Myasthenia Gravis

I was diagnosed lasted November but I think I’ve had MG for longer so to cut the story short I went to see a neurologist last January she done some test my blood came bk to her positive so she said see you in 6 months but I’ll order a CT scan on your Thymus gland and when you come for your 6 months check up I look at the scan I’ve not had a letter for anything I’m fuming also I drop everything out of my right hand now the hand so painful and it goes right up my arm I’ve also got a bad neck now keep getting it and the tablet’s she put me onPyridistigmine 60mg 3 times a day done nothing but make me sweat terrible when the tablet due it’s taking over my life I’m disabled and already got mental health has well has thyroid and diseased vertebrae in parts of my spine hips knees I’ve also got fibromyalgia but put that aside for a minute my eyes hurt so much the pain goes round them I see double also now I’ve stopped driving in the dark because of the headlights I’m suffering the most with the back of my neck so I’ve tried to get hold of neurologist secretary but nothing I don’t know what else to do