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Blood results - is it MG?

Hi everyone
I’m going through tests for MG at the moment as I have a thymoma. I’ve been ill for nearly 18 months now.
My AChR level is at 0.51. Is this positive?

  1. Hi
    I am just wondering if you saw the doctor and got an MG diagnosis as I'm 0.59 so similar to you? 😊

    1. There are different tests for that antibody. I had one from PCP and the threshold for MG was .5 nmol/L or higher. That test was processed in a lab located in Utah. Since I live 3.5 hours away from Rochester MN I decided to go the Mayo Clinic for confimation and a treatment plan. Mayo clinic has there own tests which not only for the AChR binding antibody but also the AChR modulation antibody. I was positive on all tests. The threshold for AChR binding antibody on the Mayo tests .02 nmol/L. You should consult with your physician and if you have further questions see a neurologist and have an EMG test. I hope that this helps you.

      1. My grandmother had MG my mom definitely has the bent neck, swallowing issues and no voice for years! I now ans seeing more and more symptoms coming out at 54. I have a tendency to …just fall, issues with walking. My partner says I’m dragging my leg! The feel heavy and so do my extremities. I have had the cross eyes but didn’t even think it had anything to do with MG. I don’t have the droopy eyes by they feel heavy often. Also, I was diagnosed with systemic lupus.

        1. Hi there, welcome to our community. So sorry to hear you have been ill for so long. I wanted to provide a few articles you might find helpful about antibody testing and diagnosis. We aren't medical professionals so we wouldn't be able to provide medical advice but we hope you find the articles informative: https://myasthenia-gravis.com/blood-tests, https://myasthenia-gravis.com/clinical/understanding-antibodies, https://myasthenia-gravis.com/living/diagnosis-process - Kaitlyn (Team Member)

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