Here is when my symptoms started even thought I had no idea what was happening...Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...reactions7repliesGeneralized MG
Here is where ...Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...reactionsreplies
anyone tried injectable Vyvgart Hytrulo?...my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general body MG with still lingering effects from ocular...reactions9replies
Have you noticed any toe changes like curling or stiffness?...Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...reactions1replyAwarenessSymptomsSide Effects
Older vs newer more targeted therapies...What are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan ) or FcRn (vygart or rystiggo/rozanolixumab). If this was...reactionsreplies
Delayed memory response ...Hi, firstly I am very grateful to be a part of the MG support group. Having others share their experiences has made me feel a whole lot better about my...reactions1reply
Hospital Visit for Cardiologist...Well been in and out of hospital and a&e but this time I had been in hospital for about 5 days and I was waiting to see the cardiology doctor...reactions1reply
Living with someone who has MG...My husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had thymectomy and put on Pyridostigmine then after 2...reactions3replies
Mr Tony Arnold...The first time that I realised something was wrong was when I heard a colleague fall off of his heavy goods wagon whilst loading it. I shouted for help but...reactions3replies
Accountant with OMG...Just diagnosed this year with Occular MG. As an accountant my eyes are very important to me. I already find myself working considerably slower. It is taking along time to...reactions1reply
Doing Great…..except for my feet!...I was diagnosed in 2021 just about a month after my first covid vaccination. My Neurologist is managing the illness very well with mestinon and cellcept. I feel very fortunate...reactions1reply
Constant Recurrence...I have still a hard time on occasionally right eyelid dropping, itching with astigmatism especially during driving, double vision is quite okay now after taking Prednisone 5 mg in addition...reactions1reply
Embracing Movement: My Personal Journey with Adaptive Yoga...Living with myasthenia gravis (MG) can make us question our physical limits. When the body feels heavy or uncooperative, even the smallest movements can feel daunting. For a long time...reactions1comment
How are folks able to tolerate Mestinon (Pyridostigmine)?...The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks to try so I can get back on...reactions2repliesOcular MG
Loss of appetite...I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...reactions1replyCopingAutoimmune Diseases
Newly diagnosed...I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...reactions3repliesNewly Diagnosed
Prednisone problems...Hello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get out of bed. My doctor told me Never...reactions1reply
Outsmart MG...Neck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body went one way and my neck pretty much...reactions2replies
Coping With an MG Crisis...I was diagnosed with MG in July of 2015 at age 66 probably had it longer but never starting having difficulty with seeing, breathing and eating etc. until then. After...reactions1comment
17 years with MG...My story starts with double vision. While exercising, I would get double vision. When I would rest, it would go away. One day it was so bad I went to...reactions1comment
