Medications...Does anyone have experience with medications that exacerbate their condition? I have congenital myasthenia which is genetic and not auto immune, so my experience is probably a bit different than...Reactions0reactionsComments2 repliesGeneralized MG
Pyridostigmine availability...I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions0reactionsComments10 repliesTreatmentCoping
My Vision Difficulties Because of Myasthenia Gravis...I usually don’t have a lot of myasthenia gravis (MG) symptoms anymore, but I do still have some. One of these symptoms has to do with my eyes and vision... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments19 comments
Stress Can Be Good For Us...When living with myasthenia gravis (MG), we often seek a life without stress. Stress can lead to many health conditions and trigger MG symptoms, so it seems evident that having... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
What Percentage of Your Day Is Impacted by MG?...What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...Reactions0reactionsComments2 repliesSymptomsWork & EmploymentMuscle Weakness
Personal Experiences with Mental Health Medications: Navigating the Journey to Wellness...For many individuals managing mental health conditions, medication can be a vital component of their treatment plan. However, the decision to start taking psychiatric medications is often accompanied by questions...Reactions0reactionsComments1 repliesAwarenessDepressionMental Health
T cell treatment for ocular myasthenia gravis...Are there any new treatments available.?...Reactions0reactionsComments0 replies
Pain and Your Emotions...About 1 in 5 Americans lives with chronic pain. Chronic pain is pain that does not go away. Such pain is often caused by chronic health conditions. Pain can impact... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments1 comments
Helpful MG questions...Hi all! I am organising a webinar for people with MG with a leading MG specialist and want to make sure we cover the most important questions and topics. I’d...Reactions0reactionsComments0 replies
Has an MG Treatment Caused You Increased Heart Rate?...Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions0reactionsComments3 repliesTreatmentSide EffectsAwareness
Does Anything Specific Provoke Breathing Difficulty for You?...Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions0reactionsComments1 repliesTriggersSymptomsCrisis
Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?...Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...Reactions0reactionsComments10 repliesTreatmentSide EffectsNewly Diagnosed
How to Navigate Online Ratings of Doctors...Editor's Note: This article was written by Elizabeth Medeiros and originally appeared on our partner site Psoriatic-Arthritis.com. The internet has changed how we've done everything these days, from dating to... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
It's Not Always a Struggle with MG...So far, I’ve mostly written about everything that has been a struggle with myasthenia gravis (MG). However, not everything I’ve experienced has been a struggle. It’s time to talk about... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments4 comments
Is your job/ boss accommodating when your Myasthenia gravis symptoms impact your performance?...Is your job/ boss accommodating when your Myasthenia gravis symptoms start impacting your capability to perform? Are they aware you have MG or just the symptoms you have? Or do...Reactions0reactionsComments1 repliesWork & EmploymentSymptomsNewly Diagnosed
Headaches or migraines as a primary or persistent/main symptom...Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions0reactionsComments8 repliesResearch & Clinical TrialsAwarenessSymptoms
Finding a Support Person for Doctor Appointments...People with chronic health conditions like myasthenia gravis (MG) often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
RUSK myasthenia gravis ...Anyone there with the rare Rusk Mg. Just diagnosed recently. What meds are you on?...Reactions0reactionsComments2 replies
The Ripple Effect of Advocacy: Celebrating Rare Disease Day® and Beyond...As we mark another Rare Disease Day®, celebrated globally on the last day of February, it's a time for reflection on the journey of advocacy, connection, and empowerment that many... By Deborah Vick2 min readBookmark for laterReactions0reactionsComments0 comments
Ocular MG- Botox...My neuro opthamologist suggested botox shots for ptosis and maybe double vision, as well. Has anyone tried this? What was your result?...Reactions0reactionsComments2 replies
