Surgery Yesterday ...Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...Reactions0reactionsComments1 repliesSurgeryThymectomyGeneralized MG
Medication side effects...Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone...Reactions0reactionsComments31 repliesTips & AdviceTreatment
General Myathenia Gravis...When I am ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position...Reactions0reactionsComments5 repliesAutoimmune Diseases
Ways to Manage MG Fatigue...Fatigue is what doctors call feeling exhausted or lacking mental or physical energy. It may also mean you cannot continue activities as long as you would like. It is 1...Reactions0reactionsComments3 comments
the connection between MG and tick born illnesses...Looking for information about tick born illnesses causing MG....Reactions0reactionsComments1 repliesGeneralized MG
Thymectomy...Hi there I was diagnosed with mg in early 2020. Since then I have experienced everything one could expect with mg including a myasthenia crisis. A ct scan revealed a...Reactions0reactionsComments0 replies
Dealing with Glaucoma and MG?...Dealing with Glaucoma and MG? You're not alone. Living with Glaucoma, a condition that leads to vision loss and potential blindness, as well as MG-related double vision and drooping eyelids...Reactions0reactionsComments0 repliesVisionDrivingOcular MG
Are you a routine person? Coping with the unpredictability of MG...Are you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...Reactions0reactionsComments1 repliesTips & AdviceMental HealthCoping
How to Make the Most of Online Healthcare Patient Portals...Patient portals are websites offered by healthcare providers to help you manage your health. I have been familiar patient portals since high school. I started using them to make doctor's...Reactions0reactionsComments0 comments
Myasthenia Gravis ...I was diagnosed lasted November but I think I’ve had MG for longer so to cut the story short I went to see a neurologist last January she done some...Reactions0reactionsComments2 repliesCopingDepressionDiagnosis
Understanding Myasthenia Gravis: Symptoms and Diagnosis...Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...Reactions0reactionsComments1 repliesSymptoms
MG related or not?...I am very recently diagnosed (<1 month) at the age of 27, but I’ve been having investigations for very mild but slowly progressive symptoms since I was about 14 years...Reactions0reactionsComments1 repliesSymptoms
Could giving blood regularly reduce symptoms?...I have given blood regularly my whole life, but stopped after retirement and fatigue after giving. My double vision started after that, so wondering if giving blood may have helped...Reactions0reactionsComments5 repliesSymptoms
Diagnosed in 6/24. Myasthenia Gravis ...Neurologist started me on pyridostigmine bromide 60mg. Twice a day. They r helping me but on 30%. I can only chew food properly for 3-4 bites and then I have...Reactions0reactionsComments5 replies
Have you heard about these latest FDA-approved MG treatments?...Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentAwareness
Why Dealing With All Of My MG Medicines Can Be Overwhelming...Taking medicine for myasthenia gravis (MG) can be so difficult. I have MG and I take prednisone and pyridostigmine (Mestinon) to treat it. But as so many of you know...Reactions0reactionsComments1 comments
Choosing the Right Glasses for Your Eye Health...Selecting the right glasses is crucial for maintaining optimal eye health and ensuring clear vision. The type of lenses you choose can significantly impact your eye comfort and overall visual...Reactions0reactionsComments1 repliesVision
Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? ...Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...Reactions0reactionsComments0 repliesAwarenessCrisisNewly Diagnosed
The change from hot weather to cold...Cold weather - how does it effect MG?...Reactions0reactionsComments1 replies
Does anyone have an issue with floaters...I recently went the opticians because I suddenly had flashing lights and floaters in both my eyes,I was told it was a vitreous detachment due to age(I'm 72) and no...Reactions0reactionsComments1 repliesOcular MGVision
