My Myasthenia Gravis Awakening...In this article I describe how I grappled with the emotions of learning that I had an incurable disease and how I was motivated to confront and overcome what I...reactions8comments
What changes have helped you feel more fulfilled as you navigate MG?...Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate MG?...reactions9replies
what are things that cause a flare up...I have flare ups that come on quickly. Arms and neck pain and weakness. Ice packs help and Advil....reactions3replies
Pregnancy...I’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...reactions1replyAwareness
Using Azathioprine long term for MG...Was diagnosed with MG at 65… Started with Mestinon and Prednisone. Ocular only..for 4 years took Pyridostigmine maybe twice a year mild flare ups. (Off prednisone) I am 73 now...reactionsreplies
June is MG Awareness Month! Let’s Be Proactive!...June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making sure the people we reach understand the challenges...reactions2comments
What is your experience with mestinon for treating OMG?...Can you tell me whether anybody had a positive effect of mestinon for OMG?...reactions4repliesOcular MG
Exposed to Agent Orange During the Vietnam War and Developed Myasthenia Gravis, or Your Children?...Were you exposed to Agent Orange during the Vietnam War? Do you or your children have Myasthenia Gravis? Many individuals suspect that Agent Orange may have caused their development of...reactionsrepliesAwarenessNewly DiagnosedWork & Employment
feeling dizzy when walking...My 75 year old mother has been living with MG for the last 8 years. She has had the themectomy, which hasnt relieved her symptoms. she also has a bit...reactions2repliesMuscle Weakness
MG with a colostomy...I am wondering if anyone has an ostomy of any kind? I am having a permanent Colostomy with rectum removed in 5 days. It will be a 4–6-hour surgery. And...reactions2repliesCoping
MG and dropped head ...Hi all! I wanted to ask if anyone has had any experience with a dropped head because of MG? I’ve only been on Mestinon for 2 weeks but see no...reactions2repliesAutoimmune Diseases
MG with lupus sle...Was just diagnosed with lupus sle. Already so limited on with MG how do I manage meds and everything with lupus and rhumathoid arthritis? Also getting ready to go to...reactions3repliesAutoimmune Diseases
Vyvgart Side-Effects and Adverse Reactions...We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...reactions1replyTreatmentSide EffectsAwareness
Join the Conversation: 5 Forums on Myasthenia Gravis Treatment...The forums section of Myasthenia-Gravis.com is a place to read conversations, start discussions, and connect with others about myasthenia gravis (MG). Many community members use these forums as a place...reactions1comment
Can i have nicotine on imuran...Hi everyone! I’ve been diagnosed with MG since 2021 and have been on mestinon since then. Last week i had my checkup and they decided to put me on imuran...reactions2repliesTips & Advice
Seronegative/chemical/toxin exposure ...Recently it has come out that there was a company less than a mile away from where I grew up that was dumping toxic chemicals. Many people have had cancer...reactions1replySeronegative
Have all of the symptoms of MG but every test coming back negative so far!...I would greatly appreciate your help! I have been having symptoms of Generalised MG and am now in a wheelchair 90% of the time. I am off work, have been...reactions2repliesGeneralized MGDiagnosisTips & Advice
Birth Control and Myasthenia Gravis...Have you been on birth control for the entire time you had MG, or did you stop or start birth control while having MG? How does birth control affect your...reactionsrepliesTips & AdviceNewly DiagnosedAwareness
