gMG
I was diagnosed with gMG in February 2024. I have been on Pyridostihmine 60mg since then. However, on January 11, 2026, I was in a car accident resulting in a brain bleed and a lot of trama to other parts of my body. Since then I have experienced more droopiness to both eyes and excessive weakness to both hands and fingers. I am very concerned and wonder what I should do?
Thank you so much! The doctor who diagnosed me was the one who was on call while I was in the hospital after the accident. He put me on a regimen of prednisone and assured me that would get me back to where I was before the accident. I changed from using him to another Neurologist who pretty much felt like I should remain on the Pyridostigmine as well. I do have an appointment with the second Neurologist on March 27, 2026. I will ask her about taking the next step in medication. Again, thank you so much!
Find a good neurologist who has experience with MG. It's pretty shocking that for two years you have only been on pyridostigmine. Pyridostigmine does nothing to disable the production of acetylcholine-binding antibodies and is normally considered a stop-gap treatment. By now you would usually be on an immunosuppressant or one of the newer treatments. Trama is very likely to trigger an exacerbation of your MG symptoms. Talk to your doctor about your worsening condition. You don't want it to get worse.
