How did you feel after IVIG...Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...reactions11repliesTreatment
Mold Toxicity/Exposure and MG...Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...reactionsrepliesTips & AdviceTriggersAwareness
Steroid-Induced Glaucoma...Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If left unaddressed, glaucoma can lead to outcomes such...reactions2repliesTreatmentOcular MGDriving
Do you have treatment goals?...Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives...reactions6repliesTreatmentSymptomsGeneralized MG
IVIG-Octagam...Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if anyone had tried Octagam IVIG? I tried Mestinon...reactionsreplies
Tips for Finding MG-Accommodating Vacation Activities...When planning a myasthenia gravis-friendly vacation, finding suitable accommodations and attractions may initially seem challenging. However, many parks and attractions offer options that can provide a sense of relief and...reactions4comments
Tremors and Myasthenia Gravis...Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...reactions16repliesSymptomsSide EffectsTreatment
The Possibility of Neonatal Myasthenia Gravis After Delivery...I had my third baby over a year ago. I didn’t have myasthenia gravis (MG) during my first pregnancy, but I did have symptoms during my second pregnancy although I...reactions1comment
Knee Pain...Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...reactions3repliesCopingTips & AdviceSide Effects
Improving Quality of Life in MG: Targeted Symptom Management Strategies...Key Takeaways:While anti-cholinesterase inhibitors (AChEs) like pyridostigmine (Mestinon®) are often the first-line treatment for managing symptoms of myasthenia gravis (MG), they do not address all symptoms effectively in all patients...reactionscomments
Thymectomy via partial sternotomy ...Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...reactions1replySurgeryThymectomyTreatment
Two Years of Vyvgart: Progress, Challenges, and Gratitude...When my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the true scope of Myasthenia Gravis (MG)—there’s a denial...reactions7comments
One sided symptoms?...Is it possible to just experiment MG symptoms just on one side of your body?...reactions2repliesAutoimmune Diseases
Seronegative ...My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...reactions3replies
Managing Restless Legs Syndrome and MG...I recently found out my restless legs syndrome (RLS) is more than likely related to myasthenia gravis (MG). If you don’t already know, RLS is a condition that causes a...reactions12comments
Myasthenia Gravis ...Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for RIA now) Thank you...reactions8replies
Disoriented Vision: My Struggle with MG...In January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much of the disorientation was due to my constant...reactions6comments
Diet...Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan and Keto diets on our immune systems. Has...reactions2repliesAutoimmune Diseases
Eating with MG...I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...reactions2repliesGeneralized MG
What’s something you wish your doctor knew about living with MG?...It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...reactionsrepliesTips & AdviceHealthcare TeamSymptoms
