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Mestenon treatment for OMG

My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment worked at 40mg but when stepped down to 20-15mg it stopped working. My second Neuro doctor suggested 90 mg three times a day every 8 hours . Doing some research on the medication found that it takes 90 minutes after starting the pill to become effective. The a dosage only last for 3 1/2-4 hours and then quickly goes away in the system. So what worked for me was taking 90mg when I wake up in the morning. Then again at 11:30am, 2:30pm and 6pm . I am at 95% symptom free of omg. I question if I should take during the night due to when I awake my eyes are very tired and my face around my eyes is in pain . I take some Tylenol and start my morning dose , plus a glass or two of water and with in an hour these symptoms have gone away . I am having issues with light glare on floors and being able to walk in large rooms . I am told that is visual migraines with no headaches but still question if it is still connected to OMG .

  1. Welcome to the community! We're so glad to have you here, and I hope the new year brings you peace and good health. It's great to hear that you've found a routine that works for you and made such progress with your symptoms. If you don’t mind sharing, I’d love to know more about when you first started experiencing symptoms of MG. Was there anything specific that seemed to trigger it for you?
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    Here is an article you may be interested in: https://myasthenia-gravis.com/clinical/photophobia-light-sensitivity.
    Jodi, Team Member

    1. omg I would be lying if I said I wasn't glad someone else understood how unbelievable the light does seem so obtrusive it really causes me discomfort and I'm always hearing ..turn on some light .don't u think u could see better with some light??? Um, NOOOOOO I FREAKING DONT N NOOOOOOO N PLEASE LEAVE IT OFF! it hurts me deep inside.

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