How do you prepare for travel?...Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini trip. So I was just wondering for everyone...Reactions0reactionsComments0 repliesGeneralized MGTravelTips & Advice
How did your MG diagnosis affect you emotionally?...How did your MG diagnosis affect you emotionally? It can be incredibly challenging to cope with a diagnosis of Myasthenia Gravis (MG) emotionally. Understanding and coming to terms with the...Reactions0reactionsComments0 repliesDiagnosisCopingDepression
My Myasthenia Gravis Awakening...In this article I describe how I grappled with the emotions of learning that I had an incurable disease and how I was motivated to confront and overcome what I...Reactions0reactionsComments8 comments
What changes have helped you feel more fulfilled as you navigate MG?...Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate MG?...Reactions0reactionsComments9 replies
what are things that cause a flare up...I have flare ups that come on quickly. Arms and neck pain and weakness. Ice packs help and Advil....Reactions0reactionsComments3 replies
Tips for sinus issues ...What medication to take for sinus issues...Reactions0reactionsComments2 replies
Pregnancy...I’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...Reactions0reactionsComments1 repliesAwareness
Using Azathioprine long term for MG...Was diagnosed with MG at 65… Started with Mestinon and Prednisone. Ocular only..for 4 years took Pyridostigmine maybe twice a year mild flare ups. (Off prednisone) I am 73 now...Reactions0reactionsComments0 replies
June is MG Awareness Month! Let’s Be Proactive!...June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making sure the people we reach understand the challenges...Reactions0reactionsComments2 comments
What is your experience with mestinon for treating OMG?...Can you tell me whether anybody had a positive effect of mestinon for OMG?...Reactions0reactionsComments4 repliesOcular MG
Alcohol and cellcept immunosupresant...Alcohol and cellcept. Immunosuppresant...Reactions0reactionsComments1 replies
Exposed to Agent Orange During the Vietnam War and Developed Myasthenia Gravis, or Your Children?...Were you exposed to Agent Orange during the Vietnam War? Do you or your children have Myasthenia Gravis? Many individuals suspect that Agent Orange may have caused their development of...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedWork & Employment
feeling dizzy when walking...My 75 year old mother has been living with MG for the last 8 years. She has had the themectomy, which hasnt relieved her symptoms. she also has a bit...Reactions0reactionsComments2 repliesMuscle Weakness
MG with a colostomy...I am wondering if anyone has an ostomy of any kind? I am having a permanent Colostomy with rectum removed in 5 days. It will be a 4–6-hour surgery. And...Reactions0reactionsComments2 repliesCoping
MG and dropped head ...Hi all! I wanted to ask if anyone has had any experience with a dropped head because of MG? I’ve only been on Mestinon for 2 weeks but see no...Reactions0reactionsComments2 repliesAutoimmune Diseases
MG with lupus sle...Was just diagnosed with lupus sle. Already so limited on with MG how do I manage meds and everything with lupus and rhumathoid arthritis? Also getting ready to go to...Reactions0reactionsComments3 repliesAutoimmune Diseases
Vyvgart Side-Effects and Adverse Reactions...We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
Join the Conversation: 5 Forums on Myasthenia Gravis Treatment...The forums section of Myasthenia-Gravis.com is a place to read conversations, start discussions, and connect with others about myasthenia gravis (MG). Many community members use these forums as a place...Reactions0reactionsComments1 comments
Can i have nicotine on imuran...Hi everyone! I’ve been diagnosed with MG since 2021 and have been on mestinon since then. Last week i had my checkup and they decided to put me on imuran...Reactions0reactionsComments2 repliesTips & Advice
Seronegative/chemical/toxin exposure ...Recently it has come out that there was a company less than a mile away from where I grew up that was dumping toxic chemicals. Many people have had cancer...Reactions0reactionsComments1 repliesSeronegative
