Hi, my name is Ed. I was recently diagnosed with OMG.
Since I have only been dealing with double vision for 3 1/2 months, I am trying to get information on treatment options and folks with similar symptom's. I have had intermittent double vision for 3 months but since 12/5/24 it has been continuous, 24-7. Currently being seen by a Neuro Ophthalmologist and a neurologist. Being treated with 60 mg pyridostigmine, 4 times a day. Not really happy with results so far but will give it a while. I was told that blood test Acetylcholine Recep Blocking AB value 20 and Acetylcholine Recep Binding AB value 0.61 pointed to OMG, so that's what I'm being treated for. I am researching other treatments mentioned in your forum which I find really interesting and very informative. Thanks for any help you can provide.
Both Pyridostigmine and Prednisone worked to correct my double vision issues, driving while seeing 2 cars and 2 lanes going off in different directions was a bit unsettling. I had double vision for about a week before I went to see the Dr hoping it would go away. My AB level was much lower, at 7, so what worked for me may not be as effective for you. I am still pretty new to this, as I have only had MG for about 3 months. Hope you find something that works.
Welcome! We’re excited to have you in our community. It’s great to have you with us! I'm really sorry to hear about your experiences with double vision and the challenges you've been facing for the past few months. It's good that you're under the care of a Neuro Ophthalmologist and a neurologist, and I hope they can help you find a treatment that works better for you soon. It sounds like you're proactively seeking information and exploring different treatment options, which is excellent. Here are some discussions and articles that I think will be beneficial for you: https://myasthenia-gravis.com/forums/ocular-mg-which-treatment-has-worked-best-for-you, https://myasthenia-gravis.com/clinical/prism-glasses, https://myasthenia-gravis.com/forums/ocular-mg-5, https://myasthenia-gravis.com/forums/ocular-myasthenia-gravis-3, https://myasthenia-gravis.com/clinical/ocular-progression, https://myasthenia-gravis.com/living/vision-difficulties Jodi, Team Member
