Reclaiming Life with Generalized Myasthenia Gravis...Hi all! I am a 53 year old Indian Army veteran. I was diagnosed with seropositive Generalized Myasthenia Gravis (GMG) in Feb...reactions2comments
INSOMNIA...What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist...reactions7repliesSleep
Changes in Facial Expression With Myasthenia Gravis...The autoimmune condition myasthenia gravis (MG) may cause changes in a person’s facial expressions. These changes are especially noticeable around the eyes...reactionscomments
Cuvitru vs Vivgard...Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru...reactions4replies
Here is when my symptoms started even thought I had no idea what was happening...Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat...reactions7repliesGeneralized MG
Here is where ...Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat...reactionsreplies
anyone tried injectable Vyvgart Hytrulo?...my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general...reactions9replies
Have you noticed any toe changes like curling or stiffness?...Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How...reactions1replySymptomsSide EffectsAwareness
Older vs newer more targeted therapies...What are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan )...reactionsreplies
Delayed memory response ...Hi, firstly I am very grateful to be a part of the MG support group. Having others share their experiences has made...reactions1reply
Hospital Visit for Cardiologist...Well been in and out of hospital and a&e but this time I had been in hospital for about 5 days and...reactions1reply
Living with someone who has MG...My husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had...reactions3replies
Mr Tony Arnold...The first time that I realised something was wrong was when I heard a colleague fall off of his heavy goods wagon...reactions3replies
Accountant with OMG...Just diagnosed this year with Occular MG. As an accountant my eyes are very important to me. I already find myself working...reactions1reply
Doing Great…..except for my feet!...I was diagnosed in 2021 just about a month after my first covid vaccination. My Neurologist is managing the illness very well...reactions1reply
Constant Recurrence...I have still a hard time on occasionally right eyelid dropping, itching with astigmatism especially during driving, double vision is quite okay...reactions1reply
Embracing Movement: My Personal Journey with Adaptive Yoga...Living with myasthenia gravis (MG) can make us question our physical limits. When the body feels heavy or uncooperative, even the smallest...reactions1comment
How are folks able to tolerate Mestinon (Pyridostigmine)?...The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks...reactions4repliesOcular MG
Loss of appetite...I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost...reactions1replyCopingAutoimmune Diseases
Newly diagnosed...I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy...reactions3repliesNewly Diagnosed
