Vivgart
I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been only 6 weeks and I'm going backwards already. DR. want to start a 2nd round right away.
Is anyone else experiencing any good lasting effect on vivgart?
Remember that not every MG treatment will work for everyone with MG. If you are unsure whether you should proceed with your doctor recommending another round, I encourage you to speak up or get a second opinion. https://myasthenia-gravis.com/living/educating-yourself. Has your doctor discussed any other treatment options with you? Do you know what MG antibody you have (Acetylcholine receptor (AChR), Muscle-specific tyrosine kinase (MuSK), Low-density lipoprotein receptor-related protein 4 (LRP4)) or if you are seronegative (no antibodies)?
- Jodi, Team Member
Took 3 sets of vivgart treatments. No real improvement after first set first treatment so onto another treatment plan "Ultomiris". Will let everyone know how that goes.
Hi
just wanted to check in to see how you are doing? Wishing you well. -Jessica (Team Member)
