caret icon Back to all discussions

Living with MG since March 2024

Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery now but it's have been up and down trying to balance life style plus tapering of medicine dosage. Make worst when I compare from being a very outdoor and activity person to being not able to do what I love to do previously. Adding burden and stress to family also put me under a lot of stress.
But my family and friends also remind me to stay positive and fight on.. it's going to be a long journey

  1. Welcome to our wonderful community of individuals who share the journey of living with MG. We’re truly glad to have you with us. I completely understand how challenging and overwhelming it can feel at this stage. It’s common to feel as though a part of your sense of self has been lost, but with time and support, things can certainly become more manageable. I believe you might find comfort in some of these articles: https://myasthenia-gravis.com/living/rediscovering-normal, https://myasthenia-gravis.com/living/newly-diagnosed-advice, https://myasthenia-gravis.com/living/new-abilities, and https://myasthenia-gravis.com/living/positive-attributes. Remember, you’re not alone on this journey.
    - Jodi, Team Member

    Please read our rules before posting.