Doing Great…..except for my feet!...I was diagnosed in 2021 just about a month after my first covid vaccination. My Neurologist is managing the illness very well with mestinon and cellcept. I feel very fortunate...reactions1reply
Constant Recurrence...I have still a hard time on occasionally right eyelid dropping, itching with astigmatism especially during driving, double vision is quite okay now after taking Prednisone 5 mg in addition...reactions1reply
Embracing Movement: My Personal Journey with Adaptive Yoga...Living with myasthenia gravis (MG) can make us question our physical limits. When the body feels heavy or uncooperative, even the smallest movements can feel daunting. For a long time...reactions1comment
How are folks able to tolerate Mestinon (Pyridostigmine)?...The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks to try so I can get back on...reactions2repliesOcular MG
Loss of appetite...I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...reactions1replyCopingAutoimmune Diseases
Newly diagnosed...I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...reactions3repliesNewly Diagnosed
Prednisone problems...Hello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get out of bed. My doctor told me Never...reactions1reply
Outsmart MG...Neck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body went one way and my neck pretty much...reactions2replies
Coping With an MG Crisis...I was diagnosed with MG in July of 2015 at age 66 probably had it longer but never starting having difficulty with seeing, breathing and eating etc. until then. After...reactions1comment
17 years with MG...My story starts with double vision. While exercising, I would get double vision. When I would rest, it would go away. One day it was so bad I went to...reactions1comment
2024 Has Been Interesting to Say the Least...I am 72 years old, a grandma to 4 kids. I had been mildly incontinent for several years, and in March I suddenly became severely incontinent requiring the use of...reactions6comments
Living with MG since March 2024...Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery now but it's have been up and down...reactions1reply
7 Tips for Living Alone with Myasthenia Gravis...When when I was living alone with myasthenia gravis (MG), I encountered many challenges. Although I only took on this endeavor after my symptoms were somewhat under control with treatment...reactions6comments
IVIG Treatment Symptoms ...Hi friends, so I wondered if anyone else had an odd reaction to IVIG. A few days afterward all of my weakness symptoms are a lot less. The one symptom...reactions9repliesOcular MG
Cataracts ...I need cataract surgery in my left eye. Has anyone done this and what was the result? I think I have gMG but have some double vision and a LOT...reactionsreplies
Could Quercetin and Zinc supplements cause an overactive autoimmune response that looks like Myasthenia Gravis?...My MG symptoms started after covid, but also after I began taking Quercetin and Zinc supplements....reactionsrepliesTriggersOcular MG
Strategies for Coping With a Rare Disease Like Myasthenia Gravis...When you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have myasthenia gravis (MG), there may be a lack of information...reactions9comments
Difficulty Layering Clothes with Myasthenia Gravis...Having just returned from a chilly adventure up north, I couldn’t help but reflect on how much I take my warm Florida weather for granted. The struggle of layering clothing...reactionsrepliesMuscle WeaknessWeatherTips & Advice
US Presidential Election and MG Healthcare...How are you feeling about future healthcare and MG treatment with a new administration coming into office in January?...reactions2repliesCostInsurance & DisabilityTreatment
Dizziness...Hi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...reactions2repliesCopingSymptomsNewly Diagnosed
