Has an MG Treatment Caused You Increased Heart Rate?...Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions0reactionsComments3 repliesTreatmentSide EffectsAwareness
Does Anything Specific Provoke Breathing Difficulty for You?...Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions0reactionsComments1 repliesTriggersSymptomsCrisis
Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?...Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...Reactions0reactionsComments10 repliesTreatmentSide EffectsNewly Diagnosed
How to Navigate Online Ratings of Doctors...Editor's Note: This article was written by Elizabeth Medeiros and originally appeared on our partner site Psoriatic-Arthritis.com. The internet has changed how we've done everything these days, from dating to...Reactions0reactionsComments0 comments
It's Not Always a Struggle with MG...So far, I’ve mostly written about everything that has been a struggle with myasthenia gravis (MG). However, not everything I’ve experienced has been a struggle. It’s time to talk about...Reactions0reactionsComments4 comments
Is your job/ boss accommodating when your Myasthenia gravis symptoms impact your performance?...Is your job/ boss accommodating when your Myasthenia gravis symptoms start impacting your capability to perform? Are they aware you have MG or just the symptoms you have? Or do...Reactions0reactionsComments1 repliesWork & EmploymentSymptomsNewly Diagnosed
Headaches or migraines as a primary or persistent/main symptom...Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions0reactionsComments8 repliesResearch & Clinical TrialsAwarenessSymptoms
Finding a Support Person for Doctor Appointments...People with chronic health conditions like myasthenia gravis (MG) often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That...Reactions0reactionsComments0 comments
RUSK myasthenia gravis ...Anyone there with the rare Rusk Mg. Just diagnosed recently. What meds are you on?...Reactions0reactionsComments2 replies
The Ripple Effect of Advocacy: Celebrating Rare Disease Day® and Beyond...As we mark another Rare Disease Day®, celebrated globally on the last day of February, it's a time for reflection on the journey of advocacy, connection, and empowerment that many...Reactions0reactionsComments0 comments
Ocular MG- Botox...My neuro opthamologist suggested botox shots for ptosis and maybe double vision, as well. Has anyone tried this? What was your result?...Reactions0reactionsComments2 replies
Have You Attended an In-Person Myasthenia Gravis Event or Conference?...Have you attended an in-person Myasthenia gravis event or conference? If not, do you have an interest in it?...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedCoping
Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?...Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...Reactions0reactionsComments0 repliesSeronegativeTreatmentInsurance & Disability
What MG Pain is to Me and How I Deal with It...I know there are many of us with myasthenia gravis (MG) that suffer with muscle pain. I don’t necessarily want to talk about how much pain I have, since pain...Reactions0reactionsComments5 comments
Side effects from medications that your doctor wont acknowledge...Have you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...Reactions0reactionsComments1 repliesSide EffectsSymptoms
Flare Ups...Does any one have any experience with Flare ups how often they occur for how long a day week longer. How severe are they...Reactions0reactionsComments2 replies
Coping with MG When You’re Not Religious...Myasthenia gravis (MG) is a unique disease by nature, but it is also a unique perceived experience due to many factors, such as social circumstances, living situations, mental health, financial...Reactions0reactionsComments3 comments
Support Page for Those Age 60 and Older With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 60 and older. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments2 repliesAwarenessTips & AdviceNewly Diagnosed
Support Page for Those Age 50-60 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 50-60. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesNewly DiagnosedTips & AdviceAwareness
Support Page for Those Age 30-50 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 30-50. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedTips & Advice
