Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo? ...Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rituxan (Rituximab) users and past users, how has your experience been with Rituxan? ...Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? ...Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...Reactions0reactionsComments0 repliesTreatmentRefractory MGTips & Advice
Struggling with Constipation?...Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...Reactions0reactionsComments1 repliesAwarenessTreatmentTips & Advice
Unsuccessful Prednisone Taper...Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Cellcept side effects...Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...Reactions0reactionsComments3 repliesSide Effects
Similarities Between My MG and Thyroid Disease Symptoms...I was diagnosed with myasthenia gravis (MG) and hypothyroidism (underactive thyroid) during the same hospitalization. Hypothyroidism occurs when the thyroid does not make enough thyroid hormone. Some studies suggest that... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
Caffeine and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition. This means it is caused by an overactive immune system. MG typically causes muscle weakness that worsens after activity. Many factors can make... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments15 comments
Losing My Voice...I'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...Reactions0reactionsComments0 repliesSeronegativeSpeech
Hand swelling and tingling ...I am in the middle of an MG Crisis. In 10 Days I will start my second series of Vyvgart. I am wondering if anyone has had hand swelling and...Reactions0reactionsComments4 repliesGeneralized MG
Mestinon in NYC...Hi all, I’ve been prescribed Mestinon 60mg and I’m having trouble finding it at any pharmacy. Walgreens has none in stock in the whole of NYC. Any advice on finding...Reactions0reactionsComments1 replies
Fearing I Will Make the Wrong Healthcare Decisions...Chronic disease predisposes those of us with myasthenia gravis (MG) to chronic worry. We rely on MG treatments to keep our symptoms under control, but we may also rely on... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments0 comments
Do you experience worse MG symptoms during menstruation (your period)?...During the menstruation phase of your menstrual cycle (period), do you experience aggravated MG symptoms? Does anything provide you some relief?...Reactions0reactionsComments3 repliesAwarenessTips & AdviceTriggers
Why Doctor-Patient Communication Is Important in MG...Sixteen years ago, I was diagnosed with myasthenia gravis (MG). Before the MG diagnosis, I didn't need to check with anyone about medical treatments provided by another doctor. However, I... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
What Is a Barium Swallow Study?...Myasthenia gravis (MG) generally causes muscle weakness. In some cases, MG can affect a person’s ability to swallow. Swallowing involves several muscles, and MG may cause those muscles to get... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Tips for breathing...Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which happens every so often to me. What do...Reactions0reactionsComments4 repliesGeneralized MG
What was the first treatment your doctor prescribed for MG?...Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....Reactions0reactionsComments138 replies
Symptoms: shakiness?...One of my most irksome symptoms is extreme shakiness, especially in my hands, but occasionally through my whole body. I’ve been surprised that there haven’t been others complaining about shakiness...Reactions0reactionsComments4 replies
Shaking, Spasms, and Misdiagnoses...Myasthenia-Gravis.com Health Leader Sally Farrier experienced several misdiagnoses before finally being diagnosed with myasthenia gravis (MG). Throughout the years, she has experienced a range of symptoms – including muscle spasms... By Myasthenia-Gravis.com Team2 min readBookmark for laterReactions0reactionsComments3 comments
How to Find Relief from Nightly Leg Cramps...There are many online discussions and articles concerning nightly leg cramps with myasthenia gravis (MG). When people ask how to manage cramping, a few things are recommended in the comments... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments19 comments
