Tips for Finding MG-Accommodating Vacation Activities...When planning a myasthenia gravis-friendly vacation, finding suitable accommodations and attractions may initially seem challenging. However, many parks and attractions offer options that can provide a sense of relief and...reactions4comments
Tremors and Myasthenia Gravis...Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...reactions15repliesSymptomsTreatmentSide Effects
The Possibility of Neonatal Myasthenia Gravis After Delivery...I had my third baby over a year ago. I didn’t have myasthenia gravis (MG) during my first pregnancy, but I did have symptoms during my second pregnancy although I...reactions1comment
Knee Pain...Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...reactions2repliesTips & AdviceCopingSide Effects
Improving Quality of Life in MG: Targeted Symptom Management Strategies...Key Takeaways: While anti-cholinesterase inhibitors (AChEs) like pyridostigmine (Mestinon®) are often the first-line treatment for managing symptoms of myasthenia gravis (MG), they do not address all symptoms effectively in all...reactionscomments
Thymectomy via partial sternotomy ...Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...reactions1replySurgeryThymectomyTreatment
Two Years of Vyvgart: Progress, Challenges, and Gratitude...When my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the true scope of Myasthenia Gravis (MG)—there’s a denial...reactions7comments
One sided symptoms?...Is it possible to just experiment MG symptoms just on one side of your body?...reactions2repliesAutoimmune Diseases
Seronegative ...My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...reactions3replies
Managing Restless Legs Syndrome and MG...I recently found out my restless legs syndrome (RLS) is more than likely related to myasthenia gravis (MG). If you don’t already know, RLS is a condition that causes a...reactions10comments
Myasthenia Gravis ...Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for RIA now) Thank you...reactions8replies
Disoriented Vision: My Struggle with MG...In January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much of the disorientation was due to my constant...reactions6comments
Diet...Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan and Keto diets on our immune systems. Has...reactions2repliesAutoimmune Diseases
Eating with MG...I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...reactions2repliesGeneralized MG
What’s something you wish your doctor knew about living with MG?...It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...reactionsrepliesTips & AdviceHealthcare TeamSymptoms
How Do You Use Mindfulness to Navigate Myasthenia Gravis?...Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...reactionsrepliesCrisisFriends & FamilyDepression
Is hip pain bothering you?...Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...reactions2repliesSymptoms
Finding Support in the Unlikeliest of Places...When navigating a complex and often exhausting medical journey, finding support can sometimes feel like searching for a needle in a haystack. For many of us living with chronic illnesses...reactions2comments
Treatment Question...I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...reactions23replies
Myasthenia ...My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon) for 2 weeks. Has anyone taking this medicine...reactions4replies
