17 years with MG...My story starts with double vision. While exercising, I would get double vision. When I would rest, it would go away. One day it was so bad I went to...Reactions0reactionsComments1 comments
2024 Has Been Interesting to Say the Least...I am 72 years old, a grandma to 4 kids. I had been mildly incontinent for several years, and in March I suddenly became severely incontinent requiring the use of...Reactions0reactionsComments3 comments
Living with MG since March 2024...Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery now but it's have been up and down...Reactions0reactionsComments1 replies
7 Tips for Living Alone with Myasthenia Gravis...When when I was living alone with myasthenia gravis (MG), I encountered many challenges. Although I only took on this endeavor after my symptoms were somewhat under control with treatment...Reactions0reactionsComments0 comments
Active 5 days agoIVIG Treatment Symptoms ...Hi friends, so I wondered if anyone else had an odd reaction to IVIG. A few days afterward all of my weakness symptoms are a lot less. The one symptom...Reactions0reactionsComments8 repliesOcular MG
Cataracts ...I need cataract surgery in my left eye. Has anyone done this and what was the result? I think I have gMG but have some double vision and a LOT...Reactions0reactionsComments0 replies
Could Quercetin and Zinc supplements cause an overactive autoimmune response that looks like Myasthenia Gravis?...My MG symptoms started after covid, but also after I began taking Quercetin and Zinc supplements....Reactions0reactionsComments0 repliesTriggersOcular MG
Strategies for Coping With a Rare Disease Like Myasthenia Gravis...When you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have myasthenia gravis (MG), there may be a lack of information...Reactions0reactionsComments1 comments
Difficulty Layering Clothes with Myasthenia Gravis...Having just returned from a chilly adventure up north, I couldn’t help but reflect on how much I take my warm Florida weather for granted. The struggle of layering clothing...Reactions0reactionsComments0 repliesMuscle WeaknessWeatherTips & Advice
Active 6 days agoUS Presidential Election and MG Healthcare...How are you feeling about future healthcare and MG treatment with a new administration coming into office in January?...Reactions0reactionsComments1 repliesInsurance & DisabilityCostTreatment
Dizziness...Hi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...Reactions0reactionsComments2 repliesCopingSymptomsNewly Diagnosed
Active 6 days agoWeight gain, anybody?...I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and more specifically since I started prednisone, which I've...Reactions0reactionsComments6 repliesExerciseDiet & Nutrition
What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?...Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...Reactions0reactionsComments1 repliesSymptomsCaregivingAwareness
Daily Life with MG: Perception Versus Reality...In order to spread awareness about myasthenia gravis (MG), I think it's essential to delve into the perception of MG versus the reality and shed light on the everyday lives...Reactions0reactionsComments3 comments
Active yesterdayWhat is the most effective treatment for MG!...Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...Reactions0reactionsComments1 repliesCoping
The Exhaustion of Caregiving...I have myasthenia gravis (MG) and over the past year I have been a caregiver to my husband throughout several illnesses, which included taking care of him while he was...Reactions0reactionsComments0 comments
Stress ...Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...Reactions0reactionsComments0 replies
Active 4 days agoImmunizations and MG...Has anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot. Covid the worst....Reactions0reactionsComments17 repliesSymptoms
New diagnosis with double vision ...Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...Reactions0reactionsComments0 repliesNewly DiagnosedTips & Advice
Plasmapheresis...I had the full gambit, the eight day program. I know it is supposed to make you feel like a new person, but, in my case I went down the...Reactions0reactionsComments0 repliesGeneralized MG
