Managing weakness when waking up...Hi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...Reactions0reactionsComments1 repliesMuscle WeaknessNewly DiagnosedSymptoms
How has coping with your MG and accommodating been going this holiday season?...How has coping with your MG and accommodating been going this holiday season? Do you plan to take New Year's Eve easy or have plans for a party or event?...Reactions0reactionsComments0 repliesMental HealthSymptomsWeather
Have you had an MG flare or crisis after a vaccination (not COVID)? ...Have you had an MG flare or crisis after a vaccination (not COVID)? https://myasthenia-gravis.com/vaccines If you are comfortable sharing, which vaccine was it? Vaccines can be of concern for those...Reactions0reactionsComments1 repliesTriggersTravelAwareness
Inclusivity and Rare Diseases: 6 Things for Friends and Family to Consider...Editor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. Social situations can be very difficult to navigate with a rare disease or... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Are You Religious or Spiritual?...Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions0reactionsComments19 repliesMental HealthCopingNewly Diagnosed
My Animal Testing Morals and Myasthenia Gravis: Finding Peace...Almost everyone will require medical treatment at some point throughout life. But for those like me, who have strong values in support of a cruelty-free world, it creates a moral... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Myasthenia gravis and herpes...Hi! I have had hvs2 for 41 years. I'm asymptomatic and take antiviral meds. I've recently met a great guy and we've hit it off tremendously! I've disclosed my herpes...Reactions0reactionsComments1 replies
Cellcept...I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...Reactions0reactionsComments4 repliesAutoimmune Diseases
Exercise and PT ...At 80 I expected to have some loss of strength but suspect that my weakness in legs and arms is due to MG. Blood tests haven't confirmed that but no...Reactions0reactionsComments8 repliesCopingExerciseMuscle Weakness
MG in the UK...Just reaching out to those in the UK as the MG support in the UK is pretty limited I find and this seems like the best place for support, which...Reactions0reactionsComments2 repliesFriends & FamilyAwarenessCaregiving
Happy Hypoxia/silent Hypoxia or similar...Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...Reactions0reactionsComments0 repliesSymptomsGeneralized MG
The Challenges of Living Away from Home...I have myasthenia gravis (MG), and even though I’m partially confined to a wheelchair/power chair, I can still walk with the aid of a walker or rollator. I can also... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments3 comments
Plasma Replacement Therapy...Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...Reactions0reactionsComments3 repliesGeneralized MGAutoimmune DiseasesNewly Diagnosed
Life Will Never Be the Same...There is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments12 comments
For men with MG-Gravis. ...What antidepressants are compatible with Prednisone and mestinon? Any experience would help. Thanks, Mark...Reactions0reactionsComments4 replies
Early Undiagnosed Symptoms?...I am curious to know whether others with MG experienced early symptoms or had a close relative with a neurological illness? Many years ago I was told that I have...Reactions0reactionsComments1 repliesSymptoms
IVIg or SCIg...I was diagnosed with M.G. almost 17 years ago, and since then have been on Mestinon when I take a 180 mg.Slow Release tablet first thing in the morning, and...Reactions0reactionsComments2 repliesTips & Advice
Sleep...I am a 21-year MGer and sleep 4 - 5 hours a night. Even though I use a CPAP, I'm in a real bind. What suggestions do you have?...Reactions0reactionsComments0 repliesSleep
Emergency room- advocating for your MG and communicating with staff...Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...Reactions0reactionsComments6 repliesAwarenessCrisisHealthcare Team
Active 6 days agoConfidence in your treatment regimen?...How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...Reactions0reactionsComments53 repliesTreatmentRemissionHealthcare Team
