MG Awareness Month Forum!
What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below.
I absolutely agree! I have the same thing.
I'm having so many problems with the autonomic issues that can come with MG. It is affecting every part of my life. Does anyone have any advice? I was diagnosed 3 years ago after seeing several neurologists trying to figure out what was happening to me.
Thank you for your comment! I found this post, and some of the comments mention ways that some of our members have found to deal with their autonomic issues. I hope that you find it helpful!
Warmly, Chelley (Team member)
https://myasthenia-gravis.com/forums/anyone-familiar-with-autonomic-nervous-system-dysfunction-in-mg
I have recently been diagnosed. It seems really hard to find a neuro near me.
Hi
have you had any advancements in your search? I shared an article, which includes a link to a search tool to find a specialist here - https://myasthenia-gravis.com/living/finding-doctor-specialists. I hope this is helpful. Wishing you well. -Jessica (Team Member)
That I didn't ask to have this condition but I have it, it's apart of my life and it just be managed and respected and but judged and if you judge me the hell with you and that goes for anyone. This is not an easy condition that I wouldn't wish on the devil and I've met a few.
Hello and welcome to our community! We understand the burden MG can place on your life, and we want you to know that we recognize your challenges. You are not alone, and we are here to offer our support. I believe you may find some comfort in the following articles: https://myasthenia-gravis.com/living/avoid-saying, https://myasthenia-gravis.com/living/rediscovering-normal, https://myasthenia-gravis.com/myths, https://myasthenia-gravis.com/caregiver/comment-responses, https://myasthenia-gravis.com/living/choosing-compassion - Jodi, Team Member
