Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each.
AllenLMember
Thanks for the response. Good luck with the Vyvgart. It is worth pursuing. I was in a trial for Vyvgart and it worked very well.
CommunityMember2c29f6Member
Keep trying with Medicare . There are also organizations that can help you get funding. Vyvgart staff can assist you with a personal case manager to help. They have been wonderful. Vyvgart for me has been great. Sometimes I don't even feel sick. That is until I try to go up steps. But it is getting better.
Oops3Member
Medicare won’t let me use Vyvgart as it would be off label. And expensive. And Cuvitru is a new one to me. I’ll have to research that one! Hope you’re doing well
Jess.HallCommunity Admin
Hi just in case it may be helpful I shared a link to some information on managing health costs - https://myasthenia-gravis.com/resources-cost. Wishing you well. -Jessica (Team Member)