Orange glasses ...Visited the sight clinic today, in reference to my intermittent double vision, and I'm trialling some rather groovy looking orange glasses. Apparently...reactions2repliesOcular MG
Excess phlegm...I was recently diagnosed with ocular MG. I was started on 30 mg of mestinon 3x day. Then upped in a months...reactions1replyOcular MGNewly DiagnosedSymptoms
Frustrated with awaiting a diagnosis ...I have been struggling with intermittent double vision for over a year. I've had several MRIs. First scan showed a white matter...reactions7repliesDepression
Help with Cramping ...I have had cramping. For some reason Mango helps it. If I drink pure Mango juice, I don't cramp. If I do...reactions1replyMuscle Weakness
Ocular MG ...I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes...reactions3replies
I have major symptoms, but was told it is not MG. ...I recently had an evaluation with a PT and after reviewing my extensive medical record asked if I had MG. I told...reactions3repliesCoping
runny nose...I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running...reactions4replies
What are the early signs of glaucoma, and can a regular optician spot them?...Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages...reactionsrepliesSide Effects
VYVGART?...I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine...reactions3replies
The bladder and myasthenia connection ...Can you please repost the talk about myasthenia and the bladder. It was deleted too quickly. Thank you...reactions1reply
Active 2 days ago"Wrong" Diagnosis for Years?...I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists...reactions2replies
I V ports...I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have...reactionsreplies
CAR T Cell therapy or UCAR T cell therapy...My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter...reactions1replyTreatmentRefractory MGHealthcare Team
Hear+Now: An AI-Powered Audio Digest - The Importance of Vaccinations for MG Patients...Vaccinations play a critical role in safeguarding the health of individuals with Myasthenia Gravis (MG). Due to their compromised immune systems, often...reactionscomments
Cold water therapy ...I have recently started cold water therapy in our plunge pool.( It's winter here). I actually have a positive response after i...reactionsreplies
Do positive blood tests later show no sign of gMG?...My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after...reactions1replyGeneralized MG
Newly Diagnosed OMG...I initially just had Ptosis, e which began in January of this year. My 16 and a half year old heart dog...reactionsrepliesOcular MG
Severe Back Pain ...I am considering going to a physiatrist to get a steroid injection in my spine. Has anyone had any such injections and...reactions2replies
Myasthenia-gravis ...I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I...reactions2repliesDrivingAutoimmune Diseases
