"Wrong" Diagnosis for Years?
I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists, who thought I had something called PMR. Bloodwork indicated I did not and after about 11 months, my fatigue subsided. Finally, last year, double vision broke through and I was diagnosed in literally one minute by my ophthalmologist. What I would like to stress is, since the 2 Rheumatologists didn't think it was a rheumatoid disease, why didn't they- as specialists- ask themselves "WHAT ELSE COULD IT BE?" No such luck. Left to wander around since 2008 until I got double vision.
Oh so true. Probably nine out every ten MGers out there has a similar story. There are nine wrong doctors for every ten you visit. If their only tool is a hammer, every problem looks like a nail. So, to a rheumatologist, it looks like polymyalgia. An infectious disease specialist sees Lyme disease. An Ophthalmologist suspects Amblyopia. A cardiologist will look for a blocked artery. An internist will focus on your swallowing and probably send you to a speech pathologist. Even your dentist will weigh in when you have chewing problems. If only just one of those doctors would have ordered a simple blood test for ACHR Binding Antibody, If only...
