG
Newly Diagnosed OMG...I initially just had Ptosis, e which began in January of this year. My 16 and a half year old heart dog had just passed away and I had been...reactionsrepliesOcular MG
Active yesterdaySevere Back Pain ...I am considering going to a physiatrist to get a steroid injection in my spine. Has anyone had any such injections and what was your experience if you don't mind...reactions1reply
Myasthenia-gravis ...I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...reactions2repliesAutoimmune DiseasesDriving
Micro cap mushrooms for better face control on MG...I have had MG for 18 months. I am a 70 year old male. On cellcept, Mestinon and recently stopped taking a 5mg steroid. Get IVIG treatment (4+ hours) monthly...reactionsreplies
Occular MG...My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...reactions6repliesOcular MGAutoimmune DiseasesNewly Diagnosed
