Medication side effects
Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone would have told you before starting this medication?
i am 1 year into this journey. Last summer in August i could not hold my head up, i could not breathe! and could not lift my arms to feed myself without difficulty, had to watch my fingers type for all the missed letters in words and sentences if i didn't specifically order my hands to do the right letters ... took doctors at three different local hospital institutions 5 months, 4 ER visits (tell them you can't breathe and your heart keeps stopping and they don't leave you in the waiting room, which is nice), multiple catscans, MRI's; being told by one Dr. i had the same symptoms as any girl going through puberty... not a teen, not a girl - Finally, a blood test and EMG confirmed my problem. started Mestinon and prednisone, they wanted me up to 50mg of Pred., could not do it, cure way worse than disease, same with Mestinon. reading in these forums of others who have much better luck and wonder why it does nothing for me... next step is cellcept. i'm presently taking a break from all prescriptions for a time to see how i feel and make sure these prescriptions are doing some good. a little over a week now and i don't know yet. have not had a crisis or the same challenges as last year are muted. i always always have trouble breathing.
Hi Abby! 60mg prednisone per day. Mestinon, 2 every 8 hours,Imuran, 2 -in a.m., 2-pm
Last Friday sat.& Sunday had 3 infusions.my wife has been talking to my neurologist nurse.
Not much of an appetite.
Chills, hot episodes.Hi, Mg"ers me again. I have another question. For the past 2 nights, the chills are creeping in.
I head to the kitchen, to make the tea and by the time I'm thru I'm shaking very badly. Is this a medicine side effect? Thank you!Hello, I was recently diagnosed with Mg. Just 2 months ago. My neurologist put me on mestinon 2, 60mg every 8hrs. Then doctor has ramped me up to 60mg of prednisone. I have had 6 infusions 3 in hospital,and 3 at home. When I got up the next morning, I felt even more weak. But I did notice a difference in what was happening in my body.i felt the pulses or shocks, coursing thru from neck to legs
