Prisms...I live in rural France and have ocular myasthenia gravis. My eyes are getting worse and the ophthalmologist here cannot get the...reactionsrepliesOcular MG
Empowering Patients: The Quest for Information and Better Treatment in MG...Advertisementwistia-player[media-id='ykfidath7p']:not(:defined) { background: center / contain no-repeat url('https://fast.wistia.com/embed/medias/ykfidath7p/swatch'); display: block; filter: blur(5px); padding-top:56.25%; }Key Takeaways: In recent years, a significant shift has...reactionscomments
Patient Perspectives on Misunderstanding and Stigma in MG...Key Takeaways: People living with myasthenia gravis (MG) frequently face unique challenges, particularly concerning misunderstanding and stigma. Gaining insight into these lived...reactionscomments
Suggestions for ocular mg...I was diagnosed with ocular mg 5 years ago. Everything was under contro untill 6 months ago and I had a flare...reactions3repliesCoping
Reset activities...What do you do to Reset? For me, it depends on my symptoms. I am very fatigued at the moment while fighting...reactionsrepliesCoping
Vitamin D and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition. When you have an autoimmune condition, your immune system cannot tell the difference between invaders...reactions3comments
Refractory AChR+ gMG Flares: How Long Can They Last?...Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away...reactionsrepliesGeneralized MGMuscle WeaknessRefractory MG
new medicine...Hi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are...reactionsrepliesSide EffectsTreatment
Can myasthenia gravis affect the eyes, and is it linked to conditions like glaucoma, cataracts, or dry eye?...Yes, myasthenia gravis often begins with eye-related symptoms such as drooping eyelids (ptosis) and double vision. Because it affects muscle control, it...reactionsrepliesAwarenessTips & Advice
Drug pyridostigmine 180MG ...Hard to fine pyridostigmine 180mg at pharmacies. When will it be available?...reactions3replies
Eye Health: 3 Questions...Are vision changes caused by: MG, Steroid Use or Age Related ? or a combination of all three ? Has anyone ever...reactions4repliesOcular MG
Acute MG Attacks...I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my...reactionsreplies
MG with Shingles...Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i...reactionsreplies
ultimaris - Anyone taking it ? How do you feel after ...Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work...reactionsreplies
Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle......Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in...reactionsrepliesAwareness
Neurologist concerns? I have them....I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision...reactions8repliesGeneralized MGMuscle WeaknessSymptoms
Actively Recruiting Myasthenia Gravis Clinical Trials...Key Takeaways: Several clinical trials are currently enrolling participants with generalized myasthenia gravis (gMG) and ocular myasthenia gravis (OMG), exploring various mechanisms...reactionscomments
Differential Diagnosis of Myasthenia Gravis: Ruling Out Mimickers...Key Takeaways: While the hallmark symptoms of myasthenia gravis (MG) are fatigue and weakness, often affecting ocular, bulbar, facial, and limb muscles...reactionscomments
Myasthenia Gravis: The Road to Individualized Treatment...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by muscle weakness and fatigue that worsens after activity and...reactionscomments
Vaccinations and Myasthenia Gravis: Current Recommendations...Key Takeaways: Vaccination is a critical aspect of healthcare for all individuals, and it holds particular importance for patients with myasthenia gravis...reactionscomments
