"Wrong" Diagnosis for Years?...I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists...reactions8replies
I V ports...I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have...reactionsreplies
CAR T Cell therapy or UCAR T cell therapy...My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter...reactions1replyTreatmentRefractory MGHealthcare Team
Hear+Now: An AI-Powered Audio Digest - The Importance of Vaccinations for MG Patients...Vaccinations play a critical role in safeguarding the health of individuals with Myasthenia Gravis (MG). Due to their compromised immune systems, often...reactionscomments
Cold water therapy ...I have recently started cold water therapy in our plunge pool.( It's winter here). I actually have a positive response after i...reactionsreplies
Do positive blood tests later show no sign of gMG?...My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after...reactions1replyGeneralized MG
Newly Diagnosed OMG...I initially just had Ptosis, e which began in January of this year. My 16 and a half year old heart dog...reactionsrepliesOcular MG
Severe Back Pain ...I am considering going to a physiatrist to get a steroid injection in my spine. Has anyone had any such injections and...reactions2replies
Myasthenia-gravis ...I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I...reactions2repliesDrivingAutoimmune Diseases
Micro cap mushrooms for better face control on MG...I have had MG for 18 months. I am a 70 year old male. On cellcept, Mestinon and recently stopped taking a...reactionsreplies
Occular MG...My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the...reactions6repliesAutoimmune DiseasesNewly DiagnosedOcular MG
Summer ...Hi everyone, I got diagnosed last fall and this is my first summer in Northern Nevada with MG. Heat Intolerance and trouble...reactions1replyAwareness
Assessing MG Patients’ Meningococcal Vaccine Status...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating weakness of voluntary muscles. Management often involves immunosuppressive...reactionscomments
Managing MG in Special Populations: Children, Pregnant People, and the Elderly...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating muscle weakness and fatigue. MG can affect people...reactionscomments
Advice/comments for new MG diagnosis and possible treatments...This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis...reactions11repliesGeneralized MGNewly DiagnosedTips & Advice
Sipping water in between bites of food...Sipping water with a slice if lemon or lime in between bites helps swallowing the food...reactionsreplies
LRP4 Question...I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and...reactionsrepliesTreatmentTypesGeneralized MG
What household tasks are difficult for you?...What household tasks are difficult for you because of your MG?...reactions139repliesCoping
LLLT...Does low level laser therapy help to supplement medication in MG. It was suggest I go for a course. I have ocular...reactions1reply
What is your Win of the Day?...Living with MG can be challenging. Let's celebrate all the wins, big or small. What is your WIN of the DAY?...reactionsrepliesMental Health
