What can we really do when we need to take antibiotics? Help,help....I have a Uti ,I'm so sick. What to one dr they gave me prescription not the list but it made me sick. I think maybe it is I am...Reactions0reactionsComments3 replies
Finding Relief from the Adverse Effects of Mestinon...I’ve seen and heard many comments about the side effects some people tend to have with Mestinon (pyridostigmine). I think it’s pretty common that these side effects can cause a...Reactions0reactionsComments12 comments
Eye sensations...Since the start of this journey, going on 3 years, I've always noticed a sensation in my eyes. I find it frustrating as I can't put a name to it...Reactions0reactionsComments0 replies
Magnesium Sulfate and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disorder that can cause symptoms like muscle weakness and fatigue. Certain drugs or treatments can make the symptoms of MG worse. Magnesium sulfate is...Reactions0reactionsComments5 comments
MG??...This is the first time I have heard of this. When I was a teenager, I started having trouble swallowing solid or dry foods. A bite of apple, sandwich or...Reactions0reactionsComments1 replies
Anaesthesia...Hi guys, has anyone experienced a serious drop in BP after an anaesthetic? 9 days ago I had serious back surgery and was warned it was going to be very...Reactions0reactionsComments3 replies
Drinking Alcohol With Myasthenia Gravis...Managing an autoimmune condition like myasthenia gravis (MG) involves careful attention to what you put in your body, including alcohol. Making informed choices about how much you drink may change...Reactions0reactionsComments0 comments
Bowel and bladder problems...Please, please do these ever subside & lessen? they're really bad...Reactions0reactionsComments1 repliesCoping
Book Review: "Myasthenia Gravis: The Musical"...Search for a book that discusses the humorous side of myasthenia gravis (MG), and you are likely to come up short. Until now. Earlier this year playwright, author, and actor...Reactions0reactionsComments1 comments
Do You Know Anyone Besides Yourself Who Has Myasthenia Gravis?...Do you know anyone besides yourself (or the person you are here to support) who also has Myasthenia gravis? Do you think MG is more common than statistics say? Possibly...Reactions0reactionsComments1 repliesFriends & FamilyAwarenessNewly Diagnosed
How Often Do You Receive IVIG infusions?...Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...Reactions0reactionsComments1 repliesAwarenessTreatmentSeronegative
Medications...Does anyone have experience with medications that exacerbate their condition? I have congenital myasthenia which is genetic and not auto immune, so my experience is probably a bit different than...Reactions0reactionsComments2 repliesGeneralized MG
Pyridostigmine availability...I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions0reactionsComments10 repliesTreatmentCoping
My Vision Difficulties Because of Myasthenia Gravis...I usually don’t have a lot of myasthenia gravis (MG) symptoms anymore, but I do still have some. One of these symptoms has to do with my eyes and vision...Reactions0reactionsComments19 comments
Stress Can Be Good For Us...When living with myasthenia gravis (MG), we often seek a life without stress. Stress can lead to many health conditions and trigger MG symptoms, so it seems evident that having...Reactions0reactionsComments0 comments
What Percentage of Your Day Is Impacted by MG?...What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...Reactions0reactionsComments2 repliesSymptomsWork & EmploymentMuscle Weakness
Personal Experiences with Mental Health Medications: Navigating the Journey to Wellness...For many individuals managing mental health conditions, medication can be a vital component of their treatment plan. However, the decision to start taking psychiatric medications is often accompanied by questions...Reactions0reactionsComments1 repliesAwarenessDepressionMental Health
T cell treatment for ocular myasthenia gravis...Are there any new treatments available.?...Reactions0reactionsComments0 replies
Pain and Your Emotions...About 1 in 5 Americans lives with chronic pain. Chronic pain is pain that does not go away. Such pain is often caused by chronic health conditions. Pain can impact...Reactions0reactionsComments1 comments
Helpful MG questions...Hi all! I am organising a webinar for people with MG with a leading MG specialist and want to make sure we cover the most important questions and topics. I’d...Reactions0reactionsComments0 replies
