Understanding Non-apparent Disabilities in the Workplace...About 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an invisible disability, the decision...reactions1comment
On a scale of 1-10, how much were you able to participate in holiday activities this year?...On a scale of 1-10, how much were you able to participate in holiday activities this year?...reactions6repliesSymptomsFriends & FamilyCoping
symtoms...Does anyone get numbness any where on there body? Also does just one side of your body become effected? In June of this year I had a face droop on...reactions1replySymptomsSleep
Fever blisters...Does anyone else get clusters of fever blisters during severe heat? I get sudden sweat diwnpoars over my head, face and entire body. The weakness overwhelms me so that I...reactions2replies
Cured?...My husband was diagnosed with MG two years ago. This past summer, a different doctor determined that "the patient doesn't have MG". Is this possible? His neurologist retired and we...reactions2repliesDiagnosisRemission
What Is a Pain Management Specialist? Should I See One?...About 50 million people in the United States live with chronic pain, meaning their pain is long-term. Chronic pain can come and go or be constant. It can interfere with...reactionscomments
MG and Eastern Medicine Practices...It was a cold day in January 2022 when I fell while walking my dog. She was a pup at the time, so it made no sense to me that...reactions2comments
Hi, my name is Ed. I was recently diagnosed with OMG. ...Since I have only been dealing with double vision for 3 1/2 months, I am trying to get information on treatment options and folks with similar symptom's. I have had...reactions2replies
Do You Experience Muscle Spasms and Cramping?...As we know, there are many symptoms associated with myasthenia gravis, and the severity of those symptoms vary from person to person. With that being said, do you experience muscle...reactions10repliesTips & AdviceSymptoms
What to Do If You Have a Medical Emergency While Traveling Abroad...Traveling abroad is a lot of fun, but getting sick while traveling can put a damper on your trip. People with myasthenia gravis (MG) can face unique – even life-threatening...reactions1comment
Not sure what are flate ups...What is flare ups,how do you know I'm totally confused with Myasthenia gravis...reactions1replyAwareness
Who has had Complete respiratory failure with no warning?...Feb 2024 I had to have a colostomy , the next day , without shortness of breath preceding , I just stopped breathing completely nothing in or out! had the...reactions1reply
Empowering Affirmations for Navigating Life with Myasthenia Gravis...Living with a chronic illness can be challenging, both physically and emotionally. I've found that speaking to myself kindly and positively helps counteract negative doubts and worries. Affirmations can immensely...reactions1comment
The Challenges of Myasthenia Gravis and Life Beyond...In 2015, my left eye began to droop until it eventually closed. At first, I thought I had a mild stroke, but when I went to my eye clinic, the...reactions11comments
Cold weather...Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...reactions12repliesTips & AdviceSymptoms
Reclaiming Life with Generalized Myasthenia Gravis...Hi all! I am a 53 year old Indian Army veteran. I was diagnosed with seropositive Generalized Myasthenia Gravis (GMG) in Feb 2022. In July of 2023, I had had...reactions2comments
INSOMNIA...What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist refuses to prescribe anything. Feel it compromises breathing...reactions7repliesSleep
Changes in Facial Expression With Myasthenia Gravis...The autoimmune condition myasthenia gravis (MG) may cause changes in a person’s facial expressions. These changes are especially noticeable around the eyes and mouth. In severe cases, the changes can...reactionscomments
Cuvitru vs Vivgard...Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each....reactions4replies
