The State of Vision Health...Vision health has seen significant advancements over the years, but challenges remain. With increased awareness about eye health, more people are seeking regular eye exams, which has led to early...Reactions0reactionsComments1 repliesVision
Coping...could anyone tell me what causes the myasthenia pot belly? Sue from Australia where there are no specialist myasthenia doctors....Reactions0reactionsComments3 repliesCoping
Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?...Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical TrialsTips & Advice
MG flare or emergency while out of state or country? ...Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If not, have you had a discussion with your...Reactions0reactionsComments0 repliesTravelTips & AdviceTreatment
What Is the Autoimmune Protocol Diet, and Can It Help MG?...Myasthenia gravis (MG) is an autoimmune condition caused by the immune system attacking your own body. For some people, making certain changes in diet may support the immune system and...Reactions0reactionsComments2 comments
Do you have flare symptoms that show up well after your exposure to a trigger?...My usual flare symptom is fatigue. But if my trigger exposure is more extreme it includes slight slurring and then my right eyelid droops. As a result, it’s been a...Reactions0reactionsComments3 repliesTriggers
Vivgart...I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been only 6 weeks and I'm going backwards already...Reactions0reactionsComments3 replies
Methotrexate...Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...Reactions0reactionsComments0 repliesSide Effects
Blue Light Glasses...Blue light glasses, such as those from Foster Grant, Cyxus, Felix Gray, Gunnar Optiks, TIJN, EyeBuyDirect, and Warby Parker, are designed to reduce digital eye strain by blocking blue light...Reactions0reactionsComments0 repliesVision
Learning to Love Convenience Vegetables: Cooking with MG...Long before myasthenia gravis (MG) and the eat-everything-imperative of prednisone entered my life, I loved food. Not necessarily cooking, but definitely eating. I never considered myself a real foodie —...Reactions0reactionsComments5 comments
Side effects of medication...I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I was only home a week and went back...Reactions0reactionsComments1 repliesSide EffectsTreatment
Extreme heaviness and throbbing pain in lower legs...I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my lower legs. This is not a cramping. Has...Reactions0reactionsComments1 replies
Difference with ibuprofen ...Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general weakness although subtle. I don't take it now...Reactions0reactionsComments1 repliesTreatmentSymptoms
My symptoms started years before I diagnosed with MG...I was diagnosed with MG this past February. Last November while working in the morning my vision went from clear to double. I work with Architectural drawings on a computer...Reactions0reactionsComments4 repliesDepressionNewly Diagnosed
Diagnosis and beyond...I am not sure if this is where to share this, or even how much to share, so feel free to remove. I was diagnosed almost 4 years ago, it...Reactions0reactionsComments1 repliesDiagnosis
I have symptoms but no answers. Only detective is me. Need help....I am searching for answers, and either nobody has any idea or they're not talking. This has dragged on for years. I was reading about symptoms and it started to...Reactions0reactionsComments8 repliesSymptoms
Myasthenia Gravis symptom?...I was diagnosed with myasthenia gravis about four years ago and it’s been only ocular. I have another symptom that is driving me crazy and I actually had surgery because...Reactions0reactionsComments1 repliesAutoimmune Diseases
Weather ...All of my life I dreamed of having a place on the beach. I was always a Beachgirl. My dream came true when I bought a condo right on the...Reactions0reactionsComments1 repliesCopingWeather
Leaving My Dream Career after Myasthenia Gravis...I became very passionate about archaeology before applying to colleges. I was utterly excited to pursue it as a career. In addition to my college courses, I spent many hours...Reactions0reactionsComments0 comments
MG taking Azathioprine...I was diagnosed with MG 7 years ago. Went thru the pyridostigmine - prednisone treatment for about 2 years. Celcept for about 1 year. Next 4 years took pyridostigmine only...Reactions0reactionsComments8 repliesAutoimmune Diseases
