What’s something you wish your doctor knew about living with MG?...It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...reactionsrepliesTips & AdviceHealthcare TeamSymptoms
How Do You Use Mindfulness to Navigate Myasthenia Gravis?...Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...reactionsrepliesCrisisFriends & FamilyDepression
Is hip pain bothering you?...Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...reactions2repliesSymptoms
Finding Support in the Unlikeliest of Places...When navigating a complex and often exhausting medical journey, finding support can sometimes feel like searching for a needle in a haystack. For many of us living with chronic illnesses...reactions4comments
Treatment Question...I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...reactions23replies
Myasthenia ...My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon) for 2 weeks. Has anyone taking this medicine...reactions4replies
Apherisis Poem:Wash, Rinse, Repeat...By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because I’m near the end. Previous treatment fading-now only...reactions1reply
Mestenon treatment for OMG...My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment worked at 40mg but when stepped down to...reactions4replies
Tips to Master Meal Preparation With Myasthenia Gravis...Meal preparation has been a true challenge both physically and mentally since I was diagnosed with myasthenia gravis. However, I've discovered some strategies that have converted cooking from a daunting...reactions3comments
Living with Uncertainty: My Path to Answers and Healing...In 2022, I noticed that my voice sometimes had a sarcastic tone, which hurt my husband. I kept telling him I wasn’t aware of how my voice sounded. At 59...reactions10comments
MG Story...Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing almost nobody understands at my age of 30...reactions1reply
sleeping positions and finding good books on MG...Diagnosed with MG 10 months ago. Started with Ocular and moved to Ocular with General MG symptoms. Question: Has anyone with MG and breathing issues found a good position to...reactions1replySleep
traveling with MG...I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled the double vision. Now my only symptoms are...reactions2repliesTips & Advice
Have you experienced losing your voice?...Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...reactions4repliesSymptomsNewly DiagnosedCoping
Ptosis Prevents Me from Living My Life...I have ocular, double zero negative myasthenia gravis. I was still competing in swimming until I was diagnosed. I had been struggling due to the fact that I couldn't see...reactions8comments
Living with Myasthenia Gravis in Asheville: A Year of Setbacks and Strength...I’ve now been in Asheville for a year with my cat. We found a place that welcomed both of us, and the cat is loved by everyone in the Assisted...reactions11comments
Unexplained Symptoms that are Not Characteristic MG Symptoms?...What unexplained symptoms do you have that are not characteristic MG symptoms?...reactions4repliesSymptomsNewly DiagnosedAwareness
Syncope...Hi, Everyone! I'm so glad I found this group! I was diagnosed with MG in October 2024. My symptoms have progressed SO quickly. Most recently, I fainted following a feeling...reactions12replies
MG with Emphysema ....MS compromises your immune system and I have MS plus Emphysema both...reactions1replyGeneralized MG
Searching for relief after a near death experience...I almost died when I had my first severe flare up in January of 2021. My family doctor didn't know what was going on and called my neurologist in Little...reactions1comment
