My Journey Continues
Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was confirmed and all the other health issues were discussed. Steroids were a poor choice for me because of being pre-diabetic.
What I was prescribed
So I began Mestinon which made me feel better right away. I then began four weekly infusions of Vyvgart. I was being asked if Vyvgart was making a difference. I did feel better each week. But I didn’t know if it was the Vyvgart or the infusions or both. I’m on the mandatory wait until round two.
My results so far
I’m 11 days since my last infusions. I had about five days of feeling fine. Then things came crashing down.
I am seriously not well. My arms are so weak it is hard to reach out to take hold of something. I have double vision, and I’m out of breath doing anything. Fatigue is overwhelming. I hurt all over. I see my neurologist next Friday to discuss my upcoming thymectomy. I have a tumor so it has to come out. I’m really concerned.
How I cope
Meanwhile, I’ll continue with my Mestinon. I do get some relief after I take it. So we will see how this goes. Every day is a new day.
Have you found an exercise routine that works for you?
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