Acute MG Attacks...I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my...reactionsreplies
MG with Shingles...Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i...reactionsreplies
ultimaris - Anyone taking it ? How do you feel after ...Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work...reactionsreplies
Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle......Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in...reactionsrepliesAwareness
Neurologist concerns? I have them....I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision...reactions8repliesGeneralized MGMuscle WeaknessSymptoms
Actively Recruiting Myasthenia Gravis Clinical Trials...Key Takeaways: Several clinical trials are currently enrolling participants with generalized myasthenia gravis (gMG) and ocular myasthenia gravis (OMG), exploring various mechanisms...reactionscomments
Differential Diagnosis of Myasthenia Gravis: Ruling Out Mimickers...Key Takeaways: While the hallmark symptoms of myasthenia gravis (MG) are fatigue and weakness, often affecting ocular, bulbar, facial, and limb muscles...reactionscomments
Myasthenia Gravis: The Road to Individualized Treatment...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by muscle weakness and fatigue that worsens after activity and...reactionscomments
Vaccinations and Myasthenia Gravis: Current Recommendations...Key Takeaways: Vaccination is a critical aspect of healthcare for all individuals, and it holds particular importance for patients with myasthenia gravis...reactionscomments
I feel horrible - maybe detoxing system ?...Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been...reactions1reply
Change in Symptoms...Hello. I have generalized MG for the past 1 1/2 years. For the past 2 months, I get overheated VERY easily from...reactions6repliesCoping
Unusual symptom?...I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years...reactions3repliesGeneralized MG
red blotchy skin color after 5 days of ivig infusion...Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any...reactions5replies
IVIG Infusion for 5 days straight...That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to...reactionsreplies
How long before you were diagnosed?...Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February...reactions4repliesNewly DiagnosedTreatmentTips & Advice
Just had 1st ivig infusion-any success stories?...Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks...reactions2repliesAutoimmune Diseases
Vyvgart Hytrulo journey...I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy...reactions27repliesGeneralized MGAutoimmune Diseases
ivig infusion and back surgery...I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days"...reactions2repliesSurgery
Cellcept induced muscle strains/problems...I started CellCept the end of August, 2024. I write this on 4/9/25 to give you a frame of reference, so I've...reactions1replyMuscle WeaknessExercise
Newly Diagnoses...I have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for...reactionsrepliesAwarenessNewly Diagnosed
