What Do Improvements on the MG-ADL Scale Mean for Patients?...Key Takeaways: For healthcare providers (HCPs) treating patients with myasthenia gravis (MG), understanding the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale...reactionscomments
My story with MG for the last 41 years and how I feel a lot better with Mirena anti conception...Hi there, I hope the information I share today will help at least one person a bit further. And if you have...reactions3repliesTips & Advice
Myasthenia Gravis Update 2 years Later....Hi there, lovely reader! My name is Fleur — I posted here almost two years ago now (can you believe it’s been...reactions2repliesMental HealthOcular MGAwareness
Abnormal ECG...Recently my Doctor requested I have an ECG. The result was abnormal and caused some alarm and I was told to go...reactionsrepliesSymptoms
Clinical Challenge - Test Your MG Knowledge...How confident are you in your Myasthenia Gravis knowledge? The complexities of MG demands a nuanced understanding for effective diagnosis and treatment...reactionscomments
Exercising with MG...I have had MG for 33 years. During the first several years I could do many types of exercises, such as, walking...reactions1reply
Side effects of Mestinon...I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon...reactions1replySide EffectsGeneralized MG
Private Platform for Sharing & Support – your thoughts?...Dear Community, My twin sister was recently diagnosed with Myasthenia Gravis, and it’s been an emotional and eye-opening time for our family...reactions2replies
My doctor (neurologist) is blaming my balance issues on neuropathy ...I have fallen at least 15 times..forward/backward and I have broken my collarbone, same shoulder and two compression fractures in my back...reactions1replyAwareness
Orange glasses ...Visited the sight clinic today, in reference to my intermittent double vision, and I'm trialling some rather groovy looking orange glasses. Apparently...reactions2repliesOcular MG
Excess phlegm...I was recently diagnosed with ocular MG. I was started on 30 mg of mestinon 3x day. Then upped in a months...reactions1replyOcular MGNewly DiagnosedSymptoms
Frustrated with awaiting a diagnosis ...I have been struggling with intermittent double vision for over a year. I've had several MRIs. First scan showed a white matter...reactions7repliesDepression
Help with Cramping ...I have had cramping. For some reason Mango helps it. If I drink pure Mango juice, I don't cramp. If I do...reactions1replyMuscle Weakness
Ocular MG ...I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes...reactions3replies
I have major symptoms, but was told it is not MG. ...I recently had an evaluation with a PT and after reviewing my extensive medical record asked if I had MG. I told...reactions3repliesCoping
Active 6 days agorunny nose...I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running...reactions7replies
What are the early signs of glaucoma, and can a regular optician spot them?...Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages...reactionsrepliesSide Effects
VYVGART?...I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine...reactions3replies
The bladder and myasthenia connection ...Can you please repost the talk about myasthenia and the bladder. It was deleted too quickly. Thank you...reactions2replies
