Side effects vs. Symptoms
I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS but in 8 months it has not helped so next will try VYVGART in May. Had 2 strokes on 6-30-23 and 7-4-23 for right-side weakness, did PT but couldn't progress because of MG so taking a break and waiting for something to work so I can get back to PT. Hoping for something to work soon. - Tom
So many of us have had that same experience, which is good and bad. On the one hand, the treatment improved your MG symptoms, but then we are left with a similar health dilemma, if not worse. And many side effects of treatment can be far more severe than most MG symptoms. VYVGART has been resulting in improvement in the vast majority of people who have said they're on it, and few mention side effects. I would recommend a small dose of prednisone if you were looking for more rapid improvement than immunotherapy, but it can come with some more unwanted side effects and could delay PT even longer - Jodi, Team Member
