Apherisis Poem:Wash, Rinse, Repeat...By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because I’m near the end. Previous treatment fading-now only...reactions1reply
Mestenon treatment for OMG...My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment worked at 40mg but when stepped down to...reactions4replies
Tips to Master Meal Preparation With Myasthenia Gravis...Meal preparation has been a true challenge both physically and mentally since I was diagnosed with myasthenia gravis. However, I've discovered some strategies that have converted cooking from a daunting...reactions2comments
Living with Uncertainty: My Path to Answers and Healing...In 2022, I noticed that my voice sometimes had a sarcastic tone, which hurt my husband. I kept telling him I wasn’t aware of how my voice sounded. At 59...reactions10comments
MG Story...Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing almost nobody understands at my age of 30...reactions1reply
sleeping positions and finding good books on MG...Diagnosed with MG 10 months ago. Started with Ocular and moved to Ocular with General MG symptoms. Question: Has anyone with MG and breathing issues found a good position to...reactions1replySleep
traveling with MG...I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled the double vision. Now my only symptoms are...reactions2repliesTips & Advice
Have you experienced losing your voice?...Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...reactions4repliesSymptomsNewly DiagnosedCoping
Ptosis Prevents Me from Living My Life...I have ocular, double zero negative myasthenia gravis. I was still competing in swimming until I was diagnosed. I had been struggling due to the fact that I couldn't see...reactions7comments
Living with Myasthenia Gravis in Asheville: A Year of Setbacks and Strength...I’ve now been in Asheville for a year with my cat. We found a place that welcomed both of us, and the cat is loved by everyone in the Assisted...reactions11comments
Unexplained Symptoms that are Not Characteristic MG Symptoms?...What unexplained symptoms do you have that are not characteristic MG symptoms?...reactions4repliesSymptomsNewly DiagnosedAwareness
Syncope...Hi, Everyone! I'm so glad I found this group! I was diagnosed with MG in October 2024. My symptoms have progressed SO quickly. Most recently, I fainted following a feeling...reactions12replies
MG with Emphysema ....MS compromises your immune system and I have MS plus Emphysema both...reactions1replyGeneralized MG
Searching for relief after a near death experience...I almost died when I had my first severe flare up in January of 2021. My family doctor didn't know what was going on and called my neurologist in Little...reactions1comment
Avoid Amplifying Your Stress: Simple Strategies for Managing Stress...I've come across some insightful posts on the effects of stress on MG (Myasthenia Gravis) and how to reduce it. My favorite tools for managing stress are taking naps to...reactions1comment
Understanding Non-apparent Disabilities in the Workplace...About 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an invisible disability, the decision...reactions1comment
On a scale of 1-10, how much were you able to participate in holiday activities this year?...On a scale of 1-10, how much were you able to participate in holiday activities this year?...reactions6repliesSymptomsFriends & FamilyCoping
symtoms...Does anyone get numbness any where on there body? Also does just one side of your body become effected? In June of this year I had a face droop on...reactions1replySymptomsSleep
Fever blisters...Does anyone else get clusters of fever blisters during severe heat? I get sudden sweat diwnpoars over my head, face and entire body. The weakness overwhelms me so that I...reactions2replies
Cured?...My husband was diagnosed with MG two years ago. This past summer, a different doctor determined that "the patient doesn't have MG". Is this possible? His neurologist retired and we...reactions2repliesDiagnosisRemission
