Feeling Better Versus Coping Better: How to Tell the Difference...Editor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. Living with chronic illness, we are often evaluated on how well we are... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments1 comments
Benefit...Can i ask anyone in uk living with myasthenia do or can you claim PIP allowance...Reactions0reactionsComments0 replies
My Experience with a Modified Barium Swallow...I’ve had chewing and swallowing issues on and off for years. I was prescribed a modified barium swallow study (MBSS) so the doctors could figure out why I was choking... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments6 comments
Ocular MG ...Hi All, 34yo male I have had Ocular MG for about 10 years now. My only symptom is double vision (and its severe). Usually when the bouts of double vision...Reactions0reactionsComments23 repliesOcular MGMuscle WeaknessSeronegative
sore arms...Has anyone with MG have sore arms...below the shoulders..Feels like you were exercising with small weights...Reactions0reactionsComments6 replies
Will My Disability Benefits Change If My Diagnosis Changes?...Getting approved for disability benefits from the US Social Security Administration (SSA) can take a lot of paperwork and patience. But you may be also wondering: What if my diagnosis... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Mindfulness & Myasthenia Gravis: A Forum for Stress Management...Mindfulness & Myasthenia Gravis is an online forum crafted for individuals living with myasthenia gravis, offering a platform to discuss and share insights on how mindfulness can help in managing...Reactions0reactionsComments13 replies
Disability...I am currently on leave from my job for mental health issues. Much of what has led up to that, was my diagnosis in November of '21. I have a...Reactions0reactionsComments3 replies
Symptoms of MG...I was diagnosed after 3 months of seeing Drs any so many tests...I have had MG for 4 months now and i am taking Pyridostigmine and prednisone...I have had all...Reactions0reactionsComments5 repliesSymptoms
Positive Test Results Only Once...I started having MG symptoms in 2021. However, all my test results were negative for an entire year. Then, in 2022, I tested strongly positive for MuSK. Now, in 2023...Reactions0reactionsComments0 replies
Decision Fatigue: What It Is and a Few Ways to Get Past It...Editor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. I almost hesitate to bring up the f-word again. No, not that one... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
MG Symptoms: I Shouldn't Need to Explain Myself...I have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just like everyone with MG experiences symptoms differently, everyone... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments3 comments
does anyone have fingers that suddenly curl up and hurts when you put them str8?...About 2 weeks ago a finger on my left had would spontaneously curl straightening it out was painful Now it feels something is wrong with the whole hand especially the...Reactions0reactionsComments11 repliesGeneralized MG
Does anyone else have bowel/bladder issues with MG?...Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...Reactions0reactionsComments22 repliesGeneralized MGMuscle WeaknessSymptoms
Fresnel Prisms - suppliers? (United Kingdom)...In the last week I've had a recurrence of diplopia after over four years of no symptoms. I went to my local eye hospital, where on Friday I was assessed...Reactions0reactionsComments0 repliesAssistive DevicesOcular MG
Medication ...Wondering what form of medication people are on my husband has MG since.he was 23 after thymenocotmy was in remmision till 10 yrs ago hes now 62 back on Pyridostigmine...Reactions0reactionsComments7 repliesTreatment
Beginning to exercise after thymectomy...Beginning to exercise after having a thymectomy can be scary! Exercising with MG already is daunting for many as it means accommodating and figuring out how to adapt, https://myasthenia-gravis.com/living/exercising-again. But...Reactions0reactionsComments0 repliesThymectomyExerciseMuscle Weakness
The Added Stress of Finding a New Neurologist for MG...Since my husband’s recent fractured ankle and my pacemaker implantation and cardioversion, we have been staying at our youngest son’s home. He has been helping both of us with our... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
Were you in remission to then have your MG symptoms return?...Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned? How is it impacting your life if you...Reactions0reactionsComments4 repliesRemissionSymptomsTriggers
Myasthenia Gravis Drugs and Low Testosterone...Issues with sexual function are common for men with myasthenia gravis (MG). A common problem is low testosterone levels. MG does not directly cause low testosterone or other related problems... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
