CommunityMemberb5f61e
I have noticed the disease for two months (MG) but it's not just my muscles ! I feel less focuse and can't concentrate as easy as before ! And it's difficult to gather my mind _ does anybody have the same experiences?
Dyuriar Member
Jodi Enders Moderator & Contributor
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The impact of MG on one's career and primary source of income can be incredibly challenging. Brain fog and chronic fatigue are often some of the most debilitating aspects of MG, which treatment usually doesn't alleviate but may even worsen these symptoms. Indeed, some doctors may not acknowledge symptoms, even those widely experienced by those with MG. This underscores the urgent need for greater awareness and more research on MG within the healthcare field. I recommend exploring the advice provided in the following articles, which emphasize the importance of finding a doctor who specializes in MG and taking an active role in educating yourself about the condition and speaking up for your needs: https://myasthenia-gravis.com/living/educating-yourself, https://myasthenia-gravis.com/living/specialized-doctor-benefits, https://myasthenia-gravis.com/living/finding-doctor-specialists. It's not uncommon for MG specialists to overlook commonly experienced symptoms such as brain fog, fatigue, and pain, especially when there's limited scientific evidence to support these claims. Your experiences and struggles are valid, and it's essential to find a supportive healthcare team that listens to you and addresses your concerns with compassion and understanding.
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You may be interested in the following articles and discussions on those topics: https://myasthenia-gravis.com/living/feeling-defeated, https://myasthenia-gravis.com/living/fatigue-coping, https://myasthenia-gravis.com/living/minimalism, https://myasthenia-gravis.com/forums/burning-pain-muscle-weakness, https://myasthenia-gravis.com/living/managing-emotions-and-stress, https://myasthenia-gravis.com/living/dealing-with-pain, https://myasthenia-gravis.com/clinical/pain, https://myasthenia-gravis.com/forums/leg-and-foot-cramping-and-pain.
- Jodi, Team Member
Les J H Member
, I suppose something like our Disability Pension
Jess.Hall Community Admin
Hi