Headaches 24/7
I was Dx with myasthenia 4 months ago and after medication changes, adding pretend medtinon, I have suffered from extreme headaches every morning, last all day, and go to bed wins headache. What is causing the headaches? Is it the disease?
Welcome to our awesome community 😀 We are delighted to have you join us. I'm sorry to hear that you're experiencing such severe headaches. Understandably, you're concerned about their cause. Is mestinon the only MG treatment you are currently on? You may be interested in the following discussions and articles: https://myasthenia-gravis.com/forums/headache-with-mestinon, https://myasthenia-gravis.com/clinical/pain, https://myasthenia-gravis.com/forums/dramatic-changes-in-mg-symptoms-for-the-better. While myasthenia gravis itself can cause headaches in some cases, it's also important to consider the possibility of medication side effects. The addition of new medication may be contributing to your headaches. It's crucial to communicate any new symptoms or changes in your condition to your healthcare team so they can provide you with the best possible care. Be hopeful, as there are many different MG treatments out there 😀 How well controlled have your symptoms been overall with the mestinon?
Jodi, Team Member
