Cellcept induced muscle strains/problems...I started CellCept the end of August, 2024. I write this on 4/9/25 to give you a frame of reference, so I've been on it just short of 9 months...reactions1replyMuscle WeaknessExercise
Newly Diagnoses...I have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for 15 years after my familyn physician thought I...reactionsrepliesAwarenessNewly Diagnosed
Incontinence ...I have been on steroids for 3years can this cause incontinence with my mysenia gravis...reactionsrepliesMuscle Weakness
Double vision ...Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...reactions1replyAutoimmune Diseases
Active 3 days agoLeg cramps...I started having leg cramps when I began taking pyrid. Since they occur mostly at night, I get up and walk around the living room until the cramps are gone...reactions7replies
Bi-pap machine...Hi, New to MG. My MG has attacked my breathing the most and I talked to the doctor about it, and she mentioned that maybe a Bi-Pap machine may help...reactions5repliesSleep
Active 3 days agoIVIG Infusion...Hi, I am new to MG and this Forum. First forum I ever joined. I have read many on-line of various subjects when I am looking for info. I am...reactions4repliesNewly Diagnosed
Am I Glad I Got MG? Maybe......I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really didn’t know what to do for the final...reactions1comment
What is Leg systoms...I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid and crooked smile. My daughter thought I was...reactions1replyAwareness
ptosis improvement through Levator advancement surgery?...I have had generalized MG for 17 years and after years of going up and down on prednisone for ptosis I am considering having an eyelid lift surgery, called levator...reactionsreplies
Your MG Patients' Top Questions: Practical Answers for Your Practice...Key Takeaways: Myasthenia gravis (MG) presents a unique set of challenges for patients. As healthcare providers (HCPs), understanding their most pressing concerns is paramount to delivering comprehensive and empathetic care...reactionscomments
Diagnosis...Hello everyone, I live in Toronto, Ontario (Canada) and have been struggling with my health for years now. In most cases I wait several months to a year + to...reactionsrepliesDiagnosisNewly Diagnosed
Alternative medication...I’m a little curious I was read an article about ivermectin and was wondering if anybody has been using it or use it to control their MG. I am considering...reactionsreplies
Anyone taking Ultomiris?...I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...reactions3repliesTreatment
Slurred speech...Does anyone have slurred speech feeling that your tongue is numb or burning? If so, what was prescribed to help?...reactions2replies
Is it Myotonic Dystrophy or MG...Hi--I feel so envious of all of you who have caring doctors and help with your symptoms. I'm 74 years old and it took over 10 years, numerous blood tests...reactions3replies
My Postpartum MG Flare-Up...My baby is now almost 2 years old and I’m still managing a flare that came on 1-year postpartum. I was also very well managed with just 3.5mg of prednisone...reactionscomments
anyone get glasses for your double vision?...My opthamologist who diagnosed my MG wants to stay involved in my treatment, he was saying he would do botox on my eye to make the muscle wake up that...reactions2replies
Experiencing drooling ...Has anyone experienced drooling after being diagnosed with MG. Over the past three weeks I've noticed that I will drool off and on through out the day. It's very frustrating...reactionsrepliesSymptoms
A little denial ...Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...reactionsrepliesNewly Diagnosed
