Apherisis Poem:Wash, Rinse, Repeat

By Laurie-May, 2024
Some days I go in with a smile
Can even saunter in with style!

However, primarily I’m there because I’m near the end.
Previous treatment fading-now only Apherisis can help mend.

Don’t get me wrong!
I appreciate these treatments exists.

But mostly by the time I’m due,
Not going in with the smile- just Blue.

Few people have seen how MG takes away-
My Talk, my Breath, my Walk, Read, and Play.

One day a breath indicates it’s lurking.
Last treatment has stopped working!

I’m not Blue because the walking has stopped.
Rather, the fear filled days have begun-ball has begun to drop.

Listlessly waiting for flare to recede,
Praying to allow my life to proceed.

People say, “You look Alright. You’ll be fine.”
Believe me…too often that is your belief AND mine.

Been aching to catch up with MD’s
Learn why randomly I fall to my knees.

Trying to learn quickly,
So it won’t take me swiftly.

Multiple times in ER where few Familiar with MG.
They look and wonder, although unable to speak I know I’m still me.

Please Someone know what to do
Typically a few days in step down ICU

Myasthenic flare leading to a crisis-Or it can
A Purgatory where I wobble and pray they will find a new plan

MG you are a beast to be reckoned with
I can’t hear you-or feel you-but you are definitely not a myth.