Hi Jodi! Good info. My neurologist had me get up to 60 mg of prednisone! But then in my hospital stay,they weaned me off of it. And my appetite came back! No eye issues though.
They had me on Imuran, and infusions, and I got bacterial pneumonia. And almost non existent white blood cells, after my thymectomy.
My neurologist said I'm still symptomatic. But I'm afraid to go back to infusions & imuran.