Considering Advanced Therapy: Evaluating the Next Step in Your MG Journey
When standard first-line therapies like Mestinon or steroids aren't providing enough symptom control, the conversation shifts toward advanced therapies, such as targeted biologics. Standing on the edge of this decision can bring a mix of hope and intense anxiety as you weigh escalating treatment strengths against unknown side effects.
What other MG patients say about weighing advanced options
On feeling overwhelmed by escalating options:
"My neurologist put me on medication to help control my ailments, but now is talking about expensive IV meds and possibly having surgery done. That is not a pleasant thought either. I am at a loss. I am not sure about anything any more, let alone what I should do."
On researching options and fearing side effects:
"We're now looking at generic Imuran or CellCept, both of which are frightening; and IVIG to cover the gap til the oral med takes effect. I love to research & am learning, yet I still have so many questions... [I] will see the doc in August for lab results & to decide on a treatment plan."
On hesitancy toward new treatments:
"Did the CellCept help him if I don’t get better? I’m thinking about the new infusion came out 2 years ago but afraid of something so new. I don’t trust these companies."
On cautiously tracking new approvals:
"I am tracking input from folks on the recent approvals of new monoclonal antibody treatments and will begin one of those if the results appear promising. I am avoiding all vaccines at the present time. The last thing I need is to stimulate my immune system while my condition is not stable."
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