Feeding Tube? Does It Impact Any Aspects of Your Life?...Do you have a feeding tube? If so, does having it impact any aspects of your life positively or negatively?...Reactions0reactionsComments0 repliesDiet & NutritionTips & AdviceMental Health
What Part of Your Legs Do You Have Pain or Cramps Most Often?...What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions0reactionsComments1 repliesTreatmentSide EffectsSymptoms
Safe Cold products to use with gMG...I am coming down with a cold. My nose is running non-stop. What over the counter meds are safe and work with gMG?...Reactions0reactionsComments3 repliesGeneralized MG
Active todayOcular MG? Which Treatment Has Worked Best for You?...Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...Reactions0reactionsComments69 repliesVisionTreatmentDriving
Myasthenia Gravis and Cancer Treatment...Do you have Myasthenia gravis and have cancer or had cancer and are in remission? Can you explain your experience with the impact MG has had on your cancer journey...Reactions0reactionsComments0 repliesTreatment
Active 2 days agoRate the Order in Which These Life Aspects Are Affected by MG...Rate the order in which the following aspects of your life are impacted by Myasthenia gravis, 1 being most affected by MG, 5 being least affected by MG: - social...Reactions0reactionsComments1 repliesIntimacy & RelationshipsWork & EmploymentInsurance & Disability
How Do Healthcare Expenses Impact Your Budget?...How do your Myasthenia gravis healthcare expenses impact your budget? How about your healthcare expenses as a whole? Has it led to debt or government reliance at any point? This...Reactions0reactionsComments0 repliesCostTreatmentWork & Employment
Bedridden or Limited-To-Home? What occupies you?...Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...Reactions0reactionsComments1 repliesCopingTips & AdviceMuscle Weakness
Characteristics and Events Comprising Your Highs and Lows Exercising with MG...What do your highs and lows look like or what is characteristic of these moments when attempting any exercise or physical activity with Myasthenia gravis? What makes for a moment...Reactions0reactionsComments0 repliesExerciseSymptomsTriggers
MG Medication and Navigating the "Donut Hole"...I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with getting any of my medication, but this past... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments9 comments
Avoiding New Diagnoses and Routine Healthcare...I have a dilemma. I put my focus and energy into staying on top of my myasthenia gravis (MG) healthcare. But then consequently, I lose focus on other aspects of... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments8 comments
Getting GP to take me seiously...We all know that GP face to face appointments are like gold dust but sometimes I really need to be seen any tips ?...Reactions0reactionsComments3 repliesGeneralized MG
Managing MG Pain With Holistic and Complementary Therapies...Many people with myasthenia gravis (MG) experience pain. MG can cause muscle weakness, which in turn may cause pain. This can greatly affect your quality of life and make everyday... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments1 comments
How did you navigate your first big holiday after your diagnosis?...As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...Reactions0reactionsComments1 repliesCopingNewly DiagnosedFriends & Family
Depression...What kind of antidepressants work well with eMG? Thanks, Mark...Reactions0reactionsComments1 repliesDepression
MG and Covid...My wife just tested positive for Covid, so I expect to follow her in a day or two. I have recently been diagnosed with a mild case of MG, but...Reactions0reactionsComments1 repliesCoping
I Can be Rebuilt: Cataract Surgery...As a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Swelling of salivary glands and lymph glands...The doctors are confused about what is causing my salivary glands to not release saliva then I get painful sores in mouth and tongue sometimes my tongue can turn purple.The...Reactions0reactionsComments1 repliesAutoimmune Diseases
Does Prednisone cause hair loss? Or is it Mestinon...Do MG meds cause hair loss? Not sure what meds are causing it. Mark...Reactions0reactionsComments5 repliesCoping
What do you take for pain?...I have had gMG since I was 15. I’m now 46. I had a thymectomy at 15 and was in remission for sometime. I’m struggling with the pain I am...Reactions0reactionsComments4 replies
