Neonatal MG and precautions taken by birth team and throughout pregnancy...For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...Reactions0reactionsComments0 repliesAwarenessTips & AdviceTreatment
Parenting While Managing a Chronic Illness...Parenting can be incredibly rewarding. However, parenting is hard. Both parents and children are human, and there is no guidebook to raising a child. New trends, current research, and comparison...Reactions0reactionsComments0 comments
Eye brow droop ...Does anyone get eyebrow droop with ocular mg especially when hot and certain types of lighting?...Reactions0reactionsComments1 replies
I have Mystaina Gravis but I really don't know what the symptoms ...I was diagnosed with Mystaina Gravis in 2018 along with Lupus , Rhumitoi Arthritis, Neuropathy, fibromyalgia, I had my Thyroid Radiated and other Autoimmune problems and I have Ceszers I...Reactions0reactionsComments1 replies
Tips for Finding a Therapist To Help Navigate Life With MG...I have seen many therapists throughout my life but have never had luck finding one with whom I truly connected and saw improvement. Once myasthenia gravis (MG) came into my...Reactions0reactionsComments0 comments
MG and weight loss medication...If you have MG, are there risks taking the popular drugs for weight loss and A1C like Ozempic, Mounjaro, etc?...Reactions0reactionsComments3 repliesTips & Advice
Myasthenia gravis and adverse reaction to the meningococcal vaccine?...Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...Reactions0reactionsComments0 repliesTreatmentAwarenessRefractory MG
MG Treated with Steroids Induced Type 2 Diabetes?...Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq? ...Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo? ...Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo? ...Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rituxan (Rituximab) users and past users, how has your experience been with Rituxan? ...Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? ...Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...Reactions0reactionsComments0 repliesTreatmentRefractory MGTips & Advice
Struggling with Constipation?...Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...Reactions0reactionsComments1 repliesAwarenessTreatmentTips & Advice
Unsuccessful Prednisone Taper...Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Cellcept side effects...Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...Reactions0reactionsComments3 repliesSide Effects
Similarities Between My MG and Thyroid Disease Symptoms...I was diagnosed with myasthenia gravis (MG) and hypothyroidism (underactive thyroid) during the same hospitalization. Hypothyroidism occurs when the thyroid does not make enough thyroid hormone. Some studies suggest that...Reactions0reactionsComments0 comments
Caffeine and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition. This means it is caused by an overactive immune system. MG typically causes muscle weakness that worsens after activity. Many factors can make...Reactions0reactionsComments15 comments
Losing My Voice...I'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...Reactions0reactionsComments0 repliesSeronegativeSpeech
Hand swelling and tingling ...I am in the middle of an MG Crisis. In 10 Days I will start my second series of Vyvgart. I am wondering if anyone has had hand swelling and...Reactions0reactionsComments4 repliesGeneralized MG
