Meds for ocular myasthenia gravis...I developed double vision and a droopy eyelid direction after my 2nd cataract surgery. It took 7 months and 5 providers later...reactions12repliesTreatmentOcular MG
MG Conference ...Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...reactions5repliesAwareness
Ophthalmic Migraine...I was diagnosed with Ophthalmic Migraine (Ocular Migraine). So, my sight fades in my left eye and after maybe 10-20 minutes I...reactionsreplies
How was your MG diagnosed?...I have been struggling with debilitating fatique, muscle weakness and pain for many months. I can't even bring in my own groceries...reactions3replies
How did you feel after IVIG...Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I...reactions11repliesTreatment
Mold Toxicity/Exposure and MG...Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past?...reactionsrepliesTips & AdviceAwarenessTriggers
Steroid-Induced Glaucoma...Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If...reactions2repliesOcular MGTreatmentDriving
Do you have treatment goals?...Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...reactions6repliesTreatmentSymptomsGeneralized MG
IVIG-Octagam...Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if...reactionsreplies
Tips for Finding MG-Accommodating Vacation Activities...When planning a myasthenia gravis-friendly vacation, finding suitable accommodations and attractions may initially seem challenging. However, many parks and attractions offer options...reactions6comments
Tremors and Myasthenia Gravis...Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are...reactions16repliesSymptomsSide EffectsTreatment
The Possibility of Neonatal Myasthenia Gravis After Delivery...I had my third baby over a year ago. I didn’t have myasthenia gravis (MG) during my first pregnancy, but I did...reactions1comment
Knee Pain...Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG)...reactions3repliesCopingTips & AdviceSide Effects
Improving Quality of Life in MG: Targeted Symptom Management Strategies...Key Takeaways: While anti-cholinesterase inhibitors (AChEs) like pyridostigmine (Mestinon®) are often the first-line treatment for managing symptoms of myasthenia gravis (MG), they...reactionscomments
Thymectomy via partial sternotomy ...Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a...reactions1replySurgeryThymectomyTreatment
Two Years of Vyvgart: Progress, Challenges, and Gratitude...When my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the...reactions7comments
One sided symptoms?...Is it possible to just experiment MG symptoms just on one side of your body?...reactions2repliesAutoimmune Diseases
Seronegative ...My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't...reactions3replies
Managing Restless Legs Syndrome and MG...I recently found out my restless legs syndrome (RLS) is more than likely related to myasthenia gravis (MG). If you don’t already...reactions12comments
Myasthenia Gravis ...Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for...reactions8replies
