The Possibility of Neonatal Myasthenia Gravis After Delivery...I had my third baby over a year ago. I didn’t have myasthenia gravis (MG) during my first pregnancy, but I did...reactions1comment
Knee Pain...Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG)...reactions3repliesCopingTips & AdviceSide Effects
Improving Quality of Life in MG: Targeted Symptom Management Strategies...Key Takeaways: While anti-cholinesterase inhibitors (AChEs) like pyridostigmine (Mestinon®) are often the first-line treatment for managing symptoms of myasthenia gravis (MG), they...reactionscomments
Thymectomy via partial sternotomy ...Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a...reactions1replySurgeryThymectomyTreatment
Two Years of Vyvgart: Progress, Challenges, and Gratitude...When my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the...reactions7comments
One sided symptoms?...Is it possible to just experiment MG symptoms just on one side of your body?...reactions2repliesAutoimmune Diseases
Seronegative ...My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't...reactions3replies
Managing Restless Legs Syndrome and MG...I recently found out my restless legs syndrome (RLS) is more than likely related to myasthenia gravis (MG). If you don’t already...reactions12comments
Myasthenia Gravis ...Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for...reactions8replies
Disoriented Vision: My Struggle with MG...In January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much...reactions7comments
Diet...Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan...reactions2repliesAutoimmune Diseases
Eating with MG...I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps...reactions2repliesGeneralized MG
What’s something you wish your doctor knew about living with MG?...It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are...reactionsrepliesTips & AdviceSymptomsHealthcare Team
How Do You Use Mindfulness to Navigate Myasthenia Gravis?...Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the...reactionsrepliesCrisisDepressionFriends & Family
Is hip pain bothering you?...Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle...reactions2repliesSymptoms
Finding Support in the Unlikeliest of Places...When navigating a complex and often exhausting medical journey, finding support can sometimes feel like searching for a needle in a haystack...reactions4comments
Treatment Question...I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back...reactions23replies
Myasthenia ...My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon)...reactions4replies
Apherisis Poem:Wash, Rinse, Repeat...By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because...reactions1reply
Mestenon treatment for OMG...My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment...reactions4replies
