Muscle Spasms with and without Pyridostigmine (Mestinon)...Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...Reactions0reactionsComments11 repliesSymptomsTreatmentTriggers
One word to describe the past month...Describe how you have felt this past month with one word....Reactions0reactionsComments1 repliesSymptomsAwarenessFriends & Family
Learning Everything I Can About Myasthenia Gravis...In this guest post, Mike Stabile talks about how he has navigated the past few years since his myasthenia gravis (MG) diagnosis. After vowing to learn everything he could about... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments11 comments
Preparing for Winter Travel with MG...Traveling anytime is trying at best, but winter travel can be quite challenging. I have done a lot of travel before and after my myasthenia gravis (MG) diagnosis. When we... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments1 comments
Droopy Eyelid...Hi All, I am new here but wanted to share this. Also I am not saying it will work for all but it has majorly helped me. My doctor gave...Reactions0reactionsComments1 repliesOcular MG
Do you have problems swallowing?...Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...Reactions0reactionsComments56 repliesSymptomsDiet & NutritionMuscle Weakness
MG Crisis-What Triggered Yours?...Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...Reactions0reactionsComments23 repliesCrisisTriggersSymptoms
Neuromuscular Blocking Medication Triggered MG Symptoms...Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...Reactions0reactionsComments0 repliesSurgeryTriggersCrisis
How Do Autoimmune Diseases Affect Cancer Risk?...Our immune system is constantly working to fight foreign or dangerous invaders like viruses, fungi, or bacteria. This helps protect us from things like infections, the flu, and even cancer... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
Anxiety ...What anti-depressent med should I take with MG?...Reactions0reactionsComments1 repliesDepression
What are your Goals and/or Challenges ...Join me in an empowering discussion as we discuss our goals and the challenges we face on our journeys. Sharing our aspirations and obstacles can help us to connect as...Reactions0reactionsComments5 repliesCoping
Being new in the community....Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...Reactions0reactionsComments2 repliesCopingAutoimmune Diseases
More patient control of Pyridostigmine (Mestinon) dosing?...The acetylcholinesterase-inhibition properties of Pyridostigmine (pyri) only last a handful of hours. The doctor's Rx very specifically regulates the dosing period and amount. For example, a common Rx for pyri...Reactions0reactionsComments5 replies
Can I Prevent Ocular MG From Progressing to Generalized MG?...Ocular myasthenia gravis is a type of myasthenia gravis (MG) that mainly affects the eye and eyelid muscles. If you have ocular MG, you may be concerned about developing generalized... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments1 comments
Juvenile MG recently diagnosed...My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...Reactions0reactionsComments1 repliesNewly Diagnosed
My Favorite Activities: Trying Not to Let MG Hold Me Back...So many times, we have to give up some things we love or love to do when we are diagnosed with a life-altering disease like myasthenia gravis (MG). Well, I’m... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments1 comments
Choosing Compassion When We Don't Know People’s Intentions...With Thanksgiving approaching, I encourage you to welcome this season as a reevaluation period. Similar to the basics of "treating others how we wish to be treated," we want to... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments7 comments
Reassurance on blood test results...Hello, Just reaching out for some reassurance I've waited 6 months just to get my blood test results and I just want to ask if 8 nmol/L is positive for...Reactions0reactionsComments1 repliesDiagnosis
Active 4 days agoGrocery Shopping Difficulties with MG...Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...Reactions0reactionsComments6 repliesTips & AdviceDrivingCoping
How do you cope with flare-ups during the holidays? ...I know many of us love the holiday season, but with much running around some of us can have a difficult time keeping our symptoms at bay. What symptoms do...Reactions0reactionsComments4 repliesCopingTips & Advice
