My Emotions, Stress, and MG...Recently, I had a health crisis. While I was in the hospital, my husband fell and broke his ankle. During most of the time he was healing, we were staying...Reactions0reactionsComments11 comments
What Different Specialists Are In Your Healthcare Team?...What various specialists and doctors make up your healthcare team?...Reactions0reactionsComments2 repliesHealthcare TeamDiagnosisTreatment
Is Your Job MG Friendly?...Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....Reactions0reactionsComments0 repliesWork & EmploymentTriggersSymptoms
Medication & Treatment Side Effects...Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...Reactions0reactionsComments16 repliesSide EffectsTreatment
Will you take our In America survey and help others understand the true impact of MG?...**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...Reactions0reactionsComments1 repliesAwareness
Covid-19 trigger or cause MG? Also, MG and swallowing problems...Hello: I am a 71 year old male. I had covid-19 the first week of January 2022. Immediately, upon recovering from covid-19, I developed double vision. By mid February of...Reactions0reactionsComments2 repliesDiagnosisNewly Diagnosed
Mike Stabile...Mike is retired and living in California. He has a Bachelor of science degree in biology from Cal State University, Fullerton and a Master of Science degree in physiology from...
I Figured Out How to Store My Extra Mestinon...As many of us with myasthenia gravis (MG) know, Mestinon (pyridostigmine) is very sensitive to temperature and humidity. My prescription currently reads 120 milligrams every 3 hours while awake. Now...Reactions0reactionsComments4 comments
The Gut Microbiome and MG Connection...There are trillions of tiny living things that exist on or in your body. These tiny living things are called microbes because they can only be seen under a microscope...Reactions0reactionsComments4 comments
Intervenes or subcutaneous therapy ...Has anyone been on Rystiggo?...Reactions0reactionsComments3 replies
Does anyone else in your immediate family have MG? ...After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...Reactions0reactionsComments1 repliesFriends & FamilyNewly DiagnosedAutoimmune Diseases
Feeding Tube? Does It Impact Any Aspects of Your Life?...Do you have a feeding tube? If so, does having it impact any aspects of your life positively or negatively?...Reactions0reactionsComments0 repliesDiet & NutritionTips & AdviceMental Health
What Part of Your Legs Do You Have Pain or Cramps Most Often?...What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions0reactionsComments1 repliesTreatmentSide EffectsSymptoms
Safe Cold products to use with gMG...I am coming down with a cold. My nose is running non-stop. What over the counter meds are safe and work with gMG?...Reactions0reactionsComments3 repliesGeneralized MG
Active 7 days agoOcular MG? Which Treatment Has Worked Best for You?...Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...Reactions0reactionsComments78 repliesVisionTreatmentDriving
Myasthenia Gravis and Cancer Treatment...Do you have Myasthenia gravis and have cancer or had cancer and are in remission? Can you explain your experience with the impact MG has had on your cancer journey...Reactions0reactionsComments0 repliesTreatment
Rate the Order in Which These Life Aspects Are Affected by MG...Rate the order in which the following aspects of your life are impacted by Myasthenia gravis, 1 being most affected by MG, 5 being least affected by MG: - social...Reactions0reactionsComments1 repliesIntimacy & RelationshipsWork & EmploymentInsurance & Disability
How Do Healthcare Expenses Impact Your Budget?...How do your Myasthenia gravis healthcare expenses impact your budget? How about your healthcare expenses as a whole? Has it led to debt or government reliance at any point? This...Reactions0reactionsComments0 repliesCostTreatmentWork & Employment
Bedridden or Limited-To-Home? What occupies you?...Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...Reactions0reactionsComments1 repliesCopingTips & AdviceMuscle Weakness
Characteristics and Events Comprising Your Highs and Lows Exercising with MG...What do your highs and lows look like or what is characteristic of these moments when attempting any exercise or physical activity with Myasthenia gravis? What makes for a moment...Reactions0reactionsComments0 repliesExerciseSymptomsTriggers
