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MG Story

Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing almost nobody understands at my age of 30 but was diagnosed when I was 28 woke up one day to what I thought was a Charlie horse that never quite went away then it became debilitating the docs didn't know what was going on test after test nothing until I went to see a neurologist and they tested the ach levels and boom gmg but when it was suspected it progressed with in 3-6 months started with my legs then went up to my arms and hands then 7-8 months I was completely disabled couldn't move to eat swallow nothing like I was there to watch but couldn't move imagine that one day u walking then the next u on the floor and cant move for nothing... it took me a full year to learn how to walk eat use the bathroom via rehab in and out patient and finding the sweet spot with the prydrostigmine (you know what im saying 😆) and determination of not accepting the doctor saying I'm gonna be in a wheelchair for my rest of my life no I'm too young for that but now fast forward I do still use the power chair when I'm going long distance on my own but now I can go short distance again with my afos and cane and can now navigate houses again

  1. I’m so glad you found this space! I can only imagine how frustrating it was to go through all those tests without answers. It’s awesome that you finally got a diagnosis! It’s great to hear how hard you’ve worked to overcome obstacles and that things are getting more manageable for you now. Every little victory matters!
    Jodi, Team Member

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