Cellcept, prednisone, and new treatment ...So I'm currently taking the above meds along with mestinon as needed. Looking to maybe add on one of the newer meds...reactions2repliesAutoimmune Diseases
I need tips for managing the diarahra...I was diagnosed with MG a month ago and because of severe stomach cramps - symptoms of the pyridostigmine - I was...reactions1reply
Active 5 days agoReturn of diplopia ...When I was diagnosed 10 years ago, my initial symptom was first "scrambled" vision then double. It cleared very quickly (2-3 days)...reactions7repliesVision
Branded medication ...Hello, is there any documentation regarding the effects of different drug brands in myasthenia patients?...reactions5replies
Its Been A While...Silly question, for my MG treatment my doctor has me on a temporary high dose of Predisone in and effort to bring...reactions3repliesTreatment
Ear Pain...Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear...reactionsrepliesTriggersAutoimmune Diseases
Drinking alcohol...Experience in drinking alcohol on pyridiostigmine ER. Doctor said it was fine, however internet says do NOT. I had a glass of...reactionsrepliesSymptoms
transistion from oral tabs to extended release - ...just transitioned to ER tabs instead of oral but still 180mg a day. My lower lip is numb and difficulty ennunciating words...reactionsrepliesSpeech
What about portable oxygen if I have a breathing episode?...I was wondering if there is some kind of canned oxygen like athletes use that I can use when I travel, and...reactions1replyTips & Advice
Excessive sweating (Hyperhidrosis)...I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous...reactionsrepliesExerciseWeatherSymptoms
How to Thrive With Myasthenia Gravis: Building Community, Practicing Mindfulness, and Empowering Yourself...Community, to me, isn’t about everyone agreeing or seeing eye to eye on everything. It’s about finding common ground, something that unites...reactionscomments
Travel Considerations...My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica...reactions4repliesAwarenessGeneralized MGTravel
I find doing things in the morning are a lot easier than later in the day....I was diagnosed two years ago at 70 but looking back I now realize I had symptoms about 2 years prior but...reactions3replies
Azathioprine...Does anyone take this medication? The side effects scare me but prednisone makes me super crazy and my blood sugars are through...reactionsrepliesNewly DiagnosedTravelTreatment
Ocular MG...I have just been diagnosed with Ocular MG, effects my eyes (double vision) and balance. Anyone ever heard of this or has...reactions1reply
Getting a handle on MG (or trying)...I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit...reactionsrepliesCopingSymptomsTreatment
Can glaucoma surgery and cataract removal be done at the same time, and why would that be beneficial?...Yes, in certain cases, glaucoma surgery and cataract removal can be performed together in a single procedure. This approach can help lower...reactionsrepliesTips & Advice
Walking problems ...First thing upon rising in the morning I have ability to walk for a few minutes then weakness in my legs sets...reactionsreplies
Vyvgart Injections...Hello Everyone, Just finished the, Once - a - Week for 4 weeks Injections and waiting for the Maintenance Injections coming up...reactions2replies
Should I try to continue hunting...I grew up hunting. It’s an activity I love and and last year my son has gotten into it and we had...reactions3repliesCoping
