MG Medication and Navigating the "Donut Hole"...I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with getting any of my medication, but this past...Reactions0reactionsComments10 comments
Avoiding New Diagnoses and Routine Healthcare...I have a dilemma. I put my focus and energy into staying on top of my myasthenia gravis (MG) healthcare. But then consequently, I lose focus on other aspects of...Reactions0reactionsComments8 comments
Getting GP to take me seiously...We all know that GP face to face appointments are like gold dust but sometimes I really need to be seen any tips ?...Reactions0reactionsComments3 repliesGeneralized MG
Managing MG Pain With Holistic and Complementary Therapies...Many people with myasthenia gravis (MG) experience pain. MG can cause muscle weakness, which in turn may cause pain. This can greatly affect your quality of life and make everyday...Reactions0reactionsComments1 comments
How did you navigate your first big holiday after your diagnosis?...As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...Reactions0reactionsComments3 repliesCopingNewly DiagnosedFriends & Family
Depression...What kind of antidepressants work well with eMG? Thanks, Mark...Reactions0reactionsComments1 repliesDepression
MG and Covid...My wife just tested positive for Covid, so I expect to follow her in a day or two. I have recently been diagnosed with a mild case of MG, but...Reactions0reactionsComments1 repliesCoping
I Can be Rebuilt: Cataract Surgery...As a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine...Reactions0reactionsComments0 comments
Swelling of salivary glands and lymph glands...The doctors are confused about what is causing my salivary glands to not release saliva then I get painful sores in mouth and tongue sometimes my tongue can turn purple.The...Reactions0reactionsComments1 repliesAutoimmune Diseases
Does Prednisone cause hair loss? Or is it Mestinon...Do MG meds cause hair loss? Not sure what meds are causing it. Mark...Reactions0reactionsComments5 repliesCoping
What do you take for pain?...I have had gMG since I was 15. I’m now 46. I had a thymectomy at 15 and was in remission for sometime. I’m struggling with the pain I am...Reactions0reactionsComments4 replies
Managing weakness when waking up...Hi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...Reactions0reactionsComments1 repliesMuscle WeaknessNewly DiagnosedSymptoms
How has coping with your MG and accommodating been going this holiday season?...How has coping with your MG and accommodating been going this holiday season? Do you plan to take New Year's Eve easy or have plans for a party or event?...Reactions0reactionsComments0 repliesMental HealthSymptomsWeather
Have you had an MG flare or crisis after a vaccination (not COVID)? ...Have you had an MG flare or crisis after a vaccination (not COVID)? https://myasthenia-gravis.com/vaccines If you are comfortable sharing, which vaccine was it? Vaccines can be of concern for those...Reactions0reactionsComments1 repliesTriggersTravelAwareness
Inclusivity and Rare Diseases: 6 Things for Friends and Family to Consider...Editor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. Social situations can be very difficult to navigate with a rare disease or...Reactions0reactionsComments0 comments
Are You Religious or Spiritual?...Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions0reactionsComments19 repliesMental HealthCopingNewly Diagnosed
My Animal Testing Morals and Myasthenia Gravis: Finding Peace...Almost everyone will require medical treatment at some point throughout life. But for those like me, who have strong values in support of a cruelty-free world, it creates a moral...Reactions0reactionsComments0 comments
Myasthenia gravis and herpes...Hi! I have had hvs2 for 41 years. I'm asymptomatic and take antiviral meds. I've recently met a great guy and we've hit it off tremendously! I've disclosed my herpes...Reactions0reactionsComments1 replies
Cellcept...I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...Reactions0reactionsComments4 repliesAutoimmune Diseases
Exercise and PT ...At 80 I expected to have some loss of strength but suspect that my weakness in legs and arms is due to MG. Blood tests haven't confirmed that but no...Reactions0reactionsComments8 repliesCopingExerciseMuscle Weakness
