Side effects of medication...I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I was only home a week and went back...Reactions0reactionsComments1 repliesSide EffectsTreatment
Extreme heaviness and throbbing pain in lower legs...I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my lower legs. This is not a cramping. Has...Reactions0reactionsComments1 replies
Difference with ibuprofen ...Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general weakness although subtle. I don't take it now...Reactions0reactionsComments1 repliesTreatmentSymptoms
My symptoms started years before I diagnosed with MG...I was diagnosed with MG this past February. Last November while working in the morning my vision went from clear to double. I work with Architectural drawings on a computer...Reactions0reactionsComments4 repliesDepressionNewly Diagnosed
Diagnosis and beyond...I am not sure if this is where to share this, or even how much to share, so feel free to remove. I was diagnosed almost 4 years ago, it...Reactions0reactionsComments1 repliesDiagnosis
I have symptoms but no answers. Only detective is me. Need help....I am searching for answers, and either nobody has any idea or they're not talking. This has dragged on for years. I was reading about symptoms and it started to...Reactions0reactionsComments8 repliesSymptoms
Myasthenia Gravis symptom?...I was diagnosed with myasthenia gravis about four years ago and it’s been only ocular. I have another symptom that is driving me crazy and I actually had surgery because...Reactions0reactionsComments1 repliesAutoimmune Diseases
Weather ...All of my life I dreamed of having a place on the beach. I was always a Beachgirl. My dream came true when I bought a condo right on the...Reactions0reactionsComments1 repliesCopingWeather
Leaving My Dream Career after Myasthenia Gravis...I became very passionate about archaeology before applying to colleges. I was utterly excited to pursue it as a career. In addition to my college courses, I spent many hours... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments0 comments
MG taking Azathioprine...I was diagnosed with MG 7 years ago. Went thru the pyridostigmine - prednisone treatment for about 2 years. Celcept for about 1 year. Next 4 years took pyridostigmine only...Reactions0reactionsComments8 repliesAutoimmune Diseases
How do you prepare for travel?...Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini trip. So I was just wondering for everyone...Reactions0reactionsComments0 repliesGeneralized MGTravelTips & Advice
How did your MG diagnosis affect you emotionally?...How did your MG diagnosis affect you emotionally? It can be incredibly challenging to cope with a diagnosis of Myasthenia Gravis (MG) emotionally. Understanding and coming to terms with the...Reactions0reactionsComments0 repliesDiagnosisCopingDepression
My Myasthenia Gravis Awakening...In this article I describe how I grappled with the emotions of learning that I had an incurable disease and how I was motivated to confront and overcome what I... By Mike Stabile3 min readBookmark for laterReactions0reactionsComments8 comments
What changes have helped you feel more fulfilled as you navigate MG?...Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate MG?...Reactions0reactionsComments9 replies
what are things that cause a flare up...I have flare ups that come on quickly. Arms and neck pain and weakness. Ice packs help and Advil....Reactions0reactionsComments3 replies
Tips for sinus issues ...What medication to take for sinus issues...Reactions0reactionsComments2 replies
Pregnancy...I’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...Reactions0reactionsComments1 repliesAwareness
Using Azathioprine long term for MG...Was diagnosed with MG at 65… Started with Mestinon and Prednisone. Ocular only..for 4 years took Pyridostigmine maybe twice a year mild flare ups. (Off prednisone) I am 73 now...Reactions0reactionsComments0 replies
June is MG Awareness Month! Let’s Be Proactive!...June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making sure the people we reach understand the challenges... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments2 comments
What is your experience with mestinon for treating OMG?...Can you tell me whether anybody had a positive effect of mestinon for OMG?...Reactions0reactionsComments4 repliesOcular MG
