Have You Attended an In-Person Myasthenia Gravis Event or Conference?...Have you attended an in-person Myasthenia gravis event or conference? If not, do you have an interest in it?...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedCoping
Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?...Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...Reactions0reactionsComments0 repliesSeronegativeTreatmentInsurance & Disability
What MG Pain is to Me and How I Deal with It...I know there are many of us with myasthenia gravis (MG) that suffer with muscle pain. I don’t necessarily want to talk about how much pain I have, since pain... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments3 comments
Side effects from medications that your doctor wont acknowledge...Have you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...Reactions0reactionsComments1 repliesSide EffectsSymptoms
Flare Ups...Does any one have any experience with Flare ups how often they occur for how long a day week longer. How severe are they...Reactions0reactionsComments2 replies
Coping with MG When You’re Not Religious...Myasthenia gravis (MG) is a unique disease by nature, but it is also a unique perceived experience due to many factors, such as social circumstances, living situations, mental health, financial... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments3 comments
Support Page for Those Age 60 and Older With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 60 and older. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments2 repliesAwarenessTips & AdviceNewly Diagnosed
Support Page for Those Age 50-60 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 50-60. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesNewly DiagnosedTips & AdviceAwareness
Support Page for Those Age 30-50 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 30-50. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedTips & Advice
Support Page for Those Age 20-30 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 20-30. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedTips & Advice
Support Page for Those (And Parents Of) Age 20 and Younger...This is a support page for those and the parents of those with MG 20 or younger. Feel free to share and discuss anything you please that follows our guidelines:...Reactions0reactionsComments0 repliesAwarenessTips & AdviceNewly Diagnosed
VYVGART: Has Your IgG (Immunoglobulin G) Gotten Dangerously Low?...Have you been treated with VYVGART for your Myasthenia gravis, and have your IgG (Immunoglobulin G) gotten dangerously low? Did your doctor have you continue with the treatment or alter...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
Reluctant to diagnose myasthenia gravis...Can anyone please help my neurologist will not acknowledge that 8 have myasthenia even though my antibodies are 205 I also have an intermittent droopy mouth blurred vision breathlessness and...Reactions0reactionsComments2 replies
Has an Infection Triggered Your MG?...Have you ever had an infection that ultimately resulted in, whether caused or not, triggered/worsened Myasthenia gravis symptoms or an MG crisis?...Reactions0reactionsComments0 repliesAwarenessTriggersTips & Advice
Opinion of Your Residing Country's Healthcare/Disability Assistance...Do you think the country you reside in has good healthcare and/or disability assistance? What aspects do you like/dislike? Anything related to Myasthenia gravis would be great to note....Reactions0reactionsComments0 repliesTreatmentWork & EmploymentInsurance & Disability
PLEX or IVIG Complications?...Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...Reactions0reactionsComments3 repliesTreatmentCrisisTips & Advice
Negative Hospital Experience With MG?...Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...Reactions0reactionsComments9 repliesSurgeryAwarenessNewly Diagnosed
Pacing Yourself, Pushing Yourself: Managing Energy With a Rare Disease...Editor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article on my commute train to work, starting another... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments1 comments
Aging Gracefully with Myasthenia Gravis...Myasthenia gravis (MG) has not been studied sufficiently in older adults. But, more and more often, MG is being found in the older population. In fact, my diagnosis came just... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
How to get more rest...Does anyone have advice or tips on getting more rest. If I take a nap in afternoon it is really difficult to sleep that night. Not sure what I shopuld...Reactions0reactionsComments2 repliesNewly Diagnosed
