Do you and your doctor "get" each other?

I had a great relationship with my first neurologist, but when she moved and I was passed off to another one, he decided I didn't even have MG. I asked what my problem was then and never got an answer. Doctors make you feel like you're just a whiner or lazy or something. I can't tell you how many times I've cried into my pillow at night because I'm passed off like I'm just a sissy and no one takes me seriously.

Until a doctor has the disease, friends or close family in their lives, they can only treat the disease as they see it, on a superficial basis. I went last week for a yearly checkup and was offered other medication which I will not take. I am on enough, trying to get by with pain, spasms, heavy and difficult legs daily.
I am going to be my best advocate. I rejected 2 other medications in 2022 and I am still going.
I fighting back with intense nutrition, gentle exercise and a really realistic happy outlook. I am not the disease either, it might limit me physically but not on any other level.
I can't be more greatly for my immediate family and husband's support.
This disease is awful 😖 and cam be very very depressing. Sending hugs 🫂 to all who are struggling.

My husband struggled for four years trying to get help from local doctors who blamed him for not exercising enough. They sent him to physical therapy for 3-4 days per week during his last 3 months of life. He struggled to get stronger when all the while they were weakening him. I deeply regret the trust we put in doctors.

After waiting in an ER for several hours when first diagnosed (due to a droopy eye), and reminding a nurse I was still there, a neurologist saw me for ten minutes. He cautioned me about temperature changes, susceptibility with other infections, and the risks of more serious symptoms. My first PCP told me I could die if I wasn't always close to an ER. The next neurologist I saw prescribed gabapentin for my muscle cramps and weakness. I was advised not to travel to remote places anymore and had to cancel three trips, losing deposits amounting to thousands of dollars. Now my current neurologist is saying I don't have generalized MG, only ocular and in fact I can travel and even be exposed to extreme temperatures. He said many of my symptoms are not MG: incontinence, muscle weakness and cramps, fatigue and balance issues. He put me on prednisone; told me gabapentin made me worse and took me off that. The prednisone did help my double vision and incidentally my incontinence. I also did a trip to Alaska and was exposed to -14 temperatures with no problem. Now I don't know who to believe! He told me to come back in 3 months, but the scheduler couldn't give me an appointment sooner than 6 months.