Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each.
AllenL Member
Thanks for the response. Good luck with the Vyvgart. It is worth pursuing. I was in a trial for Vyvgart and it worked very well.
CommunityMember2c29f6 Member
Keep trying with Medicare . There are also organizations that can help you get funding. Vyvgart staff can assist you with a personal case manager to help. They have been wonderful. Vyvgart for me has been great. Sometimes I don't even feel sick. That is until I try to go up steps. But it is getting better.
Oops3 Member
Medicare won’t let me use Vyvgart as it would be off label. And expensive. And Cuvitru is a new one to me. I’ll have to research that one! Hope you’re doing well
Jess.Hall Community Admin
Hi just in case it may be helpful I shared a link to some information on managing health costs - https://myasthenia-gravis.com/resources-cost. Wishing you well. -Jessica (Team Member)