Summer ...Hi everyone, I got diagnosed last fall and this is my first summer in Northern Nevada with MG. Heat Intolerance and trouble breathing is one of the problems you all...reactions1replyAwareness
Assessing MG Patients’ Meningococcal Vaccine Status...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating weakness of voluntary muscles. Management often involves immunosuppressive therapies to modulate the autoimmune response. While these...reactionscomments
Managing MG in Special Populations: Children, Pregnant People, and the Elderly...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating muscle weakness and fatigue. MG can affect people of any age. But its presentation, diagnosis, and...reactionscomments
Advice/comments for new MG diagnosis and possible treatments...This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis and would like some opinions on doctor's advice...reactions11repliesGeneralized MGNewly DiagnosedTips & Advice
Sipping water in between bites of food...Sipping water with a slice if lemon or lime in between bites helps swallowing the food...reactionsreplies
LRP4 Question...I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...reactionsrepliesGeneralized MGTypesTreatment
What household tasks are difficult for you?...What household tasks are difficult for you because of your MG?...reactions139repliesCoping
LLLT...Does low level laser therapy help to supplement medication in MG. It was suggest I go for a course. I have ocular bulbar MG...reactions1reply
What is your Win of the Day?...Living with MG can be challenging. Let's celebrate all the wins, big or small. What is your WIN of the DAY?...reactionsrepliesMental Health
Diet...I'm interested if anyone with mg has tried a hyper nutrition program for autoimmune.? Just nutrition from food. Mainly raw dark greens and stuff in the cabbage family, like cauliflower...reactionsrepliesDiet & Nutrition
Treatment ...I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended up in hospital as symptoms were progressively getting...reactions3repliesTreatment
Incontinence...My doctors don't respond when I mention this symptom. I believe they assume it is just old age (I'll be 80 years old in July). But this has only started...reactions1reply
How I find hope!...For anyone who believes in the Bible did you know there are verses that brings up my gMG symptoms. (When my neck cannot support my head) Psalm 3:3 ESV "But...reactionsrepliesCoping
How does Myasthenia Gravis affect eye health, and why are regular eye exams important for people with this condition?...Myasthenia Gravis often affects the muscles that control eye movement and eyelids, leading to symptoms like drooping eyelids (ptosis) and double vision (diplopia). These eye-related symptoms can fluctuate throughout the...reactions1replyAwareness
My child has eye issues from Myasthenia Gravis, drooping eyelids and vision problems. Has anyone else’s child faced this too?...Yes, my child went through something similar;Droopy eyelids and occasional double vision were tough. What helped us was a combination of rest, regular check-ups, and using special anti-glare lenses to...reactionsrepliesAwareness
Weight loss...Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...reactionsrepliesSide Effects
Active todayMuscle cramping and pain...I wish my phy. would have warned me about muscle "flares" where many muscles cramp at once. I had no idea, it happened for the first time today and I...reactions3repliesSymptoms
Survey RE. Agent Orange...I had heavy exposure to ancient orange, stateside, and wound up with prostate cancer. None of my family members that I know of including Cousins have had cancer. The base...reactions1replyFriends & Family
Prisms...I live in rural France and have ocular myasthenia gravis. My eyes are getting worse and the ophthalmologist here cannot get the prisms right. I'm wearing a pair of glasses...reactionsrepliesOcular MG
Empowering Patients: The Quest for Information and Better Treatment in MG...Advertisementwistia-player[media-id='ykfidath7p']:not(:defined) { background: center / contain no-repeat url('https://fast.wistia.com/embed/medias/ykfidath7p/swatch'); display: block; filter: blur(5px); padding-top:56.25%; }Key Takeaways: In recent years, a significant shift has occurred in myasthenia...reactionscomments
