CommunityMemberb5f61e
I have noticed the disease for two months (MG) but it's not just my muscles ! I feel less focuse and can't concentrate as easy as before ! And it's difficult to gather my mind _ does anybody have the same experiences?
David75Member
In the brain, acetylcholine is responsible for several critical functions, including memory, attention, focus and learning. If you have garden variety MG, you have a deviant antibody that attacks acetylcholine. Old school thinking was that it only attacks it in the neuromuscular junctions. That was illogical and naive. All new research has found that it attacks in many places in your body, and especially in your brain. In fact, research has found that MG-related acetylcholine destruction in the brain can be equivalent to that seen in Alzheimer's disease. There was a study released in November, 2025, that noted several cross-over characteristics between Alzheimer's and MG.
This is not happy news, especially for those who have been convinced that MG is annoying but largely benign if well treated.
Brian fog and general cognitive decline are widely reported by MG sufferers. But not all MG patients experience either one. And your brain fog does not mean that you will end up with dementia. But declining cognitive ability is a reality, and patients and their families and care givers deserve honest information.
DyuriarMember
Jodi EndersMember
---
The impact of MG on one's career and primary source of income can be incredibly challenging. Brain fog and chronic fatigue are often some of the most debilitating aspects of MG, which treatment usually doesn't alleviate but may even worsen these symptoms. Indeed, some doctors may not acknowledge symptoms, even those widely experienced by those with MG. This underscores the urgent need for greater awareness and more research on MG within the healthcare field. I recommend exploring the advice provided in the following articles, which emphasize the importance of finding a doctor who specializes in MG and taking an active role in educating yourself about the condition and speaking up for your needs: https://myasthenia-gravis.com/living/educating-yourself, https://myasthenia-gravis.com/living/specialized-doctor-benefits, https://myasthenia-gravis.com/living/finding-doctor-specialists. It's not uncommon for MG specialists to overlook commonly experienced symptoms such as brain fog, fatigue, and pain, especially when there's limited scientific evidence to support these claims. Your experiences and struggles are valid, and it's essential to find a supportive healthcare team that listens to you and addresses your concerns with compassion and understanding.
---
You may be interested in the following articles and discussions on those topics: https://myasthenia-gravis.com/living/feeling-defeated, https://myasthenia-gravis.com/living/fatigue-coping, https://myasthenia-gravis.com/living/minimalism, https://myasthenia-gravis.com/forums/burning-pain-muscle-weakness, https://myasthenia-gravis.com/living/managing-emotions-and-stress, https://myasthenia-gravis.com/living/dealing-with-pain, https://myasthenia-gravis.com/clinical/pain, https://myasthenia-gravis.com/forums/leg-and-foot-cramping-and-pain.
- Jodi, Team Member
Les J HMember
, I suppose something like our Disability Pension
Jess.HallMember
Hi
