As you can see here, https://www.mayoclinic.org/drugs-supplements/mycophenolate-mofetil-oral-route/side-effects/drg-20073191, mycophenolate has a very lengthy list of common side effects, with "numbness or tingling in the hands, feet, or lips" being on that more common list. I would love to hear what resource you have for the information that this could be permanent. I'm always looking to expand my MG knowledge to help others as best I can.
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How long have you been on CellCept? Some side effects, like gastrointestinal upset, often subside after a few weeks. However, I'm not well-versed in the neuropathy aspect, as I haven't come across much feedback on this. Remember, your health is ultimately in your hands, not just your doctor's. If you're uncomfortable with a treatment, don't hesitate to voice your concerns and explore other options with your doctor. There's a wide range of MG treatments available.
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Have you considered alternating eye patches to strengthen your eyes? Some people have found this technique helpful. Additionally, prisms can be a game-changer for people with MG ocular symptoms. You can find more information on this at https://myasthenia-gravis.com/clinical/prism-glasses.
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The CellCept and other immunosuppressant treatments can take months to take effect, so in the meantime, I recommend discussing mestinon (pyridostigmine) and prednisone with your doctor if you are not on those as they are faster acting. IVIG and PLEX are also common to help with uncontrolled, such as eyesight symptoms you're experiencing, while immunosuppressants are still building up within the body to be able to take effect. https://myasthenia-gravis.com/crisis-treatment
-Jodi, Team Member