Myasthenia Gravis ...Suffering from MG for 7 year's from 2017, first symptoms was drupping eyelid then test MRI...report was okay, CT scan Thorax is okay, it was found blood test of ACH...Reactions0reactionsComments1 replies
The Order My MG Symptoms First Appeared...For many individuals with myasthenia gravis (MG), their symptoms appear slowly over years before they finally get answers to their suspicions or start to realize there may be a condition... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments2 comments
Has anyone's doctors suggested these?...Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...Reactions0reactionsComments1 repliesTreatment
MG Awareness Month 2024 Giveaway...The MG Awareness Month Giveaway is now closed. Thank you for your interest! June is Myasthenia Gravis (MG) Awareness Month, and here at Myasthenia-Gravis.com, we're honoring our wonderful community during... By Myasthenia-Gravis.com Team1 min readBookmark for laterReactions0reactionsComments9 comments
MG Awareness Month Forum!...What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....Reactions0reactionsComments75 repliesAwareness
Effects of MG on My Singing and Speaking Voice...I have talked with a few people about how myasthenia gravis (MG) has affected their voice - their singing voice in particular. It has affected mine, too. MG impacts the... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments2 comments
Thymectomy...Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year or more recent. I'm having my appointment with...Reactions0reactionsComments2 repliesSurgeryThymectomy
MG in the media...Feeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...Reactions0reactionsComments3 repliesAwareness
Ptosis...The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...Reactions0reactionsComments2 replies
Feels like electric shocks...I'm tired, but I push on. Just recently I have been getting sensations like electric shocks, going through some of my toes. It doesn't last long. Just a few seconds...Reactions0reactionsComments2 replies
Neonatal MG and precautions taken by birth team and throughout pregnancy...For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...Reactions0reactionsComments0 repliesAwarenessTips & AdviceTreatment
Parenting While Managing a Chronic Illness...Parenting can be incredibly rewarding. However, parenting is hard. Both parents and children are human, and there is no guidebook to raising a child. New trends, current research, and comparison... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Eye brow droop ...Does anyone get eyebrow droop with ocular mg especially when hot and certain types of lighting?...Reactions0reactionsComments1 replies
I have Mystaina Gravis but I really don't know what the symptoms ...I was diagnosed with Mystaina Gravis in 2018 along with Lupus , Rhumitoi Arthritis, Neuropathy, fibromyalgia, I had my Thyroid Radiated and other Autoimmune problems and I have Ceszers I...Reactions0reactionsComments1 replies
Tips for Finding a Therapist To Help Navigate Life With MG...I have seen many therapists throughout my life but have never had luck finding one with whom I truly connected and saw improvement. Once myasthenia gravis (MG) came into my... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments0 comments
MG and weight loss medication...If you have MG, are there risks taking the popular drugs for weight loss and A1C like Ozempic, Mounjaro, etc?...Reactions0reactionsComments3 repliesTips & Advice
Myasthenia gravis and adverse reaction to the meningococcal vaccine?...Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...Reactions0reactionsComments0 repliesTreatmentAwarenessRefractory MG
MG Treated with Steroids Induced Type 2 Diabetes?...Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq? ...Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo? ...Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
