Sipping water in between bites of food...Sipping water with a slice if lemon or lime in between bites helps swallowing the food...reactionsreplies
LRP4 Question...I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...reactionsrepliesTreatmentTypesGeneralized MG
Active 5 days agoWhat household tasks are difficult for you?...What household tasks are difficult for you because of your MG?...reactions139repliesCoping
LLLT...Does low level laser therapy help to supplement medication in MG. It was suggest I go for a course. I have ocular bulbar MG...reactions1reply
What is your Win of the Day?...Living with MG can be challenging. Let's celebrate all the wins, big or small. What is your WIN of the DAY?...reactionsrepliesMental Health
Diet...I'm interested if anyone with mg has tried a hyper nutrition program for autoimmune.? Just nutrition from food. Mainly raw dark greens and stuff in the cabbage family, like cauliflower...reactionsrepliesDiet & Nutrition
Treatment ...I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended up in hospital as symptoms were progressively getting...reactions3repliesTreatment
Incontinence...My doctors don't respond when I mention this symptom. I believe they assume it is just old age (I'll be 80 years old in July). But this has only started...reactions1reply
How I find hope!...For anyone who believes in the Bible did you know there are verses that brings up my gMG symptoms. (When my neck cannot support my head) Psalm 3:3 ESV "But...reactionsrepliesCoping
How does Myasthenia Gravis affect eye health, and why are regular eye exams important for people with this condition?...Myasthenia Gravis often affects the muscles that control eye movement and eyelids, leading to symptoms like drooping eyelids (ptosis) and double vision (diplopia). These eye-related symptoms can fluctuate throughout the...reactions1replyAwareness
My child has eye issues from Myasthenia Gravis, drooping eyelids and vision problems. Has anyone else’s child faced this too?...Yes, my child went through something similar;Droopy eyelids and occasional double vision were tough. What helped us was a combination of rest, regular check-ups, and using special anti-glare lenses to...reactionsrepliesAwareness
Weight loss...Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...reactionsrepliesSide Effects
Active 6 days agoMuscle cramping and pain...I wish my phy. would have warned me about muscle "flares" where many muscles cramp at once. I had no idea, it happened for the first time today and I...reactions1replySymptoms
Survey RE. Agent Orange...I had heavy exposure to ancient orange, stateside, and wound up with prostate cancer. None of my family members that I know of including Cousins have had cancer. The base...reactions1replyFriends & Family
Prisms...I live in rural France and have ocular myasthenia gravis. My eyes are getting worse and the ophthalmologist here cannot get the prisms right. I'm wearing a pair of glasses...reactionsrepliesOcular MG
Empowering Patients: The Quest for Information and Better Treatment in MG...Key Takeaways:In recent years, a significant shift has occurred in myasthenia gravis (MG) care, with patients increasingly taking an active, empowered role in managing their condition. This proactive approach, fostered...reactionscomments
Patient Perspectives on Misunderstanding and Stigma in MG...Key Takeaways:People living with myasthenia gravis (MG) frequently face unique challenges, particularly concerning misunderstanding and stigma. Gaining insight into these lived experiences is crucial for fostering a more empathetic and...reactionscomments
Suggestions for ocular mg...I was diagnosed with ocular mg 5 years ago. Everything was under contro untill 6 months ago and I had a flare up, its still going on and my doctor...reactions3repliesCoping
Reset activities...What do you do to Reset? For me, it depends on my symptoms. I am very fatigued at the moment while fighting a cold and recovering from an adaptive yoga...reactionsrepliesCoping
Vitamin D and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition. When you have an autoimmune condition, your immune system cannot tell the difference between invaders (like bad bacteria, fungi, or viruses) and healthy...reactions2comments
