Have all of the symptoms of MG but every test coming back negative so far!...I would greatly appreciate your help! I have been having symptoms of Generalised MG and am now in a wheelchair 90% of the time. I am off work, have been...Reactions0reactionsComments2 repliesGeneralized MGDiagnosisTips & Advice
Birth Control and Myasthenia Gravis...Have you been on birth control for the entire time you had MG, or did you stop or start birth control while having MG? How does birth control affect your...Reactions0reactionsComments0 repliesTips & AdviceNewly DiagnosedAwareness
Myasthenia gravis problem...Self at 69, In October 2023, noticed that my right eye lid has closed half and does not open After diagnosis my eye nerve to musle contact has become weak...Reactions0reactionsComments1 replies
In remission...I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe swelling of legs ankles and feet so with...Reactions0reactionsComments1 replies
Stress a massive factor....I was diagnosed nearly 18 months ago and ,wow,how it has changed my life. Not knowing how I would cope, financially worried as I had to leave my job. But...Reactions0reactionsComments1 replies
Focusing and concentration problem...I have noticed the disease for two months (MG) but it's not just my muscles ! I feel less focuse and can't concentrate as easy as before ! And it's...Reactions0reactionsComments4 replies
Ptosis question ...The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...Reactions0reactionsComments0 replies
Recently diagnosed...Just have been diagnosed with MG a month ago. Having a lot of trouble sleeping at night and saliva at nite keeps me awake. Has anyone had any experience with...Reactions0reactionsComments0 replies
Childhood Memories ...Hello all. I am 40 years old and have had MG since 1989, when I was 6 years old. I was the youngest case of MG to be diagnosed in...Reactions0reactionsComments2 replies
Misunderstood...Even Doctor's that seem to think they know how to handle this disease are often perplexed. They ask me things like the next time it gets bad go to the...Reactions0reactionsComments1 replies
Myasthenia Gravis ...Suffering from MG for 7 year's from 2017, first symptoms was drupping eyelid then test MRI...report was okay, CT scan Thorax is okay, it was found blood test of ACH...Reactions0reactionsComments1 replies
The Order My MG Symptoms First Appeared...For many individuals with myasthenia gravis (MG), their symptoms appear slowly over years before they finally get answers to their suspicions or start to realize there may be a condition...Reactions0reactionsComments2 comments
Has anyone's doctors suggested these?...Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...Reactions0reactionsComments1 repliesTreatment
MG Awareness Month 2024 Giveaway...The MG Awareness Month Giveaway is now closed. Thank you for your interest! June is Myasthenia Gravis (MG) Awareness Month, and here at Myasthenia-Gravis.com, we're honoring our wonderful community during...Reactions0reactionsComments9 comments
MG Awareness Month Forum!...What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....Reactions0reactionsComments75 repliesAwareness
Effects of MG on My Singing and Speaking Voice...I have talked with a few people about how myasthenia gravis (MG) has affected their voice - their singing voice in particular. It has affected mine, too. MG impacts the...Reactions0reactionsComments2 comments
Thymectomy...Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year or more recent. I'm having my appointment with...Reactions0reactionsComments2 repliesSurgeryThymectomy
MG in the media...Feeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...Reactions0reactionsComments3 repliesAwareness
Ptosis...The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...Reactions0reactionsComments2 replies
Feels like electric shocks...I'm tired, but I push on. Just recently I have been getting sensations like electric shocks, going through some of my toes. It doesn't last long. Just a few seconds...Reactions0reactionsComments2 replies
