Disoriented Vision: My Struggle with MG...In January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much...reactions7comments
Diet...Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan...reactions2repliesAutoimmune Diseases
Eating with MG...I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps...reactions2repliesGeneralized MG
What’s something you wish your doctor knew about living with MG?...It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are...reactionsrepliesTips & AdviceSymptomsHealthcare Team
How Do You Use Mindfulness to Navigate Myasthenia Gravis?...Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the...reactionsrepliesCrisisDepressionFriends & Family
Is hip pain bothering you?...Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle...reactions2repliesSymptoms
Finding Support in the Unlikeliest of Places...When navigating a complex and often exhausting medical journey, finding support can sometimes feel like searching for a needle in a haystack...reactions4comments
Treatment Question...I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back...reactions23replies
Myasthenia ...My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon)...reactions4replies
Apherisis Poem:Wash, Rinse, Repeat...By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because...reactions1reply
Mestenon treatment for OMG...My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment...reactions4replies
Tips to Master Meal Preparation With Myasthenia Gravis...Meal preparation has been a true challenge both physically and mentally since I was diagnosed with myasthenia gravis. However, I've discovered some...reactions4comments
Living with Uncertainty: My Path to Answers and Healing...In 2022, I noticed that my voice sometimes had a sarcastic tone, which hurt my husband. I kept telling him I wasn’t...reactions11comments
MG Story...Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing...reactions1reply
sleeping positions and finding good books on MG...Diagnosed with MG 10 months ago. Started with Ocular and moved to Ocular with General MG symptoms. Question: Has anyone with MG...reactions1replySleep
traveling with MG...I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled...reactions2repliesTips & Advice
Have you experienced losing your voice?...Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about...reactions4repliesSymptomsNewly DiagnosedCoping
Ptosis Prevents Me from Living My Life...I have ocular, double zero negative myasthenia gravis. I was still competing in swimming until I was diagnosed. I had been struggling...reactions8comments
Living with Myasthenia Gravis in Asheville: A Year of Setbacks and Strength...I’ve now been in Asheville for a year with my cat. We found a place that welcomed both of us, and the...reactions11comments
Unexplained Symptoms that are Not Characteristic MG Symptoms?...What unexplained symptoms do you have that are not characteristic MG symptoms?...reactions4repliesSymptomsNewly DiagnosedAwareness
