Understanding Myasthenia Gravis: Symptoms and Diagnosis...Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...Reactions0reactionsComments1 repliesSymptoms
MG related or not?...I am very recently diagnosed (<1 month) at the age of 27, but I’ve been having investigations for very mild but slowly progressive symptoms since I was about 14 years...Reactions0reactionsComments1 repliesSymptoms
Could giving blood regularly reduce symptoms?...I have given blood regularly my whole life, but stopped after retirement and fatigue after giving. My double vision started after that, so wondering if giving blood may have helped...Reactions0reactionsComments5 repliesSymptoms
Diagnosed in 6/24. Myasthenia Gravis ...Neurologist started me on pyridostigmine bromide 60mg. Twice a day. They r helping me but on 30%. I can only chew food properly for 3-4 bites and then I have...Reactions0reactionsComments5 replies
Have you heard about these latest FDA-approved MG treatments?...Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentAwareness
Why Dealing With All Of My MG Medicines Can Be Overwhelming...Taking medicine for myasthenia gravis (MG) can be so difficult. I have MG and I take prednisone and pyridostigmine (Mestinon) to treat it. But as so many of you know... By Mike Stabile3 min readBookmark for laterReactions0reactionsComments0 comments
Choosing the Right Glasses for Your Eye Health...Selecting the right glasses is crucial for maintaining optimal eye health and ensuring clear vision. The type of lenses you choose can significantly impact your eye comfort and overall visual...Reactions0reactionsComments1 repliesVision
Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? ...Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...Reactions0reactionsComments0 repliesAwarenessCrisisNewly Diagnosed
The change from hot weather to cold...Cold weather - how does it effect MG?...Reactions0reactionsComments1 replies
Does anyone have an issue with floaters...I recently went the opticians because I suddenly had flashing lights and floaters in both my eyes,I was told it was a vitreous detachment due to age(I'm 72) and no...Reactions0reactionsComments1 repliesOcular MGVision
The State of Vision Health...Vision health has seen significant advancements over the years, but challenges remain. With increased awareness about eye health, more people are seeking regular eye exams, which has led to early...Reactions0reactionsComments1 repliesVision
Coping...could anyone tell me what causes the myasthenia pot belly? Sue from Australia where there are no specialist myasthenia doctors....Reactions0reactionsComments3 repliesCoping
Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?...Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical TrialsTips & Advice
MG flare or emergency while out of state or country? ...Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If not, have you had a discussion with your...Reactions0reactionsComments0 repliesTravelTips & AdviceTreatment
What Is the Autoimmune Protocol Diet, and Can It Help MG?...Myasthenia gravis (MG) is an autoimmune condition caused by the immune system attacking your own body. For some people, making certain changes in diet may support the immune system and... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Do you have flare symptoms that show up well after your exposure to a trigger?...My usual flare symptom is fatigue. But if my trigger exposure is more extreme it includes slight slurring and then my right eyelid droops. As a result, it’s been a...Reactions0reactionsComments3 repliesTriggers
Vivgart...I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been only 6 weeks and I'm going backwards already...Reactions0reactionsComments3 replies
Methotrexate...Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...Reactions0reactionsComments0 repliesSide Effects
Blue Light Glasses...Blue light glasses, such as those from Foster Grant, Cyxus, Felix Gray, Gunnar Optiks, TIJN, EyeBuyDirect, and Warby Parker, are designed to reduce digital eye strain by blocking blue light...Reactions0reactionsComments0 repliesVision
Learning to Love Convenience Vegetables: Cooking with MG...Long before myasthenia gravis (MG) and the eat-everything-imperative of prednisone entered my life, I loved food. Not necessarily cooking, but definitely eating. I never considered myself a real foodie —... By Zach McCallum4 min readBookmark for laterReactions0reactionsComments5 comments
