My Journey Continues

Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was confirmed and all the other health issues were discussed. Steroids were a poor choice for me because of being pre-diabetic.

What I was prescribed

So I began Mestinon which made me feel better right away. I then began four weekly infusions of Vyvgart. I was being asked if Vyvgart was making a difference. I did feel better each week. But I didn’t know if it was the Vyvgart or the infusions or both. I’m on the mandatory wait until round two.

My results so far

I’m 11 days since my last infusions. I had about five days of feeling fine. Then things came crashing down.

I am seriously not well. My arms are so weak it is hard to reach out to take hold of something. I have double vision, and I’m out of breath doing anything. Fatigue is overwhelming. I hurt all over. I see my neurologist next Friday to discuss my upcoming thymectomy. I have a tumor so it has to come out. I’m really concerned.

How I cope

Meanwhile, I’ll continue with my Mestinon. I do get some relief after I take it. So we will see how this goes. Every day is a new day.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.