Harder to hold head up...I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my...reactions2repliesWeatherSymptomsTriggers
How do caregivers know the treatment provided by physicians is the best and most correct? ...My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting...reactions4repliesTreatmentTriggersCaregiving
freezing this winter...Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife...reactions1reply
My neck gets so tired and tight....I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so...reactions7repliesMuscle WeaknessAutoimmune Diseases
Colitis-possibly from Prednisone or IVIG...I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with...reactionsrepliesTreatment
I’ve been recently been diagnosed with MG and I am overwhelmed. ...I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....reactions5repliesAwareness
Swallowing-Lungs-kidneys with Myasthenia Gravis ...I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are...reactionsrepliesAutoimmune DiseasesCrisisTips & Advice
Hearing Aids...I have vision problems with MG, now I find out it is the reason I need Hearing Aids....reactions2repliesAssistive Devices
Occular MG moving into generalized...Hi, Diagnosed with MG after double vision and thymoma discovered in 2018. Thymoma was removed and I went on Mestinon. Eyelid improved...reactions1reply
Meds for ocular myasthenia gravis...I developed double vision and a droopy eyelid direction after my 2nd cataract surgery. It took 7 months and 5 providers later...reactions12repliesTreatmentOcular MG
MG Conference ...Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...reactions5repliesAwareness
Ophthalmic Migraine...I was diagnosed with Ophthalmic Migraine (Ocular Migraine). So, my sight fades in my left eye and after maybe 10-20 minutes I...reactionsreplies
How was your MG diagnosed?...I have been struggling with debilitating fatique, muscle weakness and pain for many months. I can't even bring in my own groceries...reactions3replies
How did you feel after IVIG...Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I...reactions11repliesTreatment
Mold Toxicity/Exposure and MG...Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past?...reactionsrepliesTips & AdviceAwarenessTriggers
Steroid-Induced Glaucoma...Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If...reactions2repliesOcular MGTreatmentDriving
Do you have treatment goals?...Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...reactions6repliesTreatmentSymptomsGeneralized MG
IVIG-Octagam...Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if...reactionsreplies
Tips for Finding MG-Accommodating Vacation Activities...When planning a myasthenia gravis-friendly vacation, finding suitable accommodations and attractions may initially seem challenging. However, many parks and attractions offer options...reactions6comments
Tremors and Myasthenia Gravis...Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are...reactions16repliesSymptomsSide EffectsTreatment
