How I Exercise Safely with MG...When I was first diagnosed with myasthenia gravis (MG), I couldn't lift my arms above my head 10 times. Fortunately, my MG weakness improved with treatment and lifestyle changes. But... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Season Changes & MG Symptoms...With the weather starting to take a turn into Fall over the next few weeks —— do season changes affect MG symptoms? Do you find that a certain season causes...Reactions0reactionsComments1 repliesTriggersSymptoms
Aries Warrior...I'm going to do my best to tell what my journey has been so ask questions if you need to. I'm 77 years old. Oct 2020 my left eye drooped... By Izzy J.2 min readBookmark for laterReactions0reactionsComments0 comments
Nightly cramps after fluoroquinolone antibiotics...I was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...Reactions0reactionsComments0 repliesAwareness
Severe hot flashes ...I was just wondering if there might be a hormonal imbalance with gMG. I was diagnosed at 19, had a thymectomy at age 20, tick every box on the symptoms...Reactions0reactionsComments2 replies
MG reactions to Stem Cell therapy ...My husband was diagnosed with MG in 2019. He had a major crisis 2 months after diagnosis. He is better now but gets weak faster and it's taking longer for...Reactions0reactionsComments0 replies
Vyvgart for Ocular MG...While viewing the Vyvgart (Argenx..manufacturer) website, I noticed that a clinical trial is being developed specifically for the treatment of ocular myasthenia gravis! My question- has anyone being treated with...Reactions0reactionsComments1 replies
Acupuncture...Has anyone tried acupuncture in conjunction with your MG treatment?...Reactions0reactionsComments1 replies
Creating The Perfect Hospital Bag for Myasthenia Gravis...Living with myasthenia gravis (MG) can mean frequent hospital visits, especially for those of us on immunosuppressants. In my experience, what might seem like a minor infection or cold can... By Deborah Vick3 min readBookmark for laterReactions0reactionsComments6 comments
Headache with Mestinon...I am experiencing stomach cramps , diarrhea and headaches with 60 mg of Mestinon. I’ve read about stomach cramps and diarrhea but not headaches. I never get headaches. Do these...Reactions0reactionsComments10 replies
Surgery Yesterday ...Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...Reactions0reactionsComments1 repliesSurgeryThymectomyGeneralized MG
Medication side effects...Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone...Reactions0reactionsComments31 repliesTips & AdviceTreatment
General Myathenia Gravis...When I am ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position...Reactions0reactionsComments5 repliesAutoimmune Diseases
Ways to Manage MG Fatigue...Fatigue is what doctors call feeling exhausted or lacking mental or physical energy. It may also mean you cannot continue activities as long as you would like. It is 1... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
the connection between MG and tick born illnesses...Looking for information about tick born illnesses causing MG....Reactions0reactionsComments1 repliesGeneralized MG
Thymectomy...Hi there I was diagnosed with mg in early 2020. Since then I have experienced everything one could expect with mg including a myasthenia crisis. A ct scan revealed a...Reactions0reactionsComments0 replies
Dealing with Glaucoma and MG?...Dealing with Glaucoma and MG? You're not alone. Living with Glaucoma, a condition that leads to vision loss and potential blindness, as well as MG-related double vision and drooping eyelids...Reactions0reactionsComments0 repliesVisionDrivingOcular MG
Are you a routine person? Coping with the unpredictability of MG...Are you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...Reactions0reactionsComments1 repliesTips & AdviceMental HealthCoping
How to Make the Most of Online Healthcare Patient Portals...Patient portals are websites offered by healthcare providers to help you manage your health. I have been familiar patient portals since high school. I started using them to make doctor's... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Myasthenia Gravis ...I was diagnosed lasted November but I think I’ve had MG for longer so to cut the story short I went to see a neurologist last January she done some...Reactions0reactionsComments2 repliesCopingDepressionDiagnosis
