How I Found Out...I turned 61 in May of 2025. I am a maile. I am obese and was diagnosed with Type 2 Diabetes in 2016. And just about the time I was...reactions3repliesAwarenessDiagnosis
At first mestinon now start of prednisone ...Nothing seems to work long term mestinon worked short term nothing seems to help I’m Starting 10mg prednisone but it’s supposed to worsen before helping and that’s what’s happening...reactions3repliesAutoimmune DiseasesOcular MG
Personal MG Manager...I got an email stating that individual managers are available to guide me with MG. I can't find that email. Does anyone have any info to help me? Thanks...reactions1replyTreatmentCoping
Correct diagnosis...Well I just felt like I needed to inform the community of my following results. I tested positive twice from myasthenia gravis back in 2010. Antibody positive. Okay move forward...reactions3replies
Drug comparison help...I have had 3 Octagam IVIG treatments and response is positive. Yet my neurologist wants me to change to Imaavy. I am wondering why, he doesn't seem to have a...reactions2replies
choose the right neurologist...I am going on 5 yrs with MG Occular. I have seen 5 doctors. My ophthalmologist ( the first to suggest MG Occular), the first Neuro who prescribed pyridostigmine with...reactions3replies
VISION...I have have had 20 over 25 business in my left eye. Suddenly, I could not read even the 1st line. Dr. Checked all the computer scans from last 4...reactions6replies
Gliclazide medication for Diabetes...My MG symptoms have gone into freefall since starting on a Gliclazide for Diabetes control. I’d be interested to know if anyone else has been affected by Gliclazides? I have...reactionsrepliesSide EffectsSymptoms
How to Identify Patients Whose Generalized Myasthenia Gravis (gMG) Symptoms Are Not Well-controlled...Key Takeaways: Recognizing when generalized myasthenia gravis (gMG) symptoms are not well-controlled is vital for optimizing patient outcomes. While a range of treatments is available, achieving symptom control can be...reactionscomments
What Do Improvements on the MG-ADL Scale Mean for Patients?...Key Takeaways: For healthcare providers (HCPs) treating patients with myasthenia gravis (MG), understanding the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale is fundamental. It helps HCPs assess how the...reactionscomments
My story with MG for the last 41 years and how I feel a lot better with Mirena anti conception...Hi there, I hope the information I share today will help at least one person a bit further. And if you have any questions, please feel free to ask me...reactions3repliesTips & Advice
Myasthenia Gravis Update 2 years Later....Hi there, lovely reader! My name is Fleur — I posted here almost two years ago now (can you believe it’s been that long?). Back then, I was just a...reactions2repliesAwarenessMental HealthOcular MG
Abnormal ECG...Recently my Doctor requested I have an ECG. The result was abnormal and caused some alarm and I was told to go straight to hospital, where I stayed for 24...reactionsrepliesSymptoms
Clinical Challenge - Test Your MG Knowledge...How confident are you in your Myasthenia Gravis knowledge? The complexities of MG demands a nuanced understanding for effective diagnosis and treatment. This interactive quiz is designed to challenge and...reactionscomments
Exercising with MG...I have had MG for 33 years. During the first several years I could do many types of exercises, such as, walking, lifting weights, push ups, etc. However, as time...reactions1reply
Side effects of Mestinon...I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon. My doctor doesn’t seem to have any other...reactions1replySide EffectsGeneralized MG
Private Platform for Sharing & Support – your thoughts?...Dear Community, My twin sister was recently diagnosed with Myasthenia Gravis, and it’s been an emotional and eye-opening time for our family. While supporting her, I realized how hard it...reactions2replies
My doctor (neurologist) is blaming my balance issues on neuropathy ...I have fallen at least 15 times..forward/backward and I have broken my collarbone, same shoulder and two compression fractures in my back T11-12 a bd L1-2…I do have MG and...reactions1replyAwareness
Orange glasses ...Visited the sight clinic today, in reference to my intermittent double vision, and I'm trialling some rather groovy looking orange glasses. Apparently filtering out certain colours can help rest the...reactions2repliesOcular MG
Excess phlegm...I was recently diagnosed with ocular MG. I was started on 30 mg of mestinon 3x day. Then upped in a months time to 60mg 3x day. Started noticing excess...reactionsrepliesSymptomsNewly DiagnosedOcular MG
