MG symptoms ...Does anyone have stiff trunk like legs, where when you stand more than 5 minutes and you can't bend your legs, also toes are stiff and turn under, very painful...Reactions0reactionsComments1 replies
Yoga Doesn’t Cure My Autoimmune Diseases...Editor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. "Oh, you have XYZ disease? Have you tried yoga?" Wow, if I had... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
How do you handle unsolicited advice about MG?...Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions0reactionsComments32 repliesCoping
I Wish Society Was More Community Oriented...In the age of technology and capitalism, most adults live independently of each other. Sure, many of us live with others under one roof. But do we depend on each... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Is the New Year Living up to Your Expectations?...Is the New Year living up to your expectations? Or is it going in a direction you did not wish for? Do you blame MG for holding you back?...Reactions0reactionsComments0 repliesCopingDepressionTips & Advice
How can friends and family best support someone with MG?...How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...Reactions0reactionsComments2 repliesFriends & Family
Pyridostigmine/Mestinon Adverse Reactions...Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
MG and Diabetes...There is a complex link between myasthenia gravis (MG) and type 2 diabetes. The body’s immune system plays a role in both MG and diabetes. Research suggests that people with... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments3 comments
What’s Worse: Drooping Eyelid or Having Eyes Open Thus Blurred/Double Vision More Noticeable?...Common Myasthenia gravis symptoms are the drooping of the eyelids and blurred or double vision, https://myasthenia-gravis.com/symptoms. Have you had treatment improve your eyelid droop, but not your double vision? What...Reactions0reactionsComments0 repliesOcular MGVisionDriving
My Emotions, Stress, and MG...Recently, I had a health crisis. While I was in the hospital, my husband fell and broke his ankle. During most of the time he was healing, we were staying... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments11 comments
What Different Specialists Are In Your Healthcare Team?...What various specialists and doctors make up your healthcare team?...Reactions0reactionsComments2 repliesHealthcare TeamDiagnosisTreatment
Is Your Job MG Friendly?...Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....Reactions0reactionsComments0 repliesWork & EmploymentTriggersSymptoms
Medication & Treatment Side Effects...Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...Reactions0reactionsComments16 repliesSide EffectsTreatment
Will you take our In America survey and help others understand the true impact of MG?...**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...Reactions0reactionsComments1 repliesAwareness
Covid-19 trigger or cause MG? Also, MG and swallowing problems...Hello: I am a 71 year old male. I had covid-19 the first week of January 2022. Immediately, upon recovering from covid-19, I developed double vision. By mid February of...Reactions0reactionsComments2 repliesDiagnosisNewly Diagnosed
Mike Stabile...Mike is retired and living in California. He has a Bachelor of science degree in biology from Cal State University, Fullerton and a Master of Science degree in physiology from... By Editorial Team 1 min readBookmark for later
I Figured Out How to Store My Extra Mestinon...As many of us with myasthenia gravis (MG) know, Mestinon (pyridostigmine) is very sensitive to temperature and humidity. My prescription currently reads 120 milligrams every 3 hours while awake. Now... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
The Gut Microbiome and MG Connection...There are trillions of tiny living things that exist on or in your body. These tiny living things are called microbes because they can only be seen under a microscope... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments4 comments
Intervenes or subcutaneous therapy ...Has anyone been on Rystiggo?...Reactions0reactionsComments3 replies
Does anyone else in your immediate family have MG? ...After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...Reactions0reactionsComments1 repliesFriends & FamilyNewly DiagnosedAutoimmune Diseases
