Support Page for Those Age 20-30 With Myasthenia Gravis...This is a support page for those with Myasthenia gravis age 20-30. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedTips & Advice
Support Page for Those (And Parents Of) Age 20 and Younger...This is a support page for those and the parents of those with MG 20 or younger. Feel free to share and discuss anything you please that follows our guidelines:...Reactions0reactionsComments0 repliesAwarenessTips & AdviceNewly Diagnosed
VYVGART: Has Your IgG (Immunoglobulin G) Gotten Dangerously Low?...Have you been treated with VYVGART for your Myasthenia gravis, and have your IgG (Immunoglobulin G) gotten dangerously low? Did your doctor have you continue with the treatment or alter...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
Reluctant to diagnose myasthenia gravis...Can anyone please help my neurologist will not acknowledge that 8 have myasthenia even though my antibodies are 205 I also have an intermittent droopy mouth blurred vision breathlessness and...Reactions0reactionsComments2 replies
Has an Infection Triggered Your MG?...Have you ever had an infection that ultimately resulted in, whether caused or not, triggered/worsened Myasthenia gravis symptoms or an MG crisis?...Reactions0reactionsComments0 repliesAwarenessTriggersTips & Advice
Opinion of Your Residing Country's Healthcare/Disability Assistance...Do you think the country you reside in has good healthcare and/or disability assistance? What aspects do you like/dislike? Anything related to Myasthenia gravis would be great to note....Reactions0reactionsComments0 repliesTreatmentWork & EmploymentInsurance & Disability
PLEX or IVIG Complications?...Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...Reactions0reactionsComments3 repliesTreatmentCrisisTips & Advice
Negative Hospital Experience With MG?...Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...Reactions0reactionsComments9 repliesSurgeryAwarenessNewly Diagnosed
Pacing Yourself, Pushing Yourself: Managing Energy With a Rare Disease...Editor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article on my commute train to work, starting another...Reactions0reactionsComments1 comments
Aging Gracefully with Myasthenia Gravis...Myasthenia gravis (MG) has not been studied sufficiently in older adults. But, more and more often, MG is being found in the older population. In fact, my diagnosis came just...Reactions0reactionsComments0 comments
How to get more rest...Does anyone have advice or tips on getting more rest. If I take a nap in afternoon it is really difficult to sleep that night. Not sure what I shopuld...Reactions0reactionsComments2 repliesNewly Diagnosed
MG symptoms ...Does anyone have stiff trunk like legs, where when you stand more than 5 minutes and you can't bend your legs, also toes are stiff and turn under, very painful...Reactions0reactionsComments1 replies
Yoga Doesn’t Cure My Autoimmune Diseases...Editor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. "Oh, you have XYZ disease? Have you tried yoga?" Wow, if I had...Reactions0reactionsComments1 comments
How do you handle unsolicited advice about MG?...Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions0reactionsComments34 repliesCoping
I Wish Society Was More Community Oriented...In the age of technology and capitalism, most adults live independently of each other. Sure, many of us live with others under one roof. But do we depend on each...Reactions0reactionsComments0 comments
Is the New Year Living up to Your Expectations?...Is the New Year living up to your expectations? Or is it going in a direction you did not wish for? Do you blame MG for holding you back?...Reactions0reactionsComments0 repliesCopingDepressionTips & Advice
How can friends and family best support someone with MG?...How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...Reactions0reactionsComments2 repliesFriends & Family
Pyridostigmine/Mestinon Adverse Reactions...Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
MG and Diabetes...There is a complex link between myasthenia gravis (MG) and type 2 diabetes. The body’s immune system plays a role in both MG and diabetes. Research suggests that people with...Reactions0reactionsComments3 comments
What’s Worse: Drooping Eyelid or Having Eyes Open Thus Blurred/Double Vision More Noticeable?...Common Myasthenia gravis symptoms are the drooping of the eyelids and blurred or double vision, https://myasthenia-gravis.com/symptoms. Have you had treatment improve your eyelid droop, but not your double vision? What...Reactions0reactionsComments0 repliesOcular MGVisionDriving
