Photophobia / Light Sensitivity...Myasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. One of the symptoms of MG is light sensitivity, officially called photophobia. This can cause a strong dislike of...Reactions0reactionsComments8 comments
What to expect from MG...Hi everyone, I’m a 19 year old female and i’ve accidentally got diagnosed with MG, I got sent for a CT scan with contrast for my seizures and then found...Reactions0reactionsComments9 repliesSymptomsTips & Advice
Mestinon side effects...I can no longer eat any tomatoes and any foods or sauces with a tomato base. Has anyone else experienced this with Mestinon, and is there a simple remedy?...Reactions0reactionsComments3 repliesSide EffectsAutoimmune Diseases
Need help. What meds can be taken for muscle spasms? ...I’m having another episode of muscle spasms pretty much all over my body including around my ribs / diaphragm. It kept me up until after 5am last night, wondering if...Reactions0reactionsComments2 replies
Are At-Home IVIG Treatments Right for You?...Intravenous immunoglobulin (IVIG) is also known as gamma globulin. IVIG is used to treat a variety of autoimmune conditions, including myasthenia gravis (MG). IVIG boosts the number of healthy antibodies...Reactions0reactionsComments0 comments
Family member diagnosis ...My identical twin has just been diagnosed with MG. I got my diagnosis 12 months ago. We suspected it, as she has all of my symptoms....Reactions0reactionsComments1 replies
Leg cramps...I have had leg cramps for years and my doctor said to try sifrol 3 tablets 2 hour before bed it works...Reactions0reactionsComments1 replies
Headaches 24/7...I was Dx with myasthenia 4 months ago and after medication changes, adding pretend medtinon, I have suffered from extreme headaches every morning, last all day, and go to bed...Reactions0reactionsComments1 replies
Community Perspectives on MG Symptoms...Myasthenia gravis (MG) is a condition that causes muscle weakness. But weakness is not the only symptom of MG. In fact, it can be hard to diagnose MG because the...Reactions0reactionsComments0 comments
Diaphragm Discomfort...Hello, Does anyone get this, such as an ache around the area?...Reactions0reactionsComments2 replies
My Breakfast used to include Oatmeal with Blueberries but NOW I make Oatmeal Chocolate Chip Cookies Instead...I decided to change my Oatmeal with Blueberries breakfast with Oatmeal Chocolate Chip Cookies instead... Blueberry Cocktail for my Blueberry consumption and I will have 2 Cookies with Apple Sauce...Reactions0reactionsComments3 repliesDiet & Nutrition
Duration of Ocular MG Flare Ups?...I've got ocular MG (confirmed by serology in Jan 2023) and have had several flare ups over the past year and a half during which my symptoms (particularly diplopia) are...Reactions0reactionsComments13 comments
Side effects of mestinon ...I’d have a mild case of mestinon for mg symptoms for about 10 years It’s not working as well as I would like.I take 1 or 2 tablets a day...Reactions0reactionsComments2 replies
5 Activities to Try When Recovering from Thymectomy Surgery...After my thymectomy surgery, getting plenty of rest and sleep was a soothing and natural way to manage my discomfort. Pain is common after surgery - I had pain in...Reactions0reactionsComments0 comments
Asking my doctor to support testing me for MG?...My father had myasthenia gravis MG in his late 70's. I am noticing some of the MG symptoms he had in myself. Saliva leaking out the corners of my mouth...Reactions0reactionsComments7 repliesDiagnosisSymptoms
Can PCP Rx Mestinon? Suspected MG...Hello! I am new here and I’m so alone with this so forgive me if this is long. I was wondering if anyone has had the experience of a primary...Reactions0reactionsComments4 replies
MG without Excerbations...I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...Reactions0reactionsComments0 repliesMuscle WeaknessNewly Diagnosed
MG Second Time Around...In the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep my blood sugar levels down as well. I...Reactions0reactionsComments2 comments
Life After MG?...It has been about 4 years since I was initially diagnosed with myasthenia gravis (MG). And now, 3 years after my thymectomy surgery. All is well, and my neurologist thinks...Reactions0reactionsComments11 comments
Strong Probability I have Myasthenia Gravis...Hello, there is a strong possibility that I have myasthenia gravis. Symptoms started a couple of years ago with strange facial looks and a sarcastic tone at times when I...Reactions0reactionsComments37 comments
