Donna: My Struggle...I was diagnosed November 2023 but didn’t see a neurologist until April. She put me on prednisone, but it hasn’t helped. My eyes are so painful. My left eyelid drops...Reactions0reactionsComments2 comments
Is MG Inherited?...My father died in 1968 at age 72 from MG that was discovered by autopsy. He was unable to swallow any solid food and had great difficulty with liquids. He...Reactions0reactionsComments8 comments
Myasthenia crisis???...After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my symptoms: off-balance, tired, pain through most of my...Reactions0reactionsComments2 repliesSymptoms
Coping with Excessive Heat and Humidity...I’ve had myasthenia gravis (MG) for several years now and I know people with MG can have issues with hot or cold temperatures. Personally, I've had some issues with humidity...Reactions0reactionsComments0 comments
First Crisis very Frightening...I was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern. I was anxious about not being able to...Reactions0reactionsComments3 comments
Confused...In 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I had fibromyalgia and I was prescribed medication. Then...Reactions0reactionsComments4 comments
17 Years and Counting of Ocular MG Symptoms...Seventeen years ago just after I turned 40, I started experiencing symptoms of ocular MG that has never progressed to general. I'm seronegative, which led to a year between onset...Reactions0reactionsComments1 comments
How do you manage MG speech problems?...Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...Reactions0reactionsComments19 repliesSymptomsTips & AdviceCoping
Managing Stress & Anxiety...Fully eliminating life's stressors is nearly impossible, but trying to keep it at bay is helpful when managing MG symptoms. How do you practice self-care, mindfulness, and keeping stress/anxiety at...Reactions0reactionsComments14 repliesTips & AdviceCoping
Potassium...I read where magnesium is not good to take with MG, what about potassium. I do eat bananas....Reactions0reactionsComments0 replies
How I Exercise Safely with MG...When I was first diagnosed with myasthenia gravis (MG), I couldn't lift my arms above my head 10 times. Fortunately, my MG weakness improved with treatment and lifestyle changes. But...Reactions0reactionsComments0 comments
Season Changes & MG Symptoms...With the weather starting to take a turn into Fall over the next few weeks —— do season changes affect MG symptoms? Do you find that a certain season causes...Reactions0reactionsComments1 repliesTriggersSymptoms
Aries Warrior...I'm going to do my best to tell what my journey has been so ask questions if you need to. I'm 77 years old. Oct 2020 my left eye drooped...Reactions0reactionsComments1 comments
Nightly cramps after fluoroquinolone antibiotics...I was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...Reactions0reactionsComments0 repliesAwareness
Severe hot flashes ...I was just wondering if there might be a hormonal imbalance with gMG. I was diagnosed at 19, had a thymectomy at age 20, tick every box on the symptoms...Reactions0reactionsComments2 replies
MG reactions to Stem Cell therapy ...My husband was diagnosed with MG in 2019. He had a major crisis 2 months after diagnosis. He is better now but gets weak faster and it's taking longer for...Reactions0reactionsComments0 replies
Vyvgart for Ocular MG...While viewing the Vyvgart (Argenx..manufacturer) website, I noticed that a clinical trial is being developed specifically for the treatment of ocular myasthenia gravis! My question- has anyone being treated with...Reactions0reactionsComments1 replies
Acupuncture...Has anyone tried acupuncture in conjunction with your MG treatment?...Reactions0reactionsComments1 replies
Creating The Perfect Hospital Bag for Myasthenia Gravis...Living with myasthenia gravis (MG) can mean frequent hospital visits, especially for those of us on immunosuppressants. In my experience, what might seem like a minor infection or cold can...Reactions0reactionsComments6 comments
Headache with Mestinon...I am experiencing stomach cramps , diarrhea and headaches with 60 mg of Mestinon. I’ve read about stomach cramps and diarrhea but not headaches. I never get headaches. Do these...Reactions0reactionsComments10 replies
