A Flare, an Exacerbation, or a Crisis...When I was first diagnosed with myasthenia gravis (MG), I didn’t know there were levels to symptom severity. I just knew that...reactions9comments
MG and Swimming...It can be very dangerous to swim with MG. If you're legs float up you can't get them back down to stand...reactionscomments
Chronic Fatigue and Breathing Trouble...So over the past couple of years I've been diagnosed first with chronic fatigue, then fibromyalgia. Then last September my GP said...reactions1comment
What Not to Say to Someone With MG...These are variations on things people have actually said to me, in my real life. Please, for the love of all you...reactions34comments
Community Views: Advice For the Newly Diagnosed...Receiving a myasthenia gravis (MG) diagnosis can be a turning point. While you are no longer searching for answers when it comes...reactions2comments
Reclaiming Life With Myasthenia Gravis: Services That Have Helped Me Cope...Living with Myasthenia Gravis (MG) is a bumpy journey that has tested my physical and emotional resilience. Gradually, I have found valuable...reactionscomments
My Life With Myasthenia Gravis...As best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along...reactions14comments
Night Doses of Mestonin...It's nothing new for me to go to bed around 8:30 PM. I'm not usually tired at that time, the problem is...reactions3comments
MG Symptoms: I Shouldn't Need to Explain Myself...I have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just...reactions11comments
I Just Want To Sleep: Insomnia and MG...One of the first symptoms of my myasthenia gravis (MG) was insomnia. The first night it happened, I was not too concerned...reactions35comments
What 3 Factors Worsen Your MG?...What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection...reactions10comments
Living With Myasthenia Gravis...Living with a chronic condition like myasthenia gravis (MG) means living with uncertainty. Your energy levels and muscle strength may change daily...
My Vision Difficulties Because of Myasthenia Gravis...I usually don’t have a lot of myasthenia gravis (MG) symptoms anymore, but I do still have some. One of these symptoms...reactions38comments
Managing Light Sensitivity With MG...They say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should...reactions8comments
How to Thrive With Myasthenia Gravis: Building Community, Practicing Mindfulness, and Empowering Yourself...Community, to me, isn’t about everyone agreeing or seeing eye to eye on everything. It’s about finding common ground, something that unites...reactionscomments
My Experience With COVID...Despite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first...reactionscomments
5 Things I Wish I Knew When I Was Diagnosed With MG...This year marks 10 years since myasthenia gravis (MG) began for me. My official 10 year anniversary of living with this disease...reactions58comments
Lessons Learned from IVIG Therapy for MG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow...reactions34comments
Resolutions and Goal Setting Can Be Intimidating...Here we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how...reactionscomments
What MG Pain Is to Me and How I Deal With It...I know there are many of us with myasthenia gravis (MG) that suffer with muscle pain. I don’t necessarily want to talk...reactions17comments
