Living with someone who has MG

My husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had thymectomy and put on Pyridostigmine then after 2 yrs went to remission. Then boom 10 yrs ago he started having head/ neck aches tiredness and muscle weakness. And yes MG had returned hes now 62 so body not as agile and fit like in his 20s. Put back on Pyridostigmine. Then on to steroids and came of them due to too many side affects. Put on metherexate tablet form sufferd sickness feeling for 2 yrs so started taking injection form once a week and again after few yrs has had to stop .
Body getting weaker managing to work 2/3 days a week we downsized our house to make life easier. After lots of appointments hes now on mycophenolate.

He does struggle daily with simple tasks .
We applied for PIP TWICE refused.
Struggle big time now .lifes not easy to live him as frustration and mood swings appears frequently. I gave up work to be home to help.
Luckily im quite a patient person person so it is what it is .

Be interested to know if any one else on mycophenolate. Medication is ? If so how you getting on.