"Wrong" Diagnosis for Years?
I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists, who thought I had something called PMR. Bloodwork indicated I did not and after about 11 months, my fatigue subsided. Finally, last year, double vision broke through and I was diagnosed in literally one minute by my ophthalmologist. What I would like to stress is, since the 2 Rheumatologists didn't think it was a rheumatoid disease, why didn't they- as specialists- ask themselves "WHAT ELSE COULD IT BE?" No such luck. Left to wander around since 2008 until I got double vision.
Has no one had a Muscle Biopsy. I had one on August 25 of 2025 and still waiting for results. It is now Nov 12,2025.
, please reach out to your doctor and keep following up for your results. 4-6 weeks would be more than enough time to get your results and it's been a lot longer than that. Sending good vibes! Chelley (Team Member)
It is true that after
many many wrong diagnosis finally it get diagnosed after double vision. In my i was suffering from the age 7, but after many wrong diagnosis/treatment, I was diagnosed in 2007 at the age 45. I now do eye movement and able to open my eyes betterI had my diagnosis very quickly to because I too started with the droopy eyelid. I went to my Optomotrist to a specialist to a Neurologist and by taking a blood test they found it right there. I also was having numbness in my tongue and difficulty speaking.
I am so sorry to hear of the confusion that you had to deal with, as in my case my eyes were dropping, and so I was sent for an eye lift. The eye surgeon who was a young fellow who just got certified and had done a rotation with a Nero Doc
He looked at my eyes and said You don't need an eyelift, you have MG " and sent me for the blood tests, and that's where my MG journey began.
So there are some good ones among the many who practice medicine.
take care
joe
