Diet...I'm interested if anyone with mg has tried a hyper nutrition program for autoimmune.? Just nutrition from food. Mainly raw dark greens...reactionsrepliesDiet & Nutrition
Treatment ...I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended...reactions3repliesTreatment
Incontinence...My doctors don't respond when I mention this symptom. I believe they assume it is just old age (I'll be 80 years...reactions1reply
How I find hope!...For anyone who believes in the Bible did you know there are verses that brings up my gMG symptoms. (When my neck...reactionsrepliesCoping
How does Myasthenia Gravis affect eye health, and why are regular eye exams important for people with this condition?...Myasthenia Gravis often affects the muscles that control eye movement and eyelids, leading to symptoms like drooping eyelids (ptosis) and double vision...reactions1replyAwareness
My child has eye issues from Myasthenia Gravis, drooping eyelids and vision problems. Has anyone else’s child faced this too?...Yes, my child went through something similar;Droopy eyelids and occasional double vision were tough. What helped us was a combination of rest...reactions1replyAwareness
Weight loss...Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...reactionsrepliesSide Effects
Muscle cramping and pain...I wish my phy. would have warned me about muscle "flares" where many muscles cramp at once. I had no idea, it...reactions5repliesSymptoms
Survey RE. Agent Orange...I had heavy exposure to ancient orange, stateside, and wound up with prostate cancer. None of my family members that I know...reactions1replyFriends & Family
Prisms...I live in rural France and have ocular myasthenia gravis. My eyes are getting worse and the ophthalmologist here cannot get the...reactionsrepliesOcular MG
Empowering Patients: The Quest for Information and Better Treatment in MG...Advertisementwistia-player[media-id='ykfidath7p']:not(:defined) { background: center / contain no-repeat url('https://fast.wistia.com/embed/medias/ykfidath7p/swatch'); display: block; filter: blur(5px); padding-top:56.25%; }Key Takeaways: In recent years, a significant shift has...reactionscomments
Patient Perspectives on Misunderstanding and Stigma in MG...Key Takeaways: People living with myasthenia gravis (MG) frequently face unique challenges, particularly concerning misunderstanding and stigma. Gaining insight into these lived...reactionscomments
Suggestions for ocular mg...I was diagnosed with ocular mg 5 years ago. Everything was under contro untill 6 months ago and I had a flare...reactions3repliesCoping
Reset activities...What do you do to Reset? For me, it depends on my symptoms. I am very fatigued at the moment while fighting...reactionsrepliesCoping
Vitamin D and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition. When you have an autoimmune condition, your immune system cannot tell the difference between invaders...reactions3comments
Refractory AChR+ gMG Flares: How Long Can They Last?...Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away...reactionsrepliesGeneralized MGMuscle WeaknessRefractory MG
new medicine...Hi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are...reactionsrepliesSide EffectsTreatment
Can myasthenia gravis affect the eyes, and is it linked to conditions like glaucoma, cataracts, or dry eye?...Yes, myasthenia gravis often begins with eye-related symptoms such as drooping eyelids (ptosis) and double vision. Because it affects muscle control, it...reactionsrepliesAwarenessTips & Advice
Drug pyridostigmine 180MG ...Hard to fine pyridostigmine 180mg at pharmacies. When will it be available?...reactions3replies
Eye Health: 3 Questions...Are vision changes caused by: MG, Steroid Use or Age Related ? or a combination of all three ? Has anyone ever...reactions4repliesOcular MG
