Myasthenia gravis problem...Self at 69, In October 2023, noticed that my right eye lid has closed half and does not open After diagnosis my eye nerve to musle contact has become weak...reactions1reply
In remission...I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe swelling of legs ankles and feet so with...reactions1reply
Stress a massive factor....I was diagnosed nearly 18 months ago and ,wow,how it has changed my life. Not knowing how I would cope, financially worried as I had to leave my job. But...reactions1reply
Focusing and concentration problem...I have noticed the disease for two months (MG) but it's not just my muscles ! I feel less focuse and can't concentrate as easy as before ! And it's...reactions4replies
Ptosis question ...The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...reactionsreplies
Recently diagnosed...Just have been diagnosed with MG a month ago. Having a lot of trouble sleeping at night and saliva at nite keeps me awake. Has anyone had any experience with...reactionsreplies
Childhood Memories ...Hello all. I am 40 years old and have had MG since 1989, when I was 6 years old. I was the youngest case of MG to be diagnosed in...reactions2replies
Misunderstood...Even Doctor's that seem to think they know how to handle this disease are often perplexed. They ask me things like the next time it gets bad go to the...reactions1reply
Myasthenia Gravis ...Suffering from MG for 7 year's from 2017, first symptoms was drupping eyelid then test MRI...report was okay, CT scan Thorax is okay, it was found blood test of ACH...reactions1reply
The Order My MG Symptoms First Appeared...For many individuals with myasthenia gravis (MG), their symptoms appear slowly over years before they finally get answers to their suspicions or start to realize there may be a condition...reactions4comments
Has anyone's doctors suggested these?...Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...reactions1replyTreatment
CLOSED! MG Awareness Month Giveaway...This giveaway is now closed. June is Myasthenia Gravis (MG) Awareness Month, and here at Myasthenia-Gravis.com, we're honoring our wonderful community during the month of June with a giveaway! One...reactions9comments
MG Awareness Month Forum!...What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....reactions76repliesAwareness
Effects of MG on My Singing and Speaking Voice...I have talked with a few people about how myasthenia gravis (MG) has affected their voice - their singing voice in particular. It has affected mine, too. MG impacts the...reactions3comments
Thymectomy...Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year or more recent. I'm having my appointment with...reactions2repliesSurgeryThymectomy
MG in the media...Feeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...reactions3repliesAwareness
Ptosis...The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...reactions2replies
Feels like electric shocks...I'm tired, but I push on. Just recently I have been getting sensations like electric shocks, going through some of my toes. It doesn't last long. Just a few seconds...reactions2replies
Neonatal MG and precautions taken by birth team and throughout pregnancy...For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...reactionsrepliesAwarenessTips & AdviceTreatment
Parenting While Managing a Chronic Illness...Parenting can be incredibly rewarding. However, parenting is hard. Both parents and children are human, and there is no guidebook to raising a child. New trends, current research, and comparison...reactionscomments
